29/09/2026
NICE is updating its national guidelines for OCD and BDD.
Existing guidance sets out routes to more intensive and specialist care when initial treatment has not been enough. The new draft strips much of this away and includes no recommendations for people who remain unwell after initial treatment.
At a time when people already spend years fighting for the right care, this could leave them with even fewer routes to help.
The draft has not been published yet. NICE can still change it.
We are calling on NICE not to publish the guideline as it stands and to include clear recommendations for further treatment.
✍️ Sign and share the petition:
https://www.change.org/p/treatment-for-ocd-and-bdd-shouldn-t-stop-when-treatment-doesn-t-work
📩 Find out more and download a letter to send to NICE:
https://ocdaction.org.uk/nice-guidelines-draft/