Soft Bones Canada - Hypophosphatasia 'HPP' Community

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Lethbridge, AB
Soft Bones Canada - Hypophosphatasia 'HPP' Community

SBC: source of education, info, encouragement, and support those affected by Hypophosphatasia.

05/27/2026

Check out this CBC radio interview with Jeremy Harany on his journey with HPP!

https://www.cbc.ca/listen/live-radio/1-75-white-coat-black-art/clip/16213522-the-rare-disease-treatment-gap

05/27/2026

Check out this CBC radio interview with Jeremy Harany’s, sharing his story with HPP!

https://www.cbc.ca/listen/live-radio/1-75-white-coat-black-art/clip/16213522-the-rare-disease-treatment-gap

05/06/2026

Scholarship opportunity for those living with a rare disease! Check out Canadianrdn.ca for more info.

04/10/2026

Good news for the HPP world! Take a look at this article on the positive results from a phase III clinical program in Hypophosphatasia.

https://www.astrazeneca.com/media-centre/press-releases/2026/efzimfotase-alfa-demonstrated-positive-results-global-phase-iii-clinical-programme-hypophosphatasia.html

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Lethbridge, AB
R6W4A9

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+12042023211

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http://www.softbonescanada.ca/

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