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APS Support UK - for people with antiphospholipid syndrome

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APS Support UK - for people with antiphospholipid syndrome

APS Support UK is a national UK charity dedicated to anyone affected by antiphospholipid syndrome

Antiphospholipid syndrome (APS) is an autoimmune condition in which there is an increased tendency for the blood to clot. The clotting can affect any organ in the body and the consequences can include potentially fatal conditions such as heart attacks, strokes, pulmonary emboli and DVTs. In pregnancy, APS is the most common treatable form of recurrent miscarriage, it can also cause infertility and

stillbirths. APS Support UK (the trading name of the Hughes Syndrome Foundation) became a registered charity in 2001. We aim to support anyone affected by the condition; to raise awareness of the disease both among the general public and the medical community; and to raise funds to provide information, education and further medical research.

24/06/2026

🥱 𝗙𝗮𝘁𝗶𝗴𝘂𝗲 𝗶𝘀 𝗰𝗼𝗺𝗺𝗼𝗻 𝗶𝗻 𝗔𝗣𝗦 — 𝗮𝗻𝗱 𝗶𝘁 𝗰𝗮𝗻 𝗯𝗲 𝗵𝗮𝗿𝗱 𝘁𝗼 𝗲𝘅𝗽𝗹𝗮𝗶𝗻.

Many people with antiphospholipid syndrome (APS) experience fatigue at some point. It can come and go, and may affect work, family life, social plans and everyday tasks.

Fatigue isn’t “just being tired” — but learning what helps you manage it can make a real difference.

We’ve put together practical tips here: 🔗 cutt.ly/coping-with-fatigue

23/06/2026

Could an autoimmune disease be delayed before it fully develops?

A new study from King’s College London found that one year of treatment with abatacept delayed rheumatoid arthritis in people at high risk — in some cases by up to four years after treatment ended.

This research focuses on rheumatoid arthritis, not APS, but it highlights an important area of autoimmune research: whether earlier intervention could change the course of disease.

Read the ScienceDaily summary here: https://www.sciencedaily.com/releases/2026/05/260530053426.htm

Learn more about conditions related to APS: https://aps-support.org.uk/about-aps/related-conditions

23/06/2026

🩺 𝗗𝗶𝗱 𝘆𝗼𝘂 𝗸𝗻𝗼𝘄 𝗔𝗣𝗦 𝗰𝗮𝗻 𝗮𝗳𝗳𝗲𝗰𝘁 𝘁𝗵𝗲 𝗸𝗶𝗱𝗻𝗲𝘆𝘀 𝘁𝗼𝗼? 🩸

For some people, kidney problems may be one of the signs of antiphospholipid syndrome (APS). This can happen when small clots affect blood flow through the kidneys.

Possible signs can include high blood pressure or pain in the back or abdomen — but kidney involvement can be complex, so any concerns should always be discussed with a GP or specialist team.

Early recognition and monitoring can help protect kidney health.

🔗 Learn more about APS and the kidneys: cutt.ly/aps-and-the-kidneys

22/06/2026

A 2026 study has explored a new, simplified way to screen for lupus anticoagulant activity — one of the laboratory tests used when assessing antiphospholipid syndrome (APS).

Current lupus anticoagulant testing can be complex, and some anticoagulant medicines may interfere with results. This early study found that a new one-step method, called the LA-sensitivity ratio (LA-SR), showed strong agreement with guideline-based testing and appeared to be minimally affected by DOACs, warfarin, heparin, or coagulation factor deficiencies.

The researchers suggest this could be a useful screening tool in the future, but positive results would still need careful interpretation and confirmation with standard testing.

Read the abstract/full paper here: https://pubmed.ncbi.nlm.nih.gov/42310902/

22/06/2026

🩺 𝗟𝗼𝗼𝗸𝗶𝗻𝗴 𝗳𝗼𝗿 𝗮𝗻 𝗔𝗣𝗦 𝘀𝗽𝗲𝗰𝗶𝗮𝗹𝗶𝘀𝘁?

We keep a patient-recommended directory of UK consultants who understand APS, including haematologists, rheumatologists, neurologists and obstetricians.

The directory has been built by the APS community, for the APS community — to help make finding the right specialist a little easier. 💙

📍 Find a specialist in your area: cutt.ly/specialists-in-your-area

21/06/2026

✨ 𝗔𝗣𝗦 𝗵𝗮𝘀 𝗯𝗲𝗲𝗻 𝗿𝗲𝗰𝗼𝗴𝗻𝗶𝘀𝗲𝗱 𝗳𝗼𝗿 𝗼𝘃𝗲𝗿 𝟰𝟬 𝘆𝗲𝗮𝗿𝘀 — 𝗯𝘂𝘁 𝘀𝗶𝗴𝗻𝘀 𝗴𝗼 𝗺𝘂𝗰𝗵 𝗳𝘂𝗿𝘁𝗵𝗲𝗿 𝗯𝗮𝗰𝗸! ✨

While the term 𝗮𝗻𝘁𝗶𝗽𝗵𝗼𝘀𝗽𝗵𝗼𝗹𝗶𝗽𝗶𝗱 𝘀𝘆𝗻𝗱𝗿𝗼𝗺𝗲 was coined in the early 1980s, a fascinating historical medical mystery points to Queen Anne Stuart of England (1665–1714). Her many miscarriages and stillbirths echo the complications we now associate with APS – though we can’t confirm she had it: history.co.uk/shows/royal-autopsy

🔬 The journey began with early 20th-century syphilis tests that sparked the discovery of “false positives” in lupus patients. This led to defining antiphospholipid antibodies and launching key diagnostic tests: 𝗹𝘂𝗽𝘂𝘀 𝗮𝗻𝘁𝗶𝗰𝗼𝗮𝗴𝘂𝗹𝗮𝗻𝘁 (1971), 𝗮𝗻𝘁𝗶𝗰𝗮𝗿𝗱𝗶𝗼𝗹𝗶𝗽𝗶𝗻 (1983), and 𝗮𝗻𝘁𝗶-𝗯𝗲𝘁𝗮𝟮‑𝗴𝗹𝘆𝗰𝗼𝗽𝗿𝗼𝘁𝗲𝗶𝗻 𝗜 (1990). Soon, researchers also linked these antibodies to clotting and pregnancy issues.

Thanks to these breakthroughs, APS is now recognised as a distinct autoimmune disorder — making early diagnosis and targeted treatment possible for thousands.

📚 Dive into this medical history with us and help spread understanding of APS.

🔗 Learn more: cutt.ly/blood-tests

20/06/2026

𝗔𝗣𝗦 𝗰𝗮𝗻 𝗮𝗳𝗳𝗲𝗰𝘁 𝗽𝗿𝗲𝗴𝗻𝗮𝗻𝗰𝘆 𝗶𝗻 𝗺𝗼𝗿𝗲 𝘄𝗮𝘆𝘀 𝘁𝗵𝗮𝗻 𝗺𝗶𝘀𝗰𝗮𝗿𝗿𝗶𝗮𝗴𝗲. 🤰🩸

APS is also linked to serious pregnancy complications, including pre-eclampsia, premature birth and low birth weight.

That’s why early diagnosis, specialist care and close monitoring are so important for anyone with APS during pregnancy.

With the right treatment and support, many people with APS go on to have successful pregnancies. 💙

🔗 Learn more about APS and pregnancy: cutt.ly/aps-and-pregnancy

19/06/2026

A huge thank you to Andy Tang, who is once again fundraising for APS Support UK by running the London 10K on 12th July in memory of his sister, Annie 💙

Andy has already smashed his £500 target, which is incredible — but further donations would be so appreciated and will help us continue supporting people affected by antiphospholipid syndrome (APS), raising awareness and funding vital research.

APS is a serious autoimmune condition that affects how the blood clots, but awareness remains far too low. Andy’s continued support helps shine a light on APS and honour Annie’s memory in such a meaningful way.

Please donate or share Andy’s page to help him keep the momentum going: https://www.justgiving.com/page/andy-tang

Thank you so much, Andy — we’re incredibly grateful for everything you do for APS Support UK 💙

19/06/2026

Filipino actress Ritz Azul has shared that she experienced two pregnancy losses before welcoming her baby daughter.

Ritz, who has appeared in Filipino TV dramas and films, spoke about having an early miscarriage in 2024, an ectopic pregnancy in 2025, and later being diagnosed with antiphospholipid syndrome (APS) during her most recent pregnancy.

APS can be associated with pregnancy complications, including recurrent miscarriage. While not everyone who experiences miscarriage has APS, stories like this help raise awareness of why diagnosis and specialist care can matter.

Read the article here:
https://www.sunstar.com.ph/amp/story/cebu/ritz-azul-reveals-she-suffered-2-miscarriages-before-welcoming-baby-zie

For trusted UK information about APS and pregnancy, visit:
https://aps-support.org.uk/about-aps/pregnancy-and-aps

19/06/2026

𝗡𝗼𝘁 𝗲𝘃𝗲𝗿𝘆 𝗔𝗣𝗦 𝗲𝘅𝗽𝗲𝗿𝗶𝗲𝗻𝗰𝗲 𝗳𝗶𝘁𝘀 𝗻𝗲𝗮𝘁𝗹𝘆 𝗶𝗻𝘁𝗼 𝘁𝗵𝗲 𝘁𝗲𝘅𝘁𝗯𝗼𝗼𝗸. 📖🩸

Some people have symptoms that look like APS but don’t meet the current diagnostic criteria. This can include:

🔹 Seronegative APS — where someone has clinical features of APS, but standard antiphospholipid antibody blood tests are negative.
🔹 Non-criteria APS — where symptoms such as migraines, heart valve problems or certain skin changes may be present, but the person does not meet the full criteria for an APS diagnosis.

These are still developing areas of research and only affect a small number of people — but awareness is growing.

🔗 Learn more: cutt.ly/non-criteria-aps

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The Orchard, White Hart Lane
Basingstoke
RG214AF

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Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Website

http://www.aps-support.org.uk/

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