RPF Foundation

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Retroperitoneal Fibrosis Foundation is a non-profit raising awareness, supporting patients, and advancing research for this rare disease. Bring hope.

Retroperitoneal Fibrosis is a rare and devastating disease that affects an estimated 0.1 to 1.3 people per 100,000 each year—but due to frequent misdiagnosis and underreporting, the true number may be much higher. Scar tissue silently tightens around vital organs, threatening kidneys, blood vessels, and the gut, leaving patients in pain, uncertainty, and isolation.

💙 Your donation is more than a gift—it’s a lifeline. It funds research, awareness, and patient support, ensuring earlier diagnosis, better treatments, and hope for those who need it most.

👉 Donate today. Change lives.

03/11/2026

If you missed our live educational webinar earlier this year, you can now watch the full recording here.

I was honored to host 𝗗𝗿. 𝗠𝗮𝘁𝘁𝗵𝗲𝘄 𝗞𝗼𝘀𝘁𝗲𝗿 𝗳𝗿𝗼𝗺 𝗠𝗮𝘆𝗼 𝗖𝗹𝗶𝗻𝗶𝗰, who shared valuable insights on 𝗥𝗲𝘁𝗿𝗼𝗽𝗲𝗿𝗶𝘁𝗼𝗻𝗲𝗮𝗹 𝗙𝗶𝗯𝗿𝗼𝘀𝗶𝘀 (𝗥𝗣𝗙) and answered questions from our community.

Raising awareness and sharing knowledge is an important part of supporting patients and families affected by RPF.

💛💜 Please share to help expand awareness.

— Teah Charkawi, Founder
RPF Foundation

🎥 Full Webinar ReplayEarlier this year, the RPF Foundation hosted our first public educational webinar, marking an important step in expanding awareness abo...

01/07/2026

🗓️ SET YOUR CALENDARS‼️Jan 10 at 12:00 EST

We’ll be live with 𝗗𝗿. 𝗠𝗮𝘁𝘁𝗵𝗲𝘄 𝗞𝗼𝘀𝘁𝗲𝗿r from 𝗠𝗮𝘆𝗼 𝗖𝗹𝗶𝗻𝗶𝗰, sharing expert insights and answering your questions about 𝗥𝗲𝘁𝗿𝗼𝗽𝗲𝗿𝗶𝘁𝗼𝗻𝗲𝗮𝗹 𝗙𝗶𝗯𝗿𝗼𝘀𝗶𝘀 (𝗥𝗣𝗙).

Join on Zoom:
https://mc-meet.zoom.us/j/94967658670?pwd=0TZYUEOgAhBnWLjofLNB3SrYc4sDwW.1

Meeting ID: 949 6765 8670
Passcode: 971992

💛💜 Please share and help spread the word

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01/07/2026

Reminder 📣 Still planning to join our 𝗥𝗲𝘁𝗿𝗼𝗽𝗲𝗿𝗶𝘁𝗼𝗻𝗲𝗮𝗹 𝗙𝗶𝗯𝗿𝗼𝘀𝗶𝘀 (𝗥𝗣𝗙) 𝗪𝗲𝗯𝗶𝗻𝗮𝗿?

We’ll be live with 𝗗𝗿. 𝗠𝗮𝘁𝘁𝗵𝗲𝘄 𝗞𝗼𝘀𝘁𝗲𝗿r — 𝗠𝗮𝘆𝗼 𝗖𝗹𝗶𝗻𝗶𝗰 rheumatologist and recognized RPF specialist — sharing expert insights and answering your questions.

🗓️ Don’t miss it — join on Zoom:
https://mc-meet.zoom.us/j/94967658670?pwd=0TZYUEOgAhBnWLjofLNB3SrYc4sDwW.1

Meeting ID: 949 6765 8670
Passcode: 971992

Feel free to drop your questions live.

01/07/2026

12/10/2025

𝗛𝗮𝘃𝗲 𝘆𝗼𝘂 𝗲𝘃𝗲𝗿 𝘄𝗶𝘀𝗵𝗲𝗱 𝘆𝗼𝘂 𝗰𝗼𝘂𝗹𝗱 𝘀𝗽𝗲𝗮𝗸 𝗱𝗶𝗿𝗲𝗰𝘁𝗹𝘆 𝘁𝗼 𝗮 𝘀𝗽𝗲𝗰𝗶𝗮𝗹𝗶𝘀𝘁 𝘄𝗵𝗼 𝘁𝗿𝘂𝗹𝘆 𝘂𝗻𝗱𝗲𝗿𝘀𝘁𝗮𝗻𝗱𝘀 𝗥𝗲𝘁𝗿𝗼𝗽𝗲𝗿𝗶𝘁𝗼𝗻𝗲𝗮𝗹 𝗙𝗶𝗯𝗿𝗼𝘀𝗶𝘀?

Join us for an informative session led by 𝗗𝗿. 𝗠𝗮𝘁𝘁𝗵𝗲𝘄 𝗞𝗼𝘀𝘁𝗲𝗿, a Mayo Clinic rheumatologist and recognized specialist in 𝗥𝗲𝘁𝗿𝗼𝗽𝗲𝗿𝗶𝘁𝗼𝗻𝗲𝗮𝗹 𝗙𝗶𝗯𝗿𝗼𝘀𝗶𝘀, who will provide expert insights and answer questions about RPF.

🔗 𝗭𝗼𝗼𝗺 𝗹𝗶𝗻𝗸

https://mc-meet.zoom.us/j/94967658670?pwd=0TZYUEOgAhBnWLjofLNB3SrYc4sDwW.1

Meeting ID: 949 6765 8670
Passcode: 971992

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12/01/2025

Our first RPF Foundation Symposium is happeningJanuary 10 at 12:00 PM (Eastern) via Zoom 📌Led by Dr. Matthew Koster,Mayo Clinic rheumatologist and recognized specialist inRetroperitoneal Fibrosis.This session is open to both medical professionals and the public.🔗 Zoom link:https://mc-meet.zoom.us/j/94967658670Meeting ID: 949 6765 8670Passcode: 971992Please share and help spread awareness 💛💜

11/26/2025

Our first RPF Foundation symposium will take place on 𝗝𝗮𝗻𝘂𝗮𝗿𝘆 𝟭𝟬 𝗮𝘁 𝟭𝟮:𝟬𝟬 𝗣𝗠 (𝗘𝗮𝘀𝘁𝗲𝗿𝗻) 𝘃𝗶𝗮 𝗭𝗼𝗼𝗺.

📌 𝗭𝗼𝗼𝗺 𝗹𝗶𝗻𝗸
https://mc-meet.zoom.us/j/94967658670?pwd=0TZYUEOgAhBnWLjofLNB3SrYc4sDwW
Meeting ID: 949 6765 8670
Passcode: 971992

Join us for an informative session led by 𝗗𝗿. 𝗠𝗮𝘁𝘁𝗵𝗲𝘄 𝗞𝗼𝘀𝘁𝗲𝗿, a Mayo Clinic rheumatologist and recognized specialist in 𝗥𝗲𝘁𝗿𝗼𝗽𝗲𝗿𝗶𝘁𝗼𝗻𝗲𝗮𝗹 𝗙𝗶𝗯𝗿𝗼𝘀𝗶𝘀, who will provide expert insights and answer questions about RPF.

Open to both medical professionals and the public.

💛💜 Please share and help spread the word!

10/28/2025

A small start with a big heart: at , students are organizing low-key outreach and fundraiser ideas to shed light on 𝗥𝗲𝘁𝗿𝗼𝗽𝗲𝗿𝗶𝘁𝗼𝗻𝗲𝗮𝗹 𝗙𝗶𝗯𝗿𝗼𝘀𝗶𝘀 (𝗥𝗣𝗙)—led by Teah Chrakawi, founder of the RPF Foundation.

𝗙𝗼𝗿 𝗣𝗵𝗶𝗹𝗮𝗻𝘁𝗵𝗿𝗼𝗽𝘆 𝗜𝗻𝗾𝘂𝗶𝗿𝗶𝗲𝘀:
📧 [email protected]
📞 (470) 769-9404

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Address

6300 Hospital Pkwy, Suite 105
Johns Creek, GA
30097

Telephone

+14707699404

Website

https://rpffoundation.org/

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