Platelet Disorder Support Association

Platelet Disorder Support Association PDSA is dedicated to enhancing the lives of people with ITP and other platelet disorders through education, advocacy, research, and support.
(318)

ITP Conference recordings are live!The 2026 ITP Conference recordings are now available for PDSA members! Check your inb...
09/02/2026

ITP Conference recordings are live!

The 2026 ITP Conference recordings are now available for PDSA members! Check your inbox for login credentials and start watching today at https://itpconference.org.

Not a member? Join or renew your PDSA membership this month and you'll receive access to the recordings through the end of the year.

Don't miss this opportunity to revisit your favorite sessions or catch the ones you missed! Visit pdsa.org for more information.

September is ITP Awareness Month!For those living with immune thrombocytopenia, every bruise, platelet count, treatment ...
09/01/2026

September is ITP Awareness Month!

For those living with immune thrombocytopenia, every bruise, platelet count, treatment decision, and milestone tells a story.

Drop a 💜 in the comments to help us kick off ITP Awareness Month and show your support for the ITP community.

When landmarks shine purple, the world pays attention. 💜This ITP Awareness Month, join our campaign and help illuminat...
08/26/2026

When landmarks shine purple, the world pays attention. 💜

This ITP Awareness Month, join our campaign and help illuminate your local community in support of those living with ITP. Download our lighting request template at https://pdsa.org/itp-awareness-month.

📍 Every light tells a story. 💜 Every landmark helps make ITP more visible.

After multiple treatments, 13 years on romiplostim, and refractory ITP, Jeffery's CT scan revealed a surprising discover...
08/19/2026

After multiple treatments, 13 years on romiplostim, and refractory ITP, Jeffery's CT scan revealed a surprising discovery. His story is a powerful reminder of the importance of self-advocacy, persistence, and staying informed.

📖 Read the full story at: https://pdsa.org/patient-warrior-stories

✨ Save the Date ✨ July 23 - 25, 2027Learn. Connect. Empower.Join the ITP community for a weekend dedicated to the latest...
08/18/2026

✨ Save the Date ✨ July 23 - 25, 2027

Learn. Connect. Empower.

Join the ITP community for a weekend dedicated to the latest information, supportive connections, and inspiring conversations. We look forward to welcoming patients, caregivers, family members, and advocates from across the country and beyond.

💜 More information coming soon.

Throughout the conference, patients and caregivers shared their journeys through diagnosis, treatments, setbacks, victor...
08/07/2026

Throughout the conference, patients and caregivers shared their journeys through diagnosis, treatments, setbacks, victories, and everything in between. These conversations reminded us that while every ITP experience is different, we are stronger when we share what we've learned.

We come for the latest ITP insights.
We leave with connection, support, and hope.
That's the power of a PDSA ITP Conference. 💜

PDSA members can hear firsthand from patients whose experiences continue to inspire our community and remind us that we are never alone on the ITP journey starting Sept 1st on the virtual conference platform.

Questions in ITP care today were front and center at this year's PDSA ITP Conference.🩸 New ASH ITP Guidelines: How do th...
08/06/2026

Questions in ITP care today were front and center at this year's PDSA ITP Conference.

🩸 New ASH ITP Guidelines: How do they impact my care?
Presented by Dr. Sandhya Panch, this session explored the latest guideline recommendations and what they may mean for treatment decisions, monitoring, and patient care. Updated ITP guidelines are expected to be published later this year!

🧬 When It's Not ITP: Testing and Genetics
Presented by Dr. Michele Lambert, attendees learned about the role of genetic testing and diagnostic evaluation, and why identifying the correct diagnosis is critical to achieving the best outcomes.

🚨 Guideline on the Emergency Management of Critical Bleeding
Presented by Dr. Rachael Grace, this session reviewed current recommendations for recognizing and managing serious bleeding events and the importance of timely intervention.

As research continues to advance, sessions like these help patients, caregivers, and healthcare professionals stay informed about the latest developments in the diagnosis and management of ITP.

🎥 Beginning September 1, PDSA members will have the opportunity to hear directly from the experts and learn valuable insights. Be sure to sign-up or renew your membership at pdsa.org so you don't miss out on these sessions.

As summer winds down and routines begin to shift again, it’s easy to feel pressure to “get back into gear.” But when you...
08/05/2026

As summer winds down and routines begin to shift again, it’s easy to feel pressure to “get back into gear.” But when you’re living with ITP or any chronic condition, this time of year can bring its own kind of heaviness whether fitting in family time, getting the kids ready for school, or taking on the heat of summer.

You don’t have to feel strong or energized just because the season is changing. It’s enough to listen to your body, move at your own pace, and care for yourself in the ways you’re able.

This is a reminder that you’re not alone. The PDSA community is here for you at pdsa.org.

08/04/2026

✨ 2026 ITP Conference Recap ✨

Thank you to everyone who joined us, shared their experiences, and connected with the ITP community. We'll be sharing some of our favorite conference highlights, key takeaways, and memorable moments. Be sure to follow along and relive the experience with us!

📅 Missed a session or want to revisit the content? Select recorded sessions will be available to PDSA members beginning September 1st. Visit pdsa.org for more information.

Address

8751 Brecksville Road, Ste 150
Cleveland, OH
44141

Opening Hours

Monday 8am - 5pm
Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 8am - 5pm

Telephone

+14407469003

Website

,

Alerts

Be the first to know and let us send you an email when Platelet Disorder Support Association posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share