Soft Bones Canada - Hypophosphatasia 'HPP' Community

Home
Canada
Lethbridge, AB
Soft Bones Canada - Hypophosphatasia 'HPP' Community

Call Directions Website Contact the organization

SBC: source of education, info, encouragement, and support those affected by Hypophosphatasia.

11/02/2026

We are postponing our CARDS webinar until the New Year.

We apologize for any inconvenience!

10/31/2026

An update on the HICKORY Phase III Trial!

Link to the whole article below:

https://www.astrazeneca.com/media-centre/press-releases/2026/efzimfotase-alfa-showed-numerical-improvemen-6-minute-walk-test-vs-placebo-treatment-naive-adolescents-adults-hpp-hickory-phiii-trial.html

10/31/2026

The results are in!

The Institute of Health Economics has now published our report HPP Care In Canada - An Evidence-to-Action Roadmap For Improved Outcomes.

Both English and French versions are available on their website. Link below:

https://ihe.ca/document/hypophosphatasia-care-in-canada-an-evidence-to-action-roadmap-for-improved-outcomes/

10/30/2026

Happy HPP Day!!!

YOU are the reason we do all that we do. YOU are HPP and we are here to support you!

10/13/2026

Join us on November 4, 2026 at 5 pm EST for a webinar on ‘Navigating the Health Care System in HPP”.

The keynote speaker is Dr. Peter R. Ebeling from the University of Toronto. You won’t want to miss it!

Click the link below to register.

https://www.kidsbonescanada.org/events-patients-friends-families

10/12/2026

Happy Thanksgiving from all of us at Soft Bones Canada!

10/08/2026

Get ready for another CARDS webinar “Navigating the Health Care System for Patient with Rare Bone Disorders” with keynote speaker Dr Ebeling and co-chairs, Dr. Lam and Dr Greenberg.

Registration info coming soon!

07/01/2026

Happy Canada Day from all of us at Soft Bones Canada! Wishing you a safe and happy holiday. 🇨🇦 softbonescanada

05/27/2026

Check out this CBC radio interview with Jeremy Harany on his journey with HPP!

https://www.cbc.ca/listen/live-radio/1-75-white-coat-black-art/clip/16213522-the-rare-disease-treatment-gap

05/27/2026

Check out this CBC radio interview with Jeremy Harany’s, sharing his story with HPP!

https://www.cbc.ca/listen/live-radio/1-75-white-coat-black-art/clip/16213522-the-rare-disease-treatment-gap

Address

Lethbridge, AB
R6W4A9

Telephone

+12042023211

Website

http://www.softbonescanada.ca/

Alerts

Be the first to know and let us send you an email when Soft Bones Canada - Hypophosphatasia 'HPP' Community posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.