Ataxia aware

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People with Ataxia have problems with speech, coordination and balance. Ataxia gets worse over time, until they become dependent on others.

patient founded and patient focused, run by patients Ataxia Patients Charity 1184030

Patients Helping Patients
encompassing associated Rare disease and Movement Disorders
Maximising the patient voice within the Medical / Health / pharma community

31/10/2026

worth sharing, again....
So proud to have this carved with a (the "Coordination Kingdom"

-aware and
www.ataxia-aware.org

31/10/2026

Invisible to many. Lived by thousands. 💙 Ataxia is real, even when you can’t see it.

31/10/2026

We need YOUR nomination! Movement for Good is giving £1,000 to charities.
You support will help awareness charity -aware Win £1,000!
visit http://movementforgood.com

Enter our charity number 1184030
Submit your nomination—it only takes a minute!

31/10/2026

Ataxia awareness images this week via new intern, , Welcome to our team

31/10/2026

Brandi Living On A Prayer With Ataxia went to the Mayo Clinic expecting answers to a few weird symptoms. I never expected to walk out with a life-changing diagnosis: Ataxia.

31/10/2026

📢 **UPDATE**
Thank you, Ann McGregor — and everyone who signed and shared!

The petition for NHS access to Omav is heading to Parliament for debate.

⏰️ Debate: Monday 11th January, 4.30pm, Westminster Hall.

✍️ Take action: write to your MP and ask them to attend — use the draft invitation in the statement.

📺 Watch live online: on UK Parliament’s YouTube or Parliamentlive.tv.

📖 Read our full community statement for the details and how to get involved on our website
https://www.ataxia.org.uk/accessomavnow/

Genetic Alliance UK, , National Ataxia Foundation FARA Ireland

31/10/2026

Address

Swansea
SA34

Website

http://www.ataxia-aware.org/

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