Cure EB

Recessive Dystrophic Epidermolysis Bullosa(RDEB) Research. http://www.youtube.com/watch?v=nmwdsCoGQkw
https://www.justgiving.com/cure-eb It is “Hard to say.

UK registered Charity no 1158672
Cure EB exists to treat and cure epidermolysis bullosa, a genetic skin condition that leads to blistering and skin loss with the mildest friction. Hell to live with” and children and adults with the condition live in constant pain associated with the severe burn like wounds that occur. The intense pain and repeated damage leads to progressive disability and severe

forms are life shortening due to a particularly aggressive skin cancer that develops in early adulthood.

20/08/2026

*Ahem* If you or a family member have EB, and you haven't yet signed up for our Family Forum, you may like to do so this weekend! Just in case, you know, there's a potential ‘Spidey’ surprise on its way...
👉 https://cure-eb.org/what-is-eb/living-with-eb/family-forum/

17/08/2026

🦋 EB Family Day 🦋
A day for our EB community to come together to have fun and to hear about the latest EB research.

✅EB research
✅EB families
✅Fun & Games
Register now for free at www.cure-eb.org/familyday

13/08/2026

Join our Butterfly Run on Sunday 4th October at the iconic Queen Elizabeth Olympic Park
www.cure-eb.org/butterflyrun

We're delighted to with some fabulous charity partners this year: Unique - Rare Chromosome Disorder Support Group The Lily Foundation Cavernoma Alliance UK - CAUK PMSF UK & Williams Syndrome Foundation UK

09/08/2026

We'd love you to join us at our 🦋 EB Family Day 🦋

If you or a family member have EB, then head to www.cure-eb.org/familyday to find out more and register!

Join us for lunch, and then while the adults hear from the EB experts, the children can enjoy games and crafts. There'll also be plenty of time to ask questions, as well for tea and cake so that families can catch up with old friends and make some new ones!

🦋 This is a free event for EB families, but you must register.
📍 Queen Elizabeth Olympic Park
📅 Sunday 4th October, 1pm

05/08/2026

Just some of the reasons we love our Butterfly Run!
Why not join us at this year's event?
www.cure-eb.org/butterflyrun to find out more and sign up!

🦋 Sunday 4th October 🦋 Queen Elizabeth Olympic Park 🦋 10k, 5k or 1k

Come on your own or with your friends or family!

01/08/2026

If you or a family member have EB, join us for our 🦋 EB Family Day 🦋 on Sunday 4th October.
www.cure-eb.org/familyday

📍 Queen Elizabeth Olympic Park
🦋 Lunch
💙 Games and crafts for the children
🦋 EB talks from the experts for the adults

This is a free event for EB families, but you must register.

28/07/2026

Join the fun at the Butterfly Run! www.cure-eb.org/butterflyrun

📅 Sunday 4th October
📍 Queen Elizabeth Olympic Park
🦋 1k, 5k or 10k
🏃🚶👩‍🦽 Run, walk or wheel

24/07/2026

If you or a family member have EB, then we'd love you to join us at our free EB Family Day on 4th October 2026 in London.

To find out more and book your free place, visit www.cure-eb.org/familyday

21/07/2026

Run, walk, wheel or whatever you can do at our Butterfly Run on Sunday 4th October
📍 Queen Elizabeth Olympic Park
👟 Choose from 10k, 5k or 1k
🦋 Open to all ages & abilities

Want to find out more? Visit www.cure-eb.org/butterflyrun for more details & to book your place!

18/07/2026

Raise free donations for Cure EB on everything you buy online with Give as you Live's free iPhone app. Install once, raise forever > https://loom.ly/MLFfrJg

Address

175-185 Grays Inn Road
London
WC1X8UE

Telephone

+442034058433

Website

http://www.cure-eb.org/

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