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Myeloma Australia

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Myeloma Australia is the only Australian myeloma specific not-for-profit organisation. They can all be found at: https://myeloma.org.au/resources/

We support, educate, inform, empower and bring hope to people who are living with myeloma, and their loved ones. Myeloma Australia publishes many online resources to guide you through myeloma. These resources include our booklets such as ‘Myeloma – A Comprehensive Guide’ and ‘Living Well with Myeloma’, information sheets and treatment fact sheets.

05/11/2026

Life is pretty good- By Paul Hampton-Smith

'Similar to other people, I had never heard of myeloma before. I had lytic lesions (holes in the bone caused by myeloma bone disease) all over my ribs and several damaged vertebrae in my spine. I started a successful course of radiotherapy to shrink the tissue pressing on my spinal cord. My height is now reduced by 7cm!

Fast forward to now, and I ride my bicycle regularly, such as the 8km commute today to the Cancer Council for an excellent seminar presented by one of Myeloma Australia’s Specialist Myeloma Nurses, Jo Gardiner.'

To read Paul's My Story, visit our webpage: https://myeloma.org.au/myestory

If you would like to share your My Story, click here: https://myeloma.org.au/myestory-submission/

04/11/2026

BLOOD Conference 2026
📍Auckland, New Zealand

02/11/2026

👀👀

29/10/2026

Cox Plate Day 2026 was a huge success, and it wouldn't have happened without our amazing volunteers. 💜

Thank you for giving your time to help raise funds and awareness for the myeloma community.

25/10/2026

Join us tomorrow for our National Carers Online Seminar.

This is an opportunity to stop and reflect on the importance that you, as a carer, have on someone who might be living with MGUS, smouldering myeloma or myeloma.

Bring a hot drink as you hear from 3 amazing speakers and finish off with a meditation session. There is no need to register for this event.

Time:

📍12pm – 2pm AWST (WA)

📍1.30pm – 3.30pm ACST (NT)

📍2pm - 4pm AEST (QLD)

📍2.30pm – 4.30pm ACDT (SA)

📍3pm - 5pm AEDT (NSW, VIC, TAS)

Please note, this event will not be recorded.

See our events calendar for the link to join: https://myeloma.org.au/events/save-the-date-national-carers-onkine-seminar/

21/10/2026

Can’t make it to Moonee Valley Racing Club Cox Plate Day on Saturday but still want a pin? That’s okay! You can purchase the charity pin directly through our merchandise shop.

Shop.myeloma.org.au

19/10/2026

Carers have a story to tell, too.

Myeloma Australia’s My Story series shares the experiences and voices of people impacted by myeloma — including carers.

Some of the carer stories we’ve shared include:

🤍A family’s search for life-saving treatment

🤍Making memories together

🤍A tale of two myelomas

Read these stories and others at https://myeloma.org.au/myestory/

We’d love to hear from more myeloma carers and share your experiences with our community.

If you’re interested in sharing your story, you can read our guidelines and submit your story here: https://myeloma.org.au/myestory-submission/

Or email [email protected]

15/10/2026

WE NEED VOLUNTEERS! 💜

We’re looking for volunteers to help sell charity pins in support of Myeloma Australia
during the Cox Plate Racing Carnival.

📍 Cox Plate Eve
📅 October 23
📍 Cox Plate Day
📅 October 24

Come along, get involved, meet some great people and help make a difference for those affected by myeloma.

Register your interest via the link below or contact [email protected] 👇
https://forms.cloud.microsoft/Pages/ResponsePage.aspx?id=Ydj2Ju73qkOcpvYKqSXWrqrDH0Ba_U9Hv58JZzTgHQpUNEU3MTJXNlJaMlJWQ05FNjJGVk1EOUVXTC4u

15/10/2026

30 years and still counting- by Roslyn Rosengarten

'Towards the end of October 1996, about the time of my 50th birthday, after 15 months of visiting doctors complaining of intermittent rib pains, I was told I had myeloma. One haematologist told me to get my affairs in order as I only had 2 to 3 years.'

'When I was first diagnosed, there was no support for people impacted by myeloma, no awareness of this cancer, no information to access and no opportunities to connect with others affected. Between Brian and I and the two other couples, Bob and Glenys Moran and Donald and Judith Brown we set out to change this.'

To read Roslyns My Story, visit our webpage: https://myeloma.org.au/myestory

If you would like to share your My Story, click here: https://myeloma.org.au/myestory-submission/

13/10/2026

You or the person you are caring for may experience a range of symptoms during the end of life, such as pain, fatigue or changes to your appetite. Your palliative care and/or your treating team will help you manage these symptoms to keep you comfortable and to maintain your best possible quality of life.

Our new ‘Managing symptoms during end of life’ quick guide outlines some of the common symptoms experienced at end of life and how they may be managed.

Click here to access this resource now:https://myeloma.org.au/wp-content/uploads/2026/06/Managing-symptoms-during-end-of-life-quick-guide.pdf

To learn more about myeloma visit the Learning hub on our website: https://myeloma.org.au/learning-hub/

Address

Melbourne, VIC

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+611800693566

Website

http://www.myeloma.org.au/

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