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APS Support UK - for people with antiphospholipid syndrome

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APS Support UK is a national UK charity dedicated to anyone affected by antiphospholipid syndrome

Antiphospholipid syndrome (APS) is an autoimmune condition in which there is an increased tendency for the blood to clot. The clotting can affect any organ in the body and the consequences can include potentially fatal conditions such as heart attacks, strokes, pulmonary emboli and DVTs. In pregnancy, APS is the most common treatable form of recurrent miscarriage, it can also cause infertility and stillbirths. APS Support UK (the trading name of the Hughes Syndrome Foundation) became a registered charity in 2001. We aim to support anyone affected by the condition; to raise awareness of the disease both among the general public and the medical community; and to raise funds to provide information, education and further medical research.

30/10/2026

📰 𝗢𝘂𝗿 𝗔𝘂𝘁𝘂𝗺𝗻 𝟮𝟬𝟮𝟲 𝗡𝗲𝘄𝘀𝗹𝗲𝘁𝘁𝗲𝗿 𝗶𝘀 𝗵𝗲𝗿𝗲! 🍂

The latest edition of APS News has just been sent to our charity friends and subscribers, and it's packed with research updates, inspiring stories and news from across the APS community!

𝗜𝗻𝘀𝗶𝗱𝗲 𝘁𝗵𝗶𝘀 𝗶𝘀𝘀𝘂𝗲:
🔬 𝗔𝗣𝗦 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵 – Celebrating Catherine Ducker and Megan Preece's contributions to APS research, plus news about our next Research Fund grant round in 2027.
💗 𝗦𝗽𝗲𝗰𝗶𝗮𝗹𝗶𝘀𝘁 𝗔𝗣𝗦 𝗰𝗮𝗿𝗲 – A look at the fantastic achievements of APS Clinical Nurse Specialist Louise O'Prey and the wonderful news that funding for her post has been renewed!
🏃 𝗢𝘂𝗿 𝗮𝗺𝗮𝘇𝗶𝗻𝗴 𝗳𝘂𝗻𝗱𝗿𝗮𝗶𝘀𝗲𝗿𝘀 – From marathons to walking challenges, we're celebrating the people going the extra mile for APS Support UK.
🩸 𝗥𝗮𝗶𝘀𝗶𝗻𝗴 𝗮𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 – Updates from Baby Loss Awareness Week, World Thrombosis Day and Christina Perri's campaign for APS awareness in Los Angeles.
🎃 𝗪𝗮𝘆𝘀 𝘁𝗼 𝗴𝗲𝘁 𝗶𝗻𝘃𝗼𝗹𝘃𝗲𝗱 – Including our pumpkin carving competition, Thrift+ and the 2027 London 10K!

𝗡𝗼𝘁 𝗿𝗲𝗰𝗲𝗶𝘃𝗶𝗻𝗴 𝗼𝘂𝗿 𝗻𝗲𝘄𝘀𝗹𝗲𝘁𝘁𝗲𝗿 𝘆𝗲𝘁?

👉 Join our charity: https://aps-support.org.uk/get-involved/join-our-charity
👉 Or sign up for our free e-news: https://aps-support.org.uk/get-involved/enews

Please note that new subscribers won't automatically receive this edition or previous newsletters, but we're working on making our back catalogue available.

Thank you for being part of our wonderful community and helping us make a difference to people affected by antiphospholipid syndrome. 💗

29/10/2026

Today is World Stroke Day, a chance to raise awareness of stroke, share information that could save lives, and help more people understand where to find support.

At Different Strokes, we know how important the right information can be, both when a stroke happens and in the months and years that follow.

Throughout the day, we’ll be sharing information about recognising the signs of stroke, understanding risk factors, hearing from younger stroke survivors, highlighting the experiences of Black and South Asian communities through our BASS Project, and showcasing the resources and support available to survivors and their families. We’ll also recognise the healthcare professionals and services who support people affected by stroke.

You can help spread the word. Follow along, share our posts with friends, family and your wider community, and help us make sure important information reaches the people who need it.

Because information saves lives.

28/10/2026

🎃 𝗗𝗼𝗻'𝘁 𝗹𝗲𝘁 𝘁𝗵𝗲 𝗻𝗲𝗶𝗴𝗵𝗯𝗼𝘂𝗿𝘀 𝗯𝗲 𝘁𝗵𝗲 𝗼𝗻𝗹𝘆 𝗼𝗻𝗲𝘀 𝘁𝗼 𝘀𝗲𝗲 𝘆𝗼𝘂𝗿 𝗽𝘂𝗺𝗽𝗸𝗶𝗻!

If you've already carved your Halloween pumpkin, why not put it in the running for our Pumpkin Carving Competition?

Or, if you've been meaning to get carving, there's still time to take part!

We're inviting you to share your creations, enjoy a little friendly competition and support people affected by antiphospholipid syndrome (APS) at the same time.

𝗛𝗼𝘄 𝘁𝗼 𝗲𝗻𝘁𝗲𝗿:
🎃 Make a donation of any amount: https://aps-support.enthuse.com/halloween
🎃 Carve your pumpkin and take a photo.
🎃 Email your photo to [email protected]

We'll be sharing the entries in our online gallery, with public voting taking place from 1–4 November. The winner will be announced on Bonfire Night!

⏰ 𝗘𝗻𝘁𝗿𝗶𝗲𝘀 𝗰𝗹𝗼𝘀𝗲 𝗮𝘁 𝗺𝗶𝗱𝗻𝗶𝗴𝗵𝘁 𝗼𝗻 𝗦𝗮𝘁𝘂𝗿𝗱𝗮𝘆 𝟯𝟭 𝗢𝗰𝘁𝗼𝗯𝗲𝗿.

We'd love to see what you've created. There's still time to give your pumpkin its moment in the spotlight!

28/10/2026

𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗨𝗽𝗱𝗮𝘁𝗲: 𝗔𝗣𝗦, 𝗜𝗩𝗙 𝗮𝗻𝗱 𝗯𝗹𝗼𝗼𝗱 𝗰𝗹𝗼𝘁𝘀

For people with antiphospholipid syndrome (APS), planning fertility treatment can raise additional questions about blood clotting risks and pregnancy.

A new review published in Hematology Reports explores the risk of blood clots during assisted reproductive treatments, including IVF, and how these risks can be managed.

🔹 Blood clots during IVF are uncommon, but the risk increases significantly in people who develop severe ovarian hyperstimulation syndrome (OHSS).
🔹 APS is an important factor when assessing someone's risk of developing blood clots, particularly alongside a history of thrombosis.
🔹 People with obstetric APS may require a different treatment approach from those with thrombotic APS (a history of blood clots).
🔹 The researchers emphasise that decisions about preventative blood-thinning medication should be based on individual risk factors rather than a one-size-fits-all approach.

𝗪𝗵𝘆 𝗱𝗼𝗲𝘀 𝘁𝗵𝗶𝘀 𝗺𝗮𝘁𝘁𝗲𝗿?

The review highlights the importance of careful assessment and specialist-led treatment planning to help people with APS navigate fertility treatment as safely as possible.

Read the full review here: https://pmc.ncbi.nlm.nih.gov/articles/PMC13704087/

27/10/2026

𝗖𝗼𝘂𝗹𝗱 𝗹𝗼𝘄 𝗽𝗹𝗮𝘁𝗲𝗹𝗲𝘁𝘀 𝗯𝗲 𝗹𝗶𝗻𝗸𝗲𝗱 𝘁𝗼 𝘀𝘁𝗿𝗼𝗸𝗲 𝗿𝗶𝘀𝗸 𝗶𝗻 𝗔𝗣𝗦? 🩸

Low platelet counts (thrombocytopenia) are often associated with an increased risk of bleeding. But could they also tell us something important about blood clotting in people with antiphospholipid syndrome (APS)?

A new study involving 313 people with APS found that those with severely low platelet counts were more likely to have experienced blood clots in their arteries, particularly strokes.

🔬 𝗪𝗵𝗮𝘁 𝗱𝗶𝗱 𝘁𝗵𝗲 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗳𝗶𝗻𝗱?

• Participants with severely low platelet counts (below 50 × 10⁹/L) had a higher frequency of arterial thrombosis.
• Around 63% of this group had a recorded history of ischaemic stroke, compared with 31% of those with higher platelet counts (100 × 10⁹/L or above).
• During follow-up, severely low platelet counts were also associated with an increased risk of further arterial clotting events.

These findings suggest that low platelet counts in APS should not be viewed solely as a bleeding concern. They may also provide valuable information when assessing clotting risk.

Importantly, this study does not establish that low platelet counts cause blood clots, and further research is needed.

📖 Read the research here:
https://pubmed.ncbi.nlm.nih.gov/42718924/

26/10/2026

🔬 𝗟𝗮𝘁𝗲𝘀𝘁 𝗔𝗣𝗦 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗨𝗽𝗱𝗮𝘁𝗲𝘀

Researchers at Michigan Medicine have shared their October 2026 APS Programme Update, featuring exciting developments in antiphospholipid syndrome (APS) research.

This month's newsletter covers:
🔹 Upcoming clinical trials investigating colchicine in APS and ginger extract in lupus.
🔹 New findings exploring inflammation, blood clotting and small-vessel disease in APS.
🔹 Research being presented at the American College of Rheumatology's annual meeting.
🔹 The latest progress from the DARE-APS clinical trial investigating daratumumab.

It's encouraging to see so many different approaches being explored to improve our understanding and treatment of APS.

📖 Read the full newsletter from Michigan Medicine here: https://cutt.ly/dyYiO03G

22/10/2026

🎥 𝗪𝗼𝗿𝗹𝗱 𝗧𝗵𝗿𝗼𝗺𝗯𝗼𝘀𝗶𝘀 𝗗𝗮𝘆 𝟮𝟬𝟮𝟲 𝗦𝘆𝗺𝗽𝗼𝘀𝗶𝘂𝗺 𝗥𝗲𝗰𝗼𝗿𝗱𝗶𝗻𝗴𝘀 𝗡𝗼𝘄 𝗔𝘃𝗮𝗶𝗹𝗮𝗯𝗹𝗲!

Missed the World Thrombosis Day 2026 Symposium Series? You can now catch up on both expert-led sessions, available to watch on demand!

🩸 𝗣𝗿𝗲𝘃𝗲𝗻𝘁𝗶𝗻𝗴 𝗮𝗻𝗱 𝗠𝗮𝗻𝗮𝗴𝗶𝗻𝗴 𝗕𝗹𝗼𝗼𝗱 𝗖𝗹𝗼𝘁𝘀 𝗗𝘂𝗿𝗶𝗻𝗴 𝗣𝗿𝗲𝗴𝗻𝗮𝗻𝗰𝘆
Leading experts discuss the challenges and opportunities in preventing, diagnosing and managing venous thromboembolism (VTE) during pregnancy and after birth.

🩸 𝗕𝗹𝗼𝗼𝗱 𝗖𝗹𝗼𝘁 𝗥𝗶𝘀𝗸𝘀 𝗔𝘀𝘀𝗼𝗰𝗶𝗮𝘁𝗲𝗱 𝘄𝗶𝘁𝗵 𝗔𝘁𝘆𝗽𝗶𝗰𝗮𝗹 𝗔𝗻𝘁𝗶𝗽𝘀𝘆𝗰𝗵𝗼𝘁𝗶𝗰 𝗠𝗲𝗱𝗶𝗰𝗶𝗻𝗲𝘀
Explore the potential link between certain antipsychotic medications and an increased risk of blood clots, including important considerations for prevention and patient care.

These educational resources from Thrombosis UK provide valuable insights for healthcare professionals and anyone interested in learning more about thrombosis.

🔗 Watch both recordings here:
https://thrombosisuk.org/thrombosis-for-health-care-professionals/

21/10/2026

🔬 𝗡𝗲𝘄 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗲𝘅𝗽𝗹𝗼𝗿𝗲𝘀 𝘁𝗵𝗲 𝗿𝗼𝗹𝗲 𝗼𝗳 𝗶𝗻𝗳𝗹𝗮𝗺𝗺𝗮𝘁𝗶𝗼𝗻 𝗶𝗻 𝗔𝗣𝗦

A new study published in the British Journal of Haematology has revealed important findings about inflammation in antiphospholipid syndrome (APS).

Researchers examined blood samples from 37 people with thrombotic APS and 12 healthy volunteers. They found increased levels of inflammatory proteins in people with APS, despite them receiving stable anticoagulant treatment.

Interestingly, inflammation was generally more pronounced in patients who had experienced blood clots in their arteries compared with those who had experienced clots in their veins.

These findings could help researchers better understand APS and potentially develop more targeted treatments in the future. However, further research is needed.

💙 At APS Support UK, we're delighted to help research assistants Megan Preece and Catherine Ducker, who co-authored this paper, share important APS research at international conferences, such as the International Society on Thrombosis and Haemostasis (ISTH) Congress: https://aps-support.org.uk/about-aps-support/research/progress-so-far

These opportunities are made possible by the generous support of our donors. Thank you for helping us support the researchers working to improve our understanding of APS!

🔗 Read the research: https://pubmed.ncbi.nlm.nih.gov/42717283/

20/10/2026

🏅 𝗔 𝗵𝘂𝗴𝗲 𝗰𝗼𝗻𝗴𝗿𝗮𝘁𝘂𝗹𝗮𝘁𝗶𝗼𝗻𝘀 𝘁𝗼 𝗧𝗼𝗻𝗶-𝗝𝗮𝘆! 💜

We'd like to say an enormous well done and heartfelt thank you to Toni-Jay, who completed the Bournemouth Half Marathon in memory of her beloved sister, raising an incredible £645 for APS Support UK!

Toni-Jay sadly lost her sister at just 19 years old. Her death came as a devastating shock to the family, who had been unaware that she had antiphospholipid syndrome (APS).

Determined to honour her sister's memory and help others affected by APS, Toni-Jay took on the half marathon to raise both vital funds and awareness of this little-known autoimmune condition.

Every pound raised will help us continue supporting people affected by APS and raising awareness of the condition.

📸 Pictured alongside Toni-Jay is her friend Chloe, who also completed the half marathon while raising funds for Cancer Research UK. A fantastic achievement by both of them!

💜 𝗖𝗮𝗻 𝘆𝗼𝘂 𝗵𝗲𝗹𝗽 𝘀𝗵𝗼𝘄 𝘆𝗼𝘂𝗿 𝘀𝘂𝗽𝗽𝗼𝗿𝘁?

Toni-Jay's fundraising page is still available for anyone who would like to make a donation. Every contribution, however small, is greatly appreciated.

👉 https://www.justgiving.com/page/toni-jay-alderton-1

Thank you so much, Toni-Jay, for honouring your sister's memory in such a meaningful way. We're incredibly grateful for everything you've done. 💜

20/10/2026

👁️ 𝗖𝗮𝗻 𝗮𝗻𝘁𝗶𝗽𝗵𝗼𝘀𝗽𝗵𝗼𝗹𝗶𝗽𝗶𝗱 𝘀𝘆𝗻𝗱𝗿𝗼𝗺𝗲 (𝗔𝗣𝗦) 𝗮𝗳𝗳𝗲𝗰𝘁 𝘆𝗼𝘂𝗿 𝗲𝘆𝗲𝘀𝗶𝗴𝗵𝘁?

A recently published case report highlights a rare but serious way in which APS can affect the eyes, even in children.

Researchers describe the case of a 12-year-old girl whose APS diagnosis followed the discovery of severe damage to the blood vessels in both retinas (the light-sensitive tissue at the back of the eyes).

Further investigations identified persistently positive lupus anticoagulant, leading to a diagnosis of primary APS.

Following treatment, her vision improved to 20/20 in her right eye. Sadly, her left eye progressed to complete retinal detachment, with no recovery of sight reported.

Although this is a rare case involving just one patient, it highlights the importance of recognising potential eye complications associated with APS and the value of early diagnosis and treatment.

🔬 𝗥𝗲𝗮𝗱 𝘁𝗵𝗲 𝗽𝘂𝗯𝗹𝗶𝘀𝗵𝗲𝗱 𝘀𝘁𝘂𝗱𝘆 𝗮𝗯𝘀𝘁𝗿𝗮𝗰𝘁:
https://pubmed.ncbi.nlm.nih.gov/42762200/

👁️ 𝗟𝗲𝗮𝗿𝗻 𝗺𝗼𝗿𝗲 𝗮𝗯𝗼𝘂𝘁 𝗵𝗼𝘄 𝗔𝗣𝗦 𝗰𝗮𝗻 𝗮𝗳𝗳𝗲𝗰𝘁 𝘁𝗵𝗲 𝗲𝘆𝗲𝘀 on our website:
https://aps-support.org.uk/about-aps/what-are-the-symptoms/eyes

Address

The Orchard, White Hart Lane
Basingstoke
RG214AF

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Website

http://www.aps-support.org.uk/

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