Scleroderma Australia

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East Melbourne, VIC
Scleroderma Australia

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Australia's national voice for scleroderma. We raise awareness, fund research, and walk alongside the people and families living with this condition.

You are not alone here.

30/10/2026

When you're living with a chronic condition like scleroderma, accessing specialist care can come with questions about fees, out-of-pocket expenses and treatment options.

The 'Talking with your specialist doctor about costs' consumer guide, developed by the Council of Presidents of Medical Colleges (CPMC) in collaboration with the Australian Patient Advocacy Alliance (APAA), offers practical advice to help you feel more confident discussing these costs.

From requesting a written estimate to exploring payment options, knowing which questions to ask can help you make informed decisions about your care.

Learn more and download the consumer guide. Link in our profile.

29/10/2026

💬 What’s one scleroderma fact you wish everyone knew?

29/10/2026

The right treatment can be life-changing. Speak to your dermatologist about the care and treatment options available to you.

For people living with scleroderma, specialist care is especially important. The condition can affect the skin and internal organs, so early diagnosis, regular monitoring and appropriate treatment can help manage symptoms and address complications.

Timely access to the right specialist shouldn’t depend on where you live. Dermatologists, governments and health services all have a role to play in expanding access to high-quality care across Australia.

Your dermatologist can help assess skin changes, provide expert advice and work with other specialists to support your individual care needs.

Everyone living with scleroderma deserves access to the specialist care they need, wherever they live, and the opportunity to feel comfortable in their own skin.

28/10/2026

MARK YOUR CALENDARS for our November in-person and online support group meetings, as well as our Annual General Meetings and Seminar!

Come join us for support, friendship & information!

New attendees are always welcome!🌻

For more information, check out our website!

26/10/2026

📅 Save the Date for Scleroderma Victoria’s 2026 Annual General Meeting!

Scleroderma Victoria invites its members, friends and family to join them on Saturday 28 November for an afternoon of connection, updates and conversations with the scleroderma community.

The event will feature A/Prof Wendy Stevens from the Australian Scleroderma Interest Group (ASIG) and Jan Elliott, former President of Scleroderma Victoria and a trailblazer in establishing Scleroderma Australia.

📍 WHERE: Bourke Room, RACV City Club Melbourne, VIC
📅 WHEN: Saturday 28 November 2026, 1-4 pm AEDT
🕐 REGISTRATION: From 1:00 pm

Everyone is welcome!

-FREE for financial members of Scleroderma Victoria
-$60 for non-members
-Friends and family can join Scleroderma Victoria through its Friends and Family discount for just $1.

We encourage our community to support Scleroderma Victoria’s 2026 AGM. It’s a wonderful opportunity to hear from guest speakers, learn about important updates and connect with others in the scleroderma community.

A little reminder: The AGM falls on Victorian Election Day! If you’re planning to attend, remember to vote early or arrange a postal vote so you can make time for both.

👉 Ready to join us? Purchase your ticket today via the link in our profile!

We encourage our community to get involved and look forward to seeing everyone come together for this special event.

Please note that booking fees apply to tickets purchased by non-financial members.

22/10/2026

Supporting someone with scleroderma starts with understanding!

Living with scleroderma can bring challenges that aren’t always visible. Whether you’re a family member, friend, carer or colleague, learning more about the condition can help you provide meaningful support.

Our Supporting Someone with Scleroderma brochure offers helpful guidance and practical tips to help you better understand the condition and support someone living with it.

Download our free brochure to better understand scleroderma and learn how to provide meaningful support to someone living with the condition. Link in profile.

22/10/2026

DID YOU KNOW that many people living with scleroderma experience an invisible disability?

Scleroderma can affect the body in many ways, from the skin and joints to internal organs. Yet, many of these challenges aren’t visible to others.

This Invisible Disabilities Week, let’s remember that not all disabilities can be seen. By showing empathy, understanding and compassion, we can help create a world where everyone feels heard, understood and supported.

Let’s stand together to raise awareness of invisible disabilities and support everyone living with scleroderma!

22/10/2026

🌻 What’s one self-care habit that helps you manage life with scleroderma?👇

21/10/2026

Preventing and managing digital ulcers is an important part of scleroderma care. Small steps, from keeping warm and moisturising regularly to protecting your skin from injury, can help support your skin health.

In this carousel, we share practical tips on:
- Protecting your skin and preventing ulcers
- Managing Raynaud’s by keeping your whole body warm
- Understanding wound care and recognising warning signs
- Maintaining hand movement and function
- Working with your healthcare team to get the right support

Remember, seek medical advice if an ulcer becomes increasingly painful, red or swollen, or develops pus. Early assessment can help you get the appropriate care.

Swipe through to learn more, and save this post for future reference.

19/10/2026

Curious about the latest developments in scleroderma research?

Join SPIN and 14 scleroderma organisations from around the world for a FREE online event designed for people living with scleroderma, their families and carers!

Researchers and patient partners will share the latest findings in an accessible, practical way, helping our community better understand current research and what it could mean for the future of care.

🗓️ Sunday, 22 November 2026 (Australia) from 8:00-9:30 am AEDT

Connect with the global scleroderma community and hear directly from researchers and people with lived experience.

Save the date, register today and visit SPIN’s page for more details about the event and how to take part!

Address

East Melbourne, VIC

Website

http://www.sclerodermaaustralia.org.au/, https://www.sclerodermaaustralia.org.au/scleroderma-australias-submission-acces

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