Parathyroid UK

24/07/2026

01/06/2026

Today is World Hypopara Day. One year on, the Hypopara Butterfly continues to be a powerful symbol of the lived experience of hypoparathyroidism, capturing the complexity behind what clinicians see on paper. 🦋

As healthcare professionals, we know this condition is rarely one-size-fits-all. Initiatives like the butterfly help bring real patient experiences into focus, enriching our understanding beyond biochemical results.

In the latest Seeds of Change: Expert Views on Hypoparathyroidism series, an awareness campaign by Ascendis Pharma UK, supported by the Society and Parathyroid UK, our Nurse Committee Chair, Helen Loo, explores a critical insight:
When ‘In Range’ Isn’t Enough: The Importance of Quality of Life in Hypoparathyroidism

Despite being “in range”, many patients continue to face significant physical, cognitive and emotional symptoms that often go unrecognised.

Read the full article here: https://seeds-of-change.com/uk/expert-views-on-hypopara/

01/06/2026

This World Hypopara Awareness day, we’re raising awareness of just SOME of the symptoms of hypoparathyroidism. Comment below the ones we’ve missed!

01/06/2026

01/06/2026

Today is World Hypopara Awareness Day! 💙
Hypoparathyroidism (Hypopara) is a rare endocrine condition where the body doesn't produce enough parathyroid hormone. This leads to low calcium levels, causing a wide range of challenging, daily physical and mental symptoms.
Living with a rare disease can feel incredibly isolating, but today is a reminder that no one has to fight alone. By sharing our stories, we raise vital awareness, push for better treatments, and strengthen our community.
Let’s stand together to make Hypopara visible! 🦋✨
Join our World Hypopara Day Party and share your story!

01/06/2026

Today is World Hypopara Awareness Day! 💙
Hypoparathyroidism (Hypopara) is a rare endocrine condition where the body doesn’t produce enough parathyroid hormone. This leads to low calcium levels, causing a wide range of challenging, daily physical and mental symptoms.
Living with a rare disease can feel incredibly isolating, but today is a reminder that no one has to fight alone. By sharing our stories, we raise vital awareness, push for better treatments, and strengthen our community.
Let’s stand together to make Hypopara visible! 🦋✨

28/02/2026

On Rare Disease Day, we shine a light on hypoparathyroidism, a rare condition that affects calcium regulation and is often misunderstood.

While hyperparathyroidism is common, hypo remains under-recognised and under-supported.

Rare deserves visibility.