MND Australia

05/06/2026

🍎🍊🍌 When Travis, a Year 6 student at Trinity Anglican School in Cairns, set up his MND Fruit Stall Fundraiser as part of a school project, he never imagined he would raise more than three times his original fundraising goal.

Inspired by his beloved Grandma Jane, who passed away from MND last year, Travis turned his project into a heartfelt mission to support other families impacted by this devastating disease. With the help of his local community, he sold fresh fruit, donuts, soft drinks and home-grown pumpkins 🎃, raising an incredible $3,574 so far for MND Australia (and he's still going!).

Travis's compassion, determination and community spirit are a powerful reminder that you're never too young to make a difference. Every dollar he raises will help support Australians living with MND through care, advocacy and vital research 💙

03/06/2026

This is a big win for the MND community. 💙

Today, the Australian Government announced that people living with MND aged 65 and over will automatically be classified as "urgent" in the aged care system.

This means eligible people with MND should receive aged care support within 30 days instead of waiting months for help.

The Government has also committed to protecting the NDIS MND Priority Pathway, which gives people living with MND faster access to assessments, funding and reassessments when needs change.

For people living with MND, time matters. Support needs can change quickly, and delays can have a profound impact on quality of life.

Importantly, the aged care changes will also apply to people with MND who are already waiting for Support at Home funding.

This announcement follows years of advocacy by people living with MND, carers, State MND Associations, clinicians, researchers and supporters across Australia.

Thank you to everyone who has shared their stories, spoken up and helped make change possible.

There is still more work to do, but today is an important step forward.

Read more: https://www.mndaustralia.org.au/articles/mnd-australia-welcomes-landmark-commitment-to-fast-track-support-for-people-living-with-mnd

02/06/2026

🌟 Win a $10,000 Travel Voucher and Support MND Research! 🌟

Long-time supporter of MND research, ROCK MND, is holding its annual online raffle, with an incredible $10,000 travel voucher up for grabs this year.

🎟️ Purchase your tickets here: www.raffletix.com.au/rockoffmndraffle2026

Every ticket sold helps make a difference, with 100% of raffle proceeds supporting MND Australia's Research Grant Program.

MND Victoria

02/06/2026

The recent news about Jai Arrow’s MND diagnosis and the passing of Neale Daniher AO has led many people to look for information about motor neurone disease.

We provide trusted information and resources for people living with MND, carers, families, and the wider community.

You can learn more about MND, including causes, coping with grief and loss, and what to do if you or someone you know is newly diagnosed, by visiting our website: https://www.mndaustralia.org.au/

Direct links to information:
What is MND: https://www.mndaustralia.org.au/mnd-connect/what-is-mnd/what-is-motor-neurone-disease-mnd
Coping with grief and loss: https://www.mndaustralia.org.au/mnd-connect/support-for-carers-family-friends/coping-with-grief-and-loss
What to do if you’re newly diagnosed: https://www.mndaustralia.org.au/mnd-connect/what-is-mnd/newly-diagnosed

25/05/2026

We are deeply saddened by the passing of Neale Daniher AO.

Neale was a true MND warrior — courageous, determined and relentless in his fight against this devastating disease. Over 10 years ago he co-founded what would become FightMND, creating a movement that has invested over $117 million in MND research. His vision and tireless efforts have accelerated progress towards a cure and given hope to thousands of families affected by MND.

Through his advocacy, leadership and unshakable spirit, Neale brought MND into the national conversation, ensuring many more Australians understand its impact. His extraordinary legacy was fittingly recognised when he was named the 2025 Australian of the Year.

On behalf of MND Australia, we extend our heartfelt condolences to Neale’s family, friends, and the entire FightMND community. His passing is a profound loss, not only for those who knew him personally, but for every Australian whose life has been touched by MND.

Vale Neale — Australia has lost a hero.

25/05/2026

The Hon Mark Butler MP, Minister for Health, Disability and Ageing, will join the National MND Conference 2026 as a keynote speaker.

Bringing together researchers, clinicians, health professionals, people living with MND, carers and advocates from across Australia, the National MND Conference 2026 will be a landmark event for collaboration, innovation and progress in MND care and research.

📍 Adelaide Convention Centre
📅 9–11 September 2026
🔗 Secure your early-bird ticket: https://mnd-national-conference-2026.eventsair.site/

Stay tuned as we continue to announce more speakers and program highlights.

24/05/2026

So many of you have reached out following the devastating news of Jai Arrow's MND diagnosis, asking how you can help. 💙

One of those people is Sean Stafford who is running his first marathon in June to raise vital funds for people living with MND. Check out his profile here: https://donate.mndaustralia.org.au/fundraisers/seanstafford/run4hope-

If you’d like to show your support too, you can set up your own fundraiser in just minutes using our easy-to-use platform:
https://donate.mndaustralia.org.au/fundraising

Thank you to everyone who is standing with the MND community and helping fund vital support and research.

23/05/2026

"There is so much about this disease we just don't know."

MND Australia CEO Clare Sullivan joined A Current Affair in the wake of Jai Arrow's devastating diagnosis this week.

One of the biggest barriers researchers face is fragmented MND data across Australia. That's why we've been advocating for a National Unified MND Database to help connect researchers, clinics and patient data nationally.

Clare also reflected on the incredible outpouring of support from the community 💙 Watch the full interview below ⬇️

"Nothing is going to take me out easy." That is the heartbreaking but defiant vow from NRL star Jai Arrow, following his shock diagnosis with Motor Neurone D...

22/05/2026

Lend your support💙

20/05/2026

Today is Clinical Trials Day.

Clinical trials play a vital role in developing new treatments for diseases like MND. They help researchers test new medications and interventions to determine whether they are safe and effective.

MND Australia’s website lists a number of clinical trials currently underway across Australia. Learn more here: www.mndaustralia.org.au/research/clinical-trials