Parkinson's Australia

18/06/2026

Some mornings are harder than others.

My body is stiff, my gait is slow, and getting going can take longer than it used to. But I do get going.

I was diagnosed with Parkinson's in 2016. I still go to the gym. I still travel. I still laugh - a lot. That's not luck. It's what happens when you have the right people in your corner.

I am more than my Parkinsons.

If you've ever wondered what a donation to Parkinson's Australia goes to, it funds national advocacy, connection and awareness for our Parkinson’s community.

Help us fight the stigma because I AM MORE THAN MY PARKINSON’S!

Donate today - https://hubs.la/Q04kDLhN0

17/06/2026

This World Continence Week (15–21 June), we're proud to be joining Continence Health Australia in encouraging people to seek support sooner.

Did you know that on average, people live with incontinence for 4 to 6 years before reaching out for help?

Whether you're avoiding social activities, feeling anxious about leaks, or too embarrassed to talk about your symptoms — you're not alone, and support is available.

With 1 in 4 Australians experiencing some form of incontinence, this is more common than many people realise. Yet stigma continues to keep people silent for far too long.

This year's theme says it all: "When you've got to go, we've got you."

If bladder or bowel health is something you or someone you love is navigating alongside Parkinson's, reach out to the National Continence Helpline on 1800 33 00 66 or visit https://hubs.la/Q04lGvvd0

🔗 Watch Dr Ashani Couchman, neurourologist, explain how Parkinson's can impact bladder health: https://hubs.la/Q04lGzMy0

Continence Health Australia
Australasian Neuroscience Nurses Association

16/06/2026

Join us to get an extra 1000 submissions to the Senate Affairs Support at Home Inquiry before the closing date, 31 July 2026. Your voice matters.

Use our template here: https://hubs.la/Q04lwSRh0

Then submit directly here: https://hubs.la/Q04lw2RG0

ABC News Wicking Dementia Centre The Hospital Research Foundation Group - Parkinsons ACT Fight Parkinson's Parkinson's Western Australia Parkinson's NSW The Hospital Research Foundation Group - Parkinson's Older Persons Advocacy Network COTA Australia - for older Australians National Seniors Australia Speech Pathology Australia

15/06/2026

Join us TODAY for two very important Roundtables:

SESSION 1: NDIS Proposed Changes & Our Submission - Tuesday 16th June 2026 @ 11:30am ACST

SESSION 2: Highlighting Issues with Support at Home Aged Care Reform - Tuesday 16th June 2026 @ 12:30pm ACST

Sessions will be led by CEO, National Advocate & Changemaker, Olivia Nassaris.

Register here:
https://sv0d8.share.hsforms.com/2kP5I0G4LRempVvH4B_UNQw

COTA Australia - for older Australians
Older Persons Advocacy Network
National Seniors Australia

NEXT WEEK: You're invited to join us for two very important Virtual Roundtable Sessions.

SESSION 1: NDIS Proposed Changes & Our Submission - Tuesday 16th June 2026 @ 11:30am ACST

SESSION 2: Highlighting Issues with Support at Home Aged Care Reform - Tuesday 16th June 2026 @ 12:30pm ACST

Sessions will be led by CEO, National Advocate & Changemaker, Olivia Nassaris.

Session 1: Join us for an open conversation about the proposed changes to the NDIS and what they mean for people living with Parkinson's. We'll be sharing the details of our official submission and walking through the key points we've raised on behalf of our community.

Session 2: Support at Home impacts many in our community - and there are real issues that need to be heard.

Join us to share your experiences, raise your concerns, and help us build a submission that reflects the true impact on our community.

Anyone involved in the care of, or living with Parkinson’s, is encouraged to attend, including family members, allied health professionals, support workers and other care team members.

Register for one or both sessions here:
https://hubs.la/Q04kzcHj0

15/06/2026

Do you know someone with Parkinson's disease?

This is your opportunity to help them and advance medical research by participating in a clinical trial with CMAX.

Eligible participants will be paid for their time.

Find out more: https://hubs.la/Q04l0dQ70

14/06/2026

Monday Weekly Recap is back. We've been busy with:
ADVOCACY | see the latest newsletter for , NDIS & Aged Care campaign updates https://hubs.ly/Q04lm9ZL0
ROUNDTABLE | https://sv0d8.share.hsforms.com/2X4b9_R1RRz-RLq61kHZQNw
VIDEO | Super & insurance with MB Lawyer Craig https://hubs.ly/Q04lm4pW0
INFO | PSP infosheet https://hubs.ly/Q04lm3J50
ARTICLE | Who does what? https://hubs.ly/Q04lm3hK0
VOTE FOR US | https://hubs.ly/Q04ll_Xz0

13/06/2026

🎓 Did you know you can study Parkinson's disease - for free, online, at your own pace?

The Wicking Dementia Centre offers a Parkinson's Disease MOOC - a Massive Open Online Course - meaning anyone, anywhere can enrol and learn at no cost.

No qualifications needed, no deadlines, just practical, research-backed knowledge when it suits you.

The Parkinson's Disease MOOC covers:
✅ Symptoms and diagnosis
✅ Treatment options
✅ Current research
✅ Care strategies for those living with Parkinson's

And if you're supporting someone with another condition, Wicking also offers free MOOCs on:
- Understanding Dementia
- Childhood Dementia
- Preventing Dementia
- Traumatic Brain Injury
- Motor Neurone Disease

Whether you're newly diagnosed, a carer, a health professional, or simply curious - these courses are for everyone.

Enrol anytime: https://hubs.la/Q04l04RJ0

Share this with someone who could benefit.

Wicking Dementia Centre
University of Tasmania

11/06/2026

Does everyday packaging or products make life harder than it should?

As a member of the Accessible Product Design Alliance, we are helping recruit volunteers for this year's Unboxing Accessibility Campaign.

The insights you share about your lived experience will directly inform how products and packaging are designed in Australia.

Signing up takes just a few minutes. Get involved today: https://hubs.la/Q04kn_nd0

11/06/2026

It's National Blood Donor Week (8–14 June) & you can make a difference!

Did you know that over 8.3 million Australians will need blood in their lifetime?

While Parkinson’s itself doesn’t typically require regular blood transfusions, many people living with Parkinson’s are older and often face hospitalisations for related conditions, like infections, surgeries, or falls, that may require blood products.

In fact, in 2019–20 alone, there were over 48,000 hospitalisations of PLWP in Australia.

That's why we're asking you, your family, and your friends to donate blood as part of the Parkinson's Australia Lifeblood Team.

Every donation counts. Join our team: https://hubs.la/Q04l05ZM0 > Join existing team > Search the word "Parkinson" and you'll find us.

Australian Red Cross Lifeblood Damien Leith

Share this with someone who could save a life today.

11/06/2026

I can do a 3-minute deadhang at the gym. I live with Parkinson's.

I'm not sharing that to show off. I'm sharing it because when I was first diagnosed, I didn't know if any of this would still be possible. The answer, with the right support, is yes.

I am more than my Parkinson's. And Parkinson's Australia helped me believe and live it.

Before 30 June, help us fight the stigma so that everyone can believe they are more than their Parkinson's!

🔗 Donate here: https://hubs.la/Q04l05ZY0

Exercise & Sports Science Australia (ESSA)