Parkinson's Australia

04/11/2026

Understanding what the NDIS will and won't fund can be confusing, especially when you're living with Parkinson's.

Our simple guide breaks down the "in" and "out" list, helping you understand the difference between disability-related supports, everyday living costs and services funded by other systems.

Before your next planning meeting or reassessment, make sure you know what's generally considered an NDIS support and what is excluded.

📄 Download the guide and know what to ask for*: https://hubs.la/Q04CZvNF0



*always consult with the NDIS or your support coordinator/plan manager before spending to ensure your item/therapy is not on the outs list.

04/11/2026

Feeling the heat or cold more than most people? It could be Parkinson's.
Temperature dysregulation is a common but often overlooked symptom of Parkinson's. Some people experience excessive sweating, while others struggle to stay warm during colder months. These symptoms can affect comfort, health and energy costs.

Depending on where you live, you may be eligible for energy concessions, rebates or medical cooling and heating support to help manage the additional costs associated with temperature regulation challenges.

Learn what support may be available in your state or territory and how to apply:
🔗 https://hubs.la/Q04CZ9W30

Understanding temperature dysregulation in Parkinson’s Parkinson’s affects the autonomic nervous system, the part of the body that controls automatic functions like: Sweat production, which is important for cooling the body Blood vessel control, which helps release or conserve heat Muscle activi...

02/11/2026

💧Wee: "Bladder, we need to talk."

🫧 Bladder: "Is this about last night's six bathroom visits?"

💧Wee: "And yesterday's emergency dash."

🫧 Bladder: "I thought we'd never speak of that."

💧Wee: "It's time."

Continence issues can affect anyone, and they're more common than many people realise.

The Continence Conversation with Sheena Lagat is a chance to get reliable information and ask questions in a supportive environment.

👉 Register now: https://hubs.la/Q04CKxy60 The Continence Foundation of Australia in NSW PureWick At Home Continence Foundation of Australia Qld Branch Inc Continence Health Australia Continence and Nursing Care Australia Continence Nurses Australia

01/11/2026

WEEKLY RECAP

PARTICIPATE | You can help in research trials & surveys https://hubs.la/Q04CZ1CR0

LEARN | Continence Webinar Nov 4th https://hubs.la/Q04CZ1pd0

ATTEND | Parkinson's Australia National Conference 2027 https://hubs.la/Q04CZ1C00

LISTEN | The Parkinson’s eXchange Podcast https://hubs.la/Q04CZ1pc0

SIGN | Our petition to Petition https://hubs.la/Q04CZ1gF0

ACT | Continued use and regulation of paraquat... make a submission by Nov 18 https://hubs.la/Q04CZ1BZ0

31/10/2026

📢 This is your chance to be heard. The Senate inquiry into paraquat could help shape future decisions about environmental risk factors, public health protections, and Parkinson's research in Australia. If you live with Parkinson's, care for someone who does, or have concerns about chemical exposure, make a submission now. The more voices the inquiry hears, the harder it becomes to ignore the need for action and accountability. Parkinson's Australia campaign has been running since 2024. You can find links to our submissions, make your own by Nov 18 and join around 22,000 in signing our important petition to have more voices heard through our advocacy efforts. https://hubs.la/Q04CYGqn0

READ | Pocock faces off with pesticides boss over Australia’s use of weedkiller linked to Parkinson’s and banned in 70 countries | The Guardian https://hubs.la/Q04CYGs40



Thanks for your support for the Parkinson's Community David Pocock, Parliamentary Friends of Parkinson's co-convenor & to our for getting nearly 22,000 signatures on our petition. SIGN IT TODAY!

We hope you will join us: Fight Parkinson's Parkinson's QLD Parkinson's Western Australia The Hospital Research Foundation Group - Parkinson's The Hospital Research Foundation Group - Parkinsons ACT Parkinson’s Tasmania Parkinson's NSW Wicking Dementia Centre

30/10/2026

👻 The only thing scarier than a ghost? Getting your Parkinson's information from social media comments.

This Halloween, stick with trusted, evidence-based information.

Visit https://hubs.la/Q04CqsSf0 for FREE downloadable resources, support guides, and practical information.

28/10/2026

NDIS Access Request: Do I need a functional capacity assessment ... Yes/No?

The short answer... No. At the moment you do not need a functional capacity assessment to apply for access to the NDIS National Disability Insurance Scheme (NDIS).

A functional capacity assessment (often called an FCA) is a structured report, usually written by an OT. It looks at what you can do day to day, such as moving around, looking after yourself, communicating and managing your own affairs. Many people are told they need one before they apply but cannot afford one. That is not a current rule, but you may be asked to provide more information if your access request does not have enough supporting evidence with it.

Find out more at our Young Onset Parkinson's Exchange website and FREE app. There's something for everyone.

FCA Article: https://hubs.la/Q04CxFrD0

28/10/2026

Continence is one of the most common - and least talked about - challenges for people living with Parkinson's. That's exactly why we're changing the conversation.

Join us for The Continence Conversation with Sheena Lagat, where we'll explore the latest innovations in continence management, practical ways to take control of your care, and how to find the right support.

4th November, 1pm ACDT on Zoom

Sign up here: https://hubs.la/Q04CqlXQ0

To share with your communities: Parkinson's Western Australia Parkinson’s Tasmania Wicking Dementia Centre Parkinson's NSW Parkinson's New Zealand PD Avengers Parkinson's QLD Parkinson's Qld - QLD Support Group Fight Parkinson's The Hospital Research Foundation Group - Parkinson's The Hospital Research Foundation Group - Parkinsons ACT The Florey Institute of Neuroscience and Mental Health Australasian Neuroscience Nurses Association Continence Health Australia The Continence Foundation of Australia in NSW Continence Foundation of Australia Qld Branch Inc Continence Nurses Australia Continence and Nursing Care Australia

26/10/2026

World OT Day 2026 | Participation Matters

Occupational therapists help people stay engaged in everyday activities that matter to them, from self-care and work to hobbies, family roles and community participation.

To support OTs working with people living with Parkinson's, we developed our Occupational Therapy & Parkinson's booklet in partnership with Occupational Therapy Australia. https://hubs.la/Q04CfJwg0

If you'd like hard copies for your practice, clinic or service, contact us. https://hubs.la/Q04CfJyY0

The Hospital Research Foundation Group - Parkinsons ACT Parkinson’s Tasmania Parkinson's Western Australia Wicking Dementia Centre The Hospital Research Foundation Group - Parkinson's Australasian Neuroscience Nurses Association Fight Parkinson's Parkinson's New Zealand Parkinson's NSW Parkinson's QLD

26/10/2026

Your computer already has free settings that help mitigate your Parkinson's symptoms like tremor and slowness:

+ Make the pointer larger.
+ Slow the pointer speed.
+ Turn on Filter Keys (Windows) or Slow Keys (Mac) to reduce accidental keystrokes.
+ Try Mouse Keys, which moves the pointer using the number pad on your keyboard.
+ Consider a trackball mouse. Some people find it easier to control than a standard mouse.

You don’t need special software. Step-by-step instructions for Windows and Mac and more tips can be found here: https://hubs.la/Q04CfHxb0