Cure EB

Recessive Dystrophic Epidermolysis Bullosa(RDEB) Research. http://www.youtube.com/watch?v=nmwdsCoGQkw
https://www.justgiving.com/cure-eb It is “Hard to say.

UK registered Charity no 1158672
Cure EB exists to treat and cure epidermolysis bullosa, a genetic skin condition that leads to blistering and skin loss with the mildest friction. Hell to live with” and children and adults with the condition live in constant pain associated with the severe burn like wounds that occur. The intense pain and repeated damage leads to progressive disability and severe

forms are life shortening due to a particularly aggressive skin cancer that develops in early adulthood.

10/06/2026

Three mums, one mountain, one mission - to cure EB!
https://cure-eb.org/news/living-with-eb/eb-community/3-mums-1-mountain-1-mission/

Read about the three EB mums and a group of their friends and family who are taking on Mount Olympus on 20th & 21st June in an Olympian challenge to help find a cure for EB.

07/06/2026

3 weeks to go until our Brave Wings Festival - a family festival for all ages!
Book now 👉 www.cure-eb.org/bravewings

📅 Sunday 28th June, 13:00 - 17:30
🦋 Crafts, games and live music, with food trucks, coffee, cakes, cocktails and more.
🎫 Additional workshops bookable for those aged 5-16 years
📍 Highgate School

05/06/2026

"Darcy is fearless, funny, adventurous, and a complete little daredevil. She loves life and tries to live it as fully as possible, despite EB making every single day a fight no child should ever have to face." 💙

Read Darcy's story: www.cure-eb.org/Darcy

We want to take away the pain of EB from children like Darcy. By funding research to find effective treatments, and a cure, for EB. Together we will

03/06/2026

Highlights from our Silver Butterfly Dinner last month. It was a special and moving evening, and our amazing guests raised just over £444,500 for EB research!

We are so grateful to patron Damian Lewis for hosting, to Dom Holland for his excellent auctioneering, to Mike Epstein for being a fabulous MC, and to Sohana for singing so beautifully, and of course to everyone who joined us, made a pledge, donated to or bid in our auction.

02/06/2026

Last chance to register for our Research the Cure webinar on Thursday! Our webinar is free to join and open to all with an interest in EB:

🖱️https://cure-eb.org/event/rtc-ebskinedit to register

Join us as we hear from Prof Fernando Larcher about gene edited skin for RDEB.

01/06/2026

Brave Wings, our family-focused festival, is back and better than ever! Book now 🦋 cure-eb.org/bravewings

📅 Sunday 28th June
⏲️13:00 - 17:30
📍 Highgate Junior School in London

Join us for a brilliant afternoon of activities for all ages including crafts, games and live music, with food trucks, coffee, cakes, cocktails and more on hand. And for those aged 5 - 16 you can also book into one of our additional workshops: Silly Science, Dreamcatcher Craft or Film Fun.

31/05/2026

THANK YOU to John who raised an amazing £1000 for Cure EB with his plant sale last weekend! 🪴🌻

All of this money will go directly to EB research as 100% of our costs are underwritten!

30/05/2026

Raise FREE donations for us when you shop online at 6,000+ stores with Give as you Live. Plus, earn a bonus donation when you complete your first shop before the end of May! 🛒 https://www.giveasyoulive.com/join/cure-eb?utm_source=charitytoolkit&utm_content=35042&utm_medium=post&utm_campaign=CTSpringShopperIncentiveCampaign

29/05/2026

Last chance to grab your early bird tickets for our fun, friendly and inclusive Butterfly Run! Early bird prices available until *31st May* so run, walk or wheel your way to cure-eb.org/butterflyrun to book your place now!

📍 Queen Elizabeth Olympic Park in London
📅 Sunday 4th October 2026

Address

175-185 Grays Inn Road
London
WC1X8UE

Telephone

+442034058433

Website

http://www.cure-eb.org/

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