Marie Curie UK

Marie Curie UK Whatever your illness, wherever you are, weโ€™re here to support you and those close to you ๐Ÿ’›
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Be Kind & Respectful โ€“ Treat others with kindness and respect. We do not tolerate any form of disrespectful, abusive, or inappropriate behaviour. No Hate Speech or Harassment โ€“ Any comments or content that are offensive, discriminatory, or harassing will be removed without prior notice. Stay On Topic โ€“ Please keep discussions relevant to the post you are commenting on. Spam, irrelevant promotions, or repetitive self-promotion are not allowed. Content Responsibility โ€“ Posts, pictures, and videos shared by community members do not necessarily reflect the views of Marie Curie UK, its employees, or affiliates. Moderation โ€“ We reserve the right to remove any content that violates these guidelines. Anyone who repeatedly disregards these rules may be removed from our page to protect the community. Thank you for being part of our community and for supporting Marie Curie ๐Ÿ’›

"Mum was diagnosed with a progressive terminal lung disease in 2021. She required 24/7 oxygen machines and as the diseas...
12/10/2026

"Mum was diagnosed with a progressive terminal lung disease in 2021. She required 24/7 oxygen machines and as the disease progressed it became very difficult for her and she had no quality of life. In the end she was bed bound at home and couldn't do anything for herself. When she took a bad turn in August last year, she needed carers and overnight care. This is when Marie Curie became involved.

It made all the difference. Every single Marie Curie staff member was fantastic. The Health Care Assistant would come round at about 10pm and usually stay until 7am in the morning. It meant that Dad was able to get a good night's sleep and take over again in the morning feeling refreshed. Gail and Boggi were the Marie Curie staff that came the most and were wonderful. Mum really loved them and I noticed she was far less anxious when Marie Curie was here. They were caring and compassionate. We would have struggled hugely without them. I don't like to imagine how it would have been otherwise.

Gail was really brilliant the night Mum passed and spoke to me in a calm manner. She explained what might happen when Mum died. She made sure to tell me the signs to look out for when the end was near, for example the change in Mum's breathing. She provided care for my mum, constantly checking on her and changing her if she needed to. She was there for me and my Dad the moment Mum passed away and made the appropriate phone calls to the out of hours nurses. I'll never forget the kindness and care shown for my Mum." - Lee, whose mum Arlene (pictured) was supported by our Hospice Care at Home team in Wales

Hospice care is so much more than pain relief and symptom management. ๐Ÿ’›It can be getting help to stay active and keep do...
10/10/2026

Hospice care is so much more than pain relief and symptom management. ๐Ÿ’›

It can be getting help to stay active and keep doing the things you love for as long as possible. Talking through fears and worries with someone who understands. Joining a support group. Enjoying a favourite sweet treat in the afternoon. A last cuddle with your dog.

And hospice care doesn't only happen in a hospice. Care and support can be provided at home, in hospices, in hospitals and out in communities too. Hospice care is about supporting the whole person and helping them to live well, until the very end.

That's why this Hospice Care Week we're celebrating the many ways hospice care can support terminally ill people and those closest to them. Find out more about what hospice care is and how we can support you ๐Ÿ‘‰ https://bit.ly/4B2QC4w

Say hello to Nurse Vicci. ๐Ÿ‘‹ Sheโ€™s one of our wonderful nurses working in a local GP surgery. She identifies people in th...
09/10/2026

Say hello to Nurse Vicci. ๐Ÿ‘‹ Sheโ€™s one of our wonderful nurses working in a local GP surgery. She identifies people in the community with life-long or terminal conditions who havenโ€™t been seen by palliative care specialists before. Read more about what a shift is like for Nurse Vicci ๐Ÿ‘‡

โ€œSome people immediately hear Marie Curie and don't want to know. They think it's cancer and I reassure that Marie Curie is not just cancer support.

โ€œI work with Advance Care Planning or future planning in palliative care, everything to do with what you want out of your future years. It doesn't necessarily mean terminal or end of life, Iโ€™m going beyond that and looking at increasing quality of life in the last years.

โ€œI help verbalise and document peopleโ€™s choices โ€“ do you want to go to hospital? Do you not want to go to hospital? Or something in between. Completing Respect forms, with detailed information, regarding where people want to be cared for, what treatments they do and don't want, and including family where required in conversations.

โ€œOnce people have met me, and I describe exactly what it is that I do, most people are happy to do some kind of planning. They don't necessarily want to do everything immediately, but it certainly starts a conversation, raises some questions and prompts them to consider what might be important to them now and at the end of their life.

โ€œThe biggest thing I've probably encountered is that most people do have an idea about what they want โ€“ about their funeral plan, about their resuscitation wishes, what they wantโ€ฆitโ€™s just no one's ever asked them before.

โ€œThat's why it's important. Without this service, many of the patients I've supported might not be identified until they are seriously ill in A&E.โ€

This Hospice Care Week, weโ€™re highlighting how hospice care reaches far beyond hospice buildings. Nurses like Vicci are out in their communities, helping people access vital palliative and end of life care when and where they need it most. Thank you Nurse Vicci for sharing your story and for everything you do to care for people living with terminal and life-limiting illnesses. ๐Ÿ’›
not just cancer support.

โ€œI work with Advance Care Planning or future planning in palliative care, everything to do with what you want out of your future years. It doesn't necessarily mean terminal or end of life, Iโ€™m going beyond that and looking at increasing quality of life in the last years.

โ€œI help verbalise and document peopleโ€™s choices โ€“ do you want to go to hospital? Do you not want to go to hospital? Or something in between. Completing Respect forms, with detailed information, regarding where people want to be cared for, what treatments they do and don't want, and including family where required in conversations.

โ€œOnce people have met me, and I describe exactly what it is that I do, most people are happy to do some kind of planning. They don't necessarily want to do everything immediately, but it certainly starts a conversation, raises some questions and prompts them to consider what might be important to them now and at the end of their life.

โ€œThe biggest thing I've probably encountered is that most people do have an idea about what they want โ€“ about their funeral plan, about their resuscitation wishes, what they wantโ€ฆitโ€™s just no one's ever asked them before.

โ€œThat's why it's important. Without this service, many of the patients I've supported might not be identified until they are seriously ill in A&E.โ€

This Hospice Care Week, weโ€™re highlighting how hospice care reaches far beyond hospice buildings. Nurses like Vicci are out in their communities, helping people access vital palliative and end of life care when and where they need it most. Thank you Nurse Vicci for sharing your story and for everything you do to care for people living with terminal and life-limiting illnesses. ๐Ÿ’›

These photos were taken by care home residents, their family and staff, capturing what living well at the end of life me...
07/10/2026

These photos were taken by care home residents, their family and staff, capturing what living well at the end of life means to them. ๐Ÿ’›

Care homes provide vital end of life care, often for people with complex needs, such as frailty and dementia. But theyโ€™re not always recognised for the end of life care they provide. Care home teams provide people with the care and support they need to feel comfortable at the end of life, and they also help people to keep doing the things they enjoy and make final memories with loved ones - as these photos show so wonderfully.

Tell us which photos resonate with you in the comments. Do any of these photos surprise you or change your thinking about care homes? ๐Ÿ‘‡

This Hospice Care Week, we're highlighting that hospice care doesn't just happen in hospice buildings. It also happens in care homes, where people receive expert care, comfort and support at the end of life.

Thank you to the care home residents, family members and staff who took and shared these photos. They were taken as part of a research project run by Dr Julie Watson, Clinical Lead for the Marie Curie Care Home Programme in Scotland, and colleagues at Edinburgh Napier University.

This is Patricia. When our Occupational Therapy and Physiotherapy team in Cardiff first met her, she was bedbound at hom...
06/10/2026

This is Patricia. When our Occupational Therapy and Physiotherapy team in Cardiff first met her, she was bedbound at home. Despite the challenges she faced, Patricia had one very clear goal: to get back to her weekly bingo sessions with her friends.

Over the following months, Patricia worked incredibly hard towards that goal. With determination, perseverance, and support from the incredible team, she gradually rebuilt her strength, confidence, and independence.

Last month, Patricia achieved what once seemed impossible. She returned to bingo for the first time, much to the delight and surprise of her friends, who had not expected to see her there!

This is a wonderful example of what rehabilitation in palliative care can achieve. It is not always about curing illness, but about enabling people to continue doing the things that matter most to them.

This Hospice Care Week, we're highlighting how hospice care reaches far beyond hospice walls. Whether it's helping someone return to a weekly bingo session, spend time with family or regain confidence and independence at home, hospice care is about supporting people to keep doing what matters most to them.๐Ÿ’›

The wonderful Paul Chuckle brought some joy and laughter to patients and nurses at Glasgow Hospice. ๐Ÿ’› Paulโ€™s visit marks...
05/10/2026

The wonderful Paul Chuckle brought some joy and laughter to patients and nurses at Glasgow Hospice. ๐Ÿ’›

Paulโ€™s visit marks the start of Hospice Care Week, which is all about celebrating hospice care and recognising the support people need and deserve at the end of life.

Hospices like our Glasgow Hospice provide round-the-clock care for people staying in the hospice, as well as therapies, treatments, wellbeing activities and other support for outpatients.

But thatโ€™s just one part of what hospice care is. Hospice care extends far beyond hospice walls, and throughout the week we'll be sharing more about the many different ways hospice teams support people and their families in hospitals, GP practices, local communities and people's own homes.

The Wellbeing Group at our Liverpool hospice enjoyed a little taste of Italy recently... everyone had a fantastic time l...
03/10/2026

The Wellbeing Group at our Liverpool hospice enjoyed a little taste of Italy recently... everyone had a fantastic time listening to some classic Italian music, getting creative in the kitchen and making their very own pizzas to take home and enjoy for tea that evening ๐Ÿ• With flags, decorations and plenty of Mediterranean atmosphere, it really felt like theyโ€™d been transported to Italy!

๐Ÿ’„๐Ÿ’› Sarah is holding her mum, Carol's, last lipstick. She died from bowel cancer last year. Carol loved her lipstick and ...
02/10/2026

๐Ÿ’„๐Ÿ’› Sarah is holding her mum, Carol's, last lipstick. She died from bowel cancer last year. Carol loved her lipstick and her favourite shade was a bold pink shade.

"When I wear lipstick myself, I often see her looking back at me in the mirror and I remember all the times she would tell me that putting on a bit of lipstick might make me feel better - and she was completely right!

I remember mum looking particularly glamorous (wearing her lipstick of course) the day we went to see the consultant who then ironically delivered her the devastating news that nothing could be done for her.

I also remember his words that day saying to her that she looked wonderful and to take each day as it came." ๐Ÿ’›

David wrote this poem about his wife Carmel at our Cardiff and the Vale Hospice Wellbeing and Support Hub. ๐Ÿ’›Carmel died ...
01/10/2026

David wrote this poem about his wife Carmel at our Cardiff and the Vale Hospice Wellbeing and Support Hub. ๐Ÿ’›

Carmel died two weeks ago from dementia. What a beautiful tribute to her this is. ๐Ÿ’›

โ€œHer diagnosis put a laser sharp focus on our relationship and suddenly we wanted to make sure that we were together. As...
30/09/2026

โ€œHer diagnosis put a laser sharp focus on our relationship and suddenly we wanted to make sure that we were together. As soon as she rang me to tell me her diagnosis, I needed to be right next to her. I think it just cast a huge light on us and what we wanted from our life suddenly. It's like you've been given an expiry date in a way. Although we all know we're going to die, we suddenly thought, "That's going to potentially be much sooner than we thought it was going to be." And I think people are very often saying this, but it's just the absolute lesson in what perspective you have on what's important suddenly."

In the latest episode of our podcast, CoppaFeel! co-founder Maren Sheldon talks about caring for and the death of her twin sister, Kris, who lived with stage 4 breast cancer for 15 years. In her chat with Jason, Maren shares moments from when Kris was first diagnosed to navigating life alongside a life-limiting illness, helping Kris organise her living funeral and what caring looked like at the end of Krisโ€™s life. As Maren begins to re-learn her world without Kris, she offers insight and her perspective on twin loss.

Listen to the podcast here: https://bit.ly/4hvkltX

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