Interstitial Cystitis Association

Interstitial Cystitis Association For more information visit www.ichelp.org.

The ICA is the hub for the millions affected by interstitial cystitis (IC), urgency, frequency and bladder pain, as well as the providers and researchers working to improve the lives of IC patients.

Coming soon: the Spring/Summer 2026 ICA Update!This edition focuses on IC/BPS and sexual health, including ways to maint...
05/29/2026

Coming soon: the Spring/Summer 2026 ICA Update!

This edition focuses on IC/BPS and sexual health, including ways to maintain or restore intimacy while living with IC/BPS, the role of pelvic floor physical therapy, communication with partners, patient stories, research updates, and more.

Be on the lookout for the digital copy, coming soon to the ICA community!

Hard copies of this issue will be mailed to supporters who donated $50 or more during the current mailing cycle. Donations received now (ichelp.org/donate) will help support ICA’s ongoing education, advocacy, and community programs and will count toward receiving a hard copy of the Fall/Winter 2026 edition of the ICA Update.

Thank you for helping us continue to provide trusted resources for people living with IC/BPS. 💙

Conquering IC/BPS. Changing Lives.

The ICA is grateful to our corporate partners who help us keep our resources free for our community. Today, we'd like to...
05/27/2026

The ICA is grateful to our corporate partners who help us keep our resources free for our community. Today, we'd like to highlight Desert Harvest. You can learn more about them and their products at desertharvest.com.

*While we share ads and information regularly about these partners, please remember that the ICA does not recommend any specific product. Please consult your healthcare team before beginning any new treatment.

**These statements have not been evaluated by the Food and Drug Administration. These products are not intended to diagnose, treat, cure, or prevent any disease.

Join the ICA for our next free webinar in our Monthly Webinar Series on Friday, May 29, 2026, at 9:30 a.m. Eastern!While...
05/26/2026

Join the ICA for our next free webinar in our Monthly Webinar Series on Friday, May 29, 2026, at 9:30 a.m. Eastern!

While not a factor for everyone in the IC/BPS community, there are many who report diet as a significant factor in managing their condition. In this webinar, urologist Dr. Joseph DiTrolio will discuss the science behind Prelief and its role in dietary management of IC/BPS.

➡Save your spot by registering here: https://www.eventbrite.com/e/1988097798032?aff=oddtdtcreator

Your confirmation email will include an option to add the event to your calendar and access your tickets, along with a link to join the webinar.

This webinar is sponsored by DSE Health Solutions, makers of Prelief.

This Memorial Day, the Interstitial Cystitis Association honors and remembers the brave service members who gave their l...
05/25/2026

This Memorial Day, the Interstitial Cystitis Association honors and remembers the brave service members who gave their lives for our country.

We also recognize the veterans, military families, and loved ones in our community who carry their legacy forward. Today, we pause with gratitude, reflection, and respect.

05/23/2026

Did you miss our virtual community movie night with the screening of Lady Parts? No worries! You can still watch the recording of our amazing panel of health professionals, who took audience questions about vulvodynia.

Watch the recording here: https://www.youtube.com/watch?v=-zbJkfWktLo

05/18/2026

Did you miss our virtual community movie night with the screening of Lady Parts? No worries! You can still watch the recording of our amazing panel of health professionals, who took audience questions about vulvodynia.

➡Watch the recording here: https://www.youtube.com/watch?v=-zbJkfWktLo

If you live with IC/BPS, you may have turned to social media for answers, support, or connection, and you’re not alone.A...
05/16/2026

If you live with IC/BPS, you may have turned to social media for answers, support, or connection, and you’re not alone.

A new study found that Facebook often serves as a patient-driven space for discussion, while Instagram is more commonly used by healthcare professionals to raise awareness. But the study also found that much of the IC/BPS information shared online lacked scientific accuracy.

This is an important reminder: online support can be valuable, but it’s essential to pair community experiences with trusted, evidence-based information.

The ICA is committed to sharing reliable research, education, and resources for the IC/BPS community. We recently covered this article in our research newsletter.

Want to stay up to date on IC/BPS research? Sign up for the ICA Research Newsletter: https://www.ichelp.org/icacommunicationssign-up/

Address

388 S. Main Street Ste 440-# 157
Akron, OH
44311

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm
Saturday 9am - 5pm
Sunday 9am - 7pm

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