Pain UK

11/06/2026

Lisa, a lecturer at Buckingham Uni, invites you to complete an anonymous online survey which takes around 15-20 minutes. It explores the way that people with chronic pelvic pain understand their identity. In particular, it explores whether this is linked to social support, mental health, pain beliefs, living according to values and the impact of pain on day-to-day life.

YOu can go directly to the link https://run.pavlovia.org/pavlovia/survey-2025.2.0/?surveyId=15b8df07-c49f-4efd-abd4-94e64d231182

Or check out the poster for more details.

28/05/2026

The Patients Association is holding a focus group to understand patients’ experience of short notice cancellations of surgery.
There are many reasons why short notice cancellations occur, such as the patient decides not to have the surgery (patient choice), the necessary pre-surgery screenings and assessments (e.g., blood tests, consultation with specialists) were not done in time to clear the patient for surgery, acute medical conditions such as a respiratory infection made it too risky to do the surgery, or lack of theatre capacity (bed/staff shortage).

The online focus group will be held on June 24th. Participants will receive an £80 voucher.
If interested, fill in this form:
https://www.surveymonkey.com/r/ShortNotice
It is open until 5th June!

Take this survey powered by surveymonkey.com. Create your own surveys for free.

26/05/2026

Symptoms like endometriosis?

Amy, at the University of the West of England, is seeking participants who are in the UK, 18+ and have suspected endometriosis (but not a diagnosis) to complete an online, anonymous survey:
https://uwe.eu.qualtrics.com/jfe/form/SV_7TVHBItCPHj5fVA
Thank you.

18/05/2026

How does your partner help/cope?
Kitty Plant is a PhD researcher at Uni. of reading. She is studying the experiences of couples managing fibromyalgia. We are particularly interested in how partners respond to pain and how these responses shape coping, resilience and the overall connection within the relationship.
You will be eligible if you are:
• Aged 18 years old or over,
• In a relationship of 6 months or longer
• Living together or spend most days/nights of the week in the same household,
• Either living with a formal diagnosis of or on the pathway to diagnosis of fibromyalgia OR the partner of someone with fibromyalgia
You will be invited to join a one-off, on-line focus group.
Contact Kitty to express interest in the study - [email protected]
Thank you!

15/05/2026

Do you have a child aged 12-24 with chronic pain in their joints, muscles, bones, tendons or ligaments? Georgina is working on a study into young people’s experiences with their chronic pain and they’d love to talk to such people about how they manage their pain and what self management looks like to them 😊

Georgina is a young person with chronic pain in most of her joints due to EDS and CRPS, and is trying to improve healthcare experiences for people with conditions like her. Me and another young person have been doing the interviews and so far it’s been incredible hearing so many different experiences but we’re looking for as many as we can!

If you’d like more information you can visit our website: https://inspiremsk.stir.ac.uk/

And you can contact the lead researcher at: [email protected] if you need more info.

14/05/2026

PainPass will assist you in getting your doctor on board with the level of pain.
Pain UK gave Nurofen the "See my pain" slogan!!!

Help break the bias and navigate your pain journey with confidence. Track your pain, record your symptoms and learn what to do when facing bias.

12/05/2026

Paid opportunity -answer by 29th May

The NIHR Patient Engagement team have an opportunity for 4- 8 adults (aged 18 or over), who have lived experience as a parent or carer of a child , aged 12-18 years old, with CIDP or other inflammatory neuropathy, to undertake a review and comment on the content and design of the documents for patients in a particular research study.
Go to https://tinyurl.com/PECD-017-IN

Participants will be reimbursed £137.50 for their time.
We expect that this activity will take place in late May 2026, and the deadline for people to apply to participate will be 29th May 2026, by 5 pm.

12/05/2026

For Young Adults Living With Chronic Pain:

Victoria and her team are conducting a short study about chronic pain in young adulthood (age 18-29). They want to better understand the experiences of those living with chronic pain so they can meaningfully contribute to effective intervention development. Participation is anonymous and ethics board-approved!

If you or someone you know lives with chronic pain and is between the ages of 18 and 29, they want to hear from you!
Participation takes approximately 15 minutes. Here is the link to the study:

https://rhulpsychology.eu.qualtrics.com/jfe/form/SV_1zB8LKQA8vVBVhc?fbclid=IwY2xjawRwS5ZleHRuA2FlbQIxMABicmlkETFPSWZDaG02RHRaaHhIS2NQc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHvlUXppColb2xUOvprBrW7eYhcqZ3LO3EJehocz-SSVat5gv0aUuR2GVMJaf_aem_uM2s3VYCFbuPZeLbV3IAjQ

BONUS - Victoria and her team will hold a prize draw in the middle of June, in which five £10 Amazon vouchers will be randomly distributed among participants!

08/05/2026

🎉 Congratulations to our Pain UK & BPS Poster Prize Winner!
🏆 Shreya Mehta
📍 Imperial College London
📌 Prioritising migraine prophylaxis in East London primary care
Awarded at this year’s , this prize recognises outstanding research in chronic pain.
🌟 We’d also like to congratulate Dr Hollie Birkinshaw, who received second place as runner-up!
👏 A fantastic achievement and an important contribution to improving patient care.

08/05/2026

Difficulty sleeping? Read on:

Researchers at the University of Cambridge, alongside Royal Papworth Hospital NHS Foundation Trust and Bitbrain, are recruiting UK adults with chronic pain and poor sleep for the LALABY study.
The research is investigating whether a lightweight EEG headband worn at home, together with gentle personalised pink-noise stimulation during sleep, may help improve sleep quality and daytime wellbeing. Participants will complete home-based sleep monitoring and brief daily wellbeing recordings over several weeks, with full support from the research team. The study is non-invasive and entirely voluntary.

To find out more or express interest, contact:
Kieran Lee
([email protected] | +44 7766 578613)”