09/30/2026
When Catherine and Tim went in for a routine ultrasound during pregnancy, they never imagined they would leave with the possibility that their baby could be born with multiple birth defects and a potentially life-threatening genetic disorder.
Their son, Jack, was born on October 1, 2013. He was blue and rushed away before his mom ever had the chance to hold him. He was immediately transferred to Lurie Children’s, where doctors struggled to understand why he couldn’t breathe on his own. After weeks of testing and uncertainty, they discovered that Jack’s trachea collapsed nearly 90% every time he exhaled. He needed a tracheostomy and would spend the next 178 days in intensive care.
There were moments when doctors weren’t sure what Jack’s future would look like. But Jack had other plans.
He fought through surgeries, countless procedures, therapies and setbacks. He learned to sit, crawl, stand and eventually walk, with tubes, monitors and determination along the way. And from the very beginning, he showed everyone around him that he would do things on his own time and in his own way.
Today, Jack is a happy, funny, incredibly strong 12-year-old who continues to overcome challenges most people will never understand. He is nonverbal and has complex medical needs, but he has never let those challenges define him. He communicates with his huge smile, his laughter, his “Jack Attacks” and, most importantly, his incredible determination.
Lurie Children’s has been part of Jack’s story since the very beginning. It’s where our family found answers when we had none, where doctors fought for him, and where we were given hope during some of the scariest moments of our lives.
Now, Catherine is running the 2026 Chicago Marathon for Jack, and for the hospital that helped give him the chance to grow up and become the amazing boy he is today.
The miles will be hard. But every time they are, Catherine will think about 178 days in the ICU. She’ll think about everything Jack has overcome. And she’ll think about all the children and families at Lurie who are still in the middle of their own fight.