PBC Foundation

PBC Foundation The PBC Foundation is the only UK organisation dedicated to providing support and information to those affected by Primary Biliary Cholangitis (PBC).

The PBC Foundation is a UK-based organisation dedicated to providing support and information to those around the world affected by Primary Biliary Cholangitis (PBC).

As well as attending the annual British Association for the Study of the Liver (BASL) meeting today, we are joining Camb...
07/10/2026

As well as attending the annual British Association for the Study of the Liver (BASL) meeting today, we are joining Cambridge Rare Disease Network's RARE Summit 2026 online today.

We are excited to attend this event which promises to "[bring] together patients, advocates, experts and leaders to influence the challenges faced by people and families living with rare conditions."

We are out and about again, making sure the voice of PBC is represented.It's another busy week at the PBC Foundation wit...
06/10/2026

We are out and about again, making sure the voice of PBC is represented.

It's another busy week at the PBC Foundation with members of the team at the annual British Association for the Study of the Liver (BASL) meeting starting tomorrow as well as the British Liver Transplant Group (BLTG) meeting taking place today.

Do stop by our booth if you're attending - we'd love to talk to you!

Our next Choose Me Tuesday online self-care session is tomorrow 6pm UK time.Choose Me Tuesday sessions last for one hour...
05/10/2026

Our next Choose Me Tuesday online self-care session is tomorrow 6pm UK time.

Choose Me Tuesday sessions last for one hour and focus on general wellbeing. They include tools, techniques, tips, and discussions that you can use and adapt to support your own wellbeing.
Visit our website for more information and details on how to book: https://www.pbcfoundation.org.uk/events/
You can find out more about Choose Me Tuesday here https://www.pbcfoundation.international/choose-me-tuesday/

Join Linda on Monday 5 October 2026 at 2pm for an on-line Community CafΓ©.Community cafΓ©s are designed to help reduce iso...
04/10/2026

Join Linda on Monday 5 October 2026 at 2pm for an on-line Community CafΓ©.

Community cafΓ©s are designed to help reduce isolation and bring people together in a relaxed, welcoming environment.

They provide an opportunity to connect with others impacted by PBC, share conversation and community and learn about the services and support available through the PBC Foundation.

Visit our website for more information and details on how to book: https://www.pbcfoundation.org.uk/events/
You can read more about our café’s here: https://www.pbcfoundation.international/connecting-through-community-cafes/

Coming up this week at the PBC Foundation - week of Monday 5 October.Whether you're looking for information, support, or...
03/10/2026

Coming up this week at the PBC Foundation - week of Monday 5 October.

Whether you're looking for information, support, or the chance to connect with others affected by PBC, we'd love to see you.

Visit our website for more information and details on how to book:
https://www.pbcfoundation.org.uk/events/

πŸ’œ   30 for 30 - we want to hear from you!  πŸ’œIn case you missed it, 2026 marks 30 years since the PBC Foundation was foun...
02/10/2026

πŸ’œ 30 for 30 - we want to hear from you! πŸ’œ

In case you missed it, 2026 marks 30 years since the PBC Foundation was founded.

Both the PBC community and the PBC Foundation team have been busy with various challenges and events to support fundraising and awareness-raising in celebration of 30 years of the PBC Foundation.

But, did you know there is another way you can support the 30 for 30 campaign? We are also inviting you to email us to share your experience and perception of changes at the PBC Foundation over the last 30 years as part of the 30 for 30 campaign – email [email protected].

Thank you to everyone who has supported our 30 for 30 campaign so far. We are grateful to every single one of you.

Visit our dedicated 30 for 30 webpage if you would like more information about the campaign: https://www.pbcfoundation.international/30for30/

If you have been inspired by the 30 for 30 campaign stories and would like to help us continue providing free information, support and community for people living with PBC, please consider donating to our 30 for 30 Just Giving page: https://www.justgiving.com/campaign/foundation30. We’d be incredibly grateful for your support.

πŸ’œ  30 for 30: PBC Foundation team challenges update!  πŸ’œYesterday, we shared some incredible 30 for 30 inspiration from t...
01/10/2026

πŸ’œ 30 for 30: PBC Foundation team challenges update! πŸ’œ

Yesterday, we shared some incredible 30 for 30 inspiration from the PBC community. Today, we are sharing updates on the PBC Foundation team challenges.

In case you missed it, 2026 marks 30 years since the PBC Foundation was founded and we previously launched our 30 for 30 campaign to mark the occasion. Find out more on our dedicated 30 for 30 webpage https://www.pbcfoundation.international/30for30/

Here is a round up of the team challenges:

πŸ’œ Mo's "πŸ’œ Strength My Way" challenge. Mo, our Head of Patient Services, has set herself the personal challenge of completing 30 training sessions and sharing reflections on what strength means to her. Mo has just tipped over the half way point in her challenge and has just shared her week 16 update on her social media platforms - find the links on our 30 for 30 page.

πŸ’œ Jo's "Health Habits Reset" vlog. Jo, our Patient Insights Manager, has challenged herself to create 30 vlogs; a candid, unedited, and unfiltered journey towards wellbeing, shared to support others. Jo has recently shared vlog 10 - find the link to the YouTube playlist on our 30 for 30 page. Or search for the playlist on our YouTube channel https://www.youtube.com/pbcfoundation

πŸ’œ Rebecca's swim challenge. Rebecca, our Head of Research and Education, has challenged herself to swim 30km before Christmas in support of the 30 for 30 campaign. Rebecca has just completed 21km and you can find the link to her blog for updates on our 30 for 30 page.

Thank you to everyone who has supported our 30 for 30 campaign so far. We are grateful to every single one of you.

If you have been inspired by the 30 for 30 campaign stories and would like to help us continue providing free information, support and community for people living with PBC, please consider donating to our 30 for 30 Just Giving page: https://www.justgiving.com/campaign/foundation30. We’d be incredibly grateful for your support.

β˜•  Today is International Coffee Day!  β˜•Here are some suggestions for what you could do while enjoying a coffee today:β˜• ...
01/10/2026

β˜• Today is International Coffee Day! β˜•

Here are some suggestions for what you could do while enjoying a coffee today:

β˜• Sit outside in the garden/nature
β˜• Listen to a podcast
β˜• Visit the PBC Foundation's website https://www.pbcfoundation.international/
β˜• Phone a friend for a chat
β˜• Watch something on the PBC Foundation's YouTube channel https://www.youtube.com/pbcfoundation
β˜• Read a chapter of a book
β˜• Check the PBC Foundation's upcoming events https://www.pbcfoundation.international/events/
β˜• Journal
β˜• Check the PBC Foundation's 30 for 30 page for the latest updates https://www.pbcfoundation.international/30for30/
β˜• Or simply take a few moments of peace and stillness just for you

πŸ’œ  Have you checked in with our 30 for 30 webpage recently?  πŸ’œIn case you missed it, 2026 marks 30 years since the PBC F...
30/09/2026

πŸ’œ Have you checked in with our 30 for 30 webpage recently? πŸ’œ

In case you missed it, 2026 marks 30 years since the PBC Foundation was founded.

Both the PBC community and the PBC Foundation team have been busy with various challenges and events to support fundraising and awareness-raising in celebration of 30 years of the PBC Foundation.

Today, we are highlighting some of the fabulous stories from the PBC community, all of which you can read more about and support via the 30 for 30 webpage https://www.pbcfoundation.international/30for30/

πŸ’œ Some of our members in Nottinghamshire have managed to combine having fun with fundraising!
πŸ’œ Tracey Baxter, Caroline Davison and the Norfolk group have organised a magic square fundraiser
πŸ’œ Gillian and William Morton have been running 30km for 30 for 30 - completing 5k runs in 6 countries they visited during their holiday
πŸ’œ Amy Daly has completed a personal challenge - committing to 30 days of consistency. You can watch videos about her progress on the 30 for 30 webpage

Thank you to everyone who has supported our 30 for 30 campaign so far, whether that's organising an event, taking part in an event, completing a challenge, donating money - either to a specific event or challenge or directly to the PBC Foundation, or raising awareness of PBC and the Foundation. We are grateful to every single one of you.

If you have been inspired by the 30 for 30 campaign stories and would like to help us continue providing free information, support and community for people living with PBC, please consider donating to our 30 for 30 Just Giving page: https://www.justgiving.com/campaign/foundation30. We’d be incredibly grateful for your support.

Address

Unit 1, Dunfermline Business Centre, Izatt Avenue
Edinburgh
KY113BZ

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 4:30pm

Telephone

+441315566811

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