Scleroderma Victoria

Scleroderma Victoria Scleroderma Victoria supports people with scleroderma, their families, carers and friends; promotes community awareness and supports research.

Make a cuppa, get comfy, and let the learning come to you!Living with scleroderma can come with a lot of questions - fro...
31/08/2026

Make a cuppa, get comfy, and let the learning come to you!

Living with scleroderma can come with a lot of questions - from understanding symptoms and treatments to navigating work, finances and healthcare.

That’s where Scleroderma Victoria’s Virtual Education Sessions (VES) come in!

Held online, these sessions bring expert knowledge and lived experience straight to you, wherever you are. Each month, we hear from medical specialists, allied health professionals, researchers and members of the scleroderma community.

It’s more than just learning - it’s about feeling informed, asking questions, building confidence and knowing you’re not alone.

📅 Sessions run from February to November, on the second Saturday of each month.

If you haven’t joined a VES yet, why not come along to the next one?

Want to know why these sessions matter so much to our community? Check out our blog to learn more about VES and how they help people feel more informed, connected and supported!

28/08/2026

Fill in the blank: My must-have for managing scleroderma is ____________.

27/08/2026

MARK YOUR CALENDARS for Scleroderma Victoria's September in-person and online support group meetings!

Whether you’re newly diagnosed, a carer, or have been part of the community for years, you’ll find connection, understanding, and support from people who truly get it.

New attendees are always welcome!🌻

🔗 For more details, visit our website!

Scleroderma can cause facial changes, and some people may consider cosmetic therapies to help manage them.A recent study...
27/08/2026

Scleroderma can cause facial changes, and some people may consider cosmetic therapies to help manage them.

A recent study explored the types of treatments people with scleroderma use, why they use them, their experiences and the challenges they face.

Swipe through to discover some of the key findings! 👉

While many participants reported positive outcomes, more research is needed to understand which treatments are safe and effective for people with scleroderma.

Considering a cosmetic therapy? Talk with your healthcare team about what may be appropriate for you.

MARK YOUR CALENDARS for our September Virtual Education Session with guest speaker Professor Debbie Turner!WHEN: Saturda...
23/08/2026

MARK YOUR CALENDARS for our September Virtual Education Session with guest speaker Professor Debbie Turner!

WHEN: Saturday, 12 September at 10:30am AEST
WHERE: Online via Google Meet
COST: It’s FREE!
TOPIC: Scleroderma and the Feet

In this informative session, Debbie Turner will:

-Share insights into how scleroderma can affect the feet
-Discuss common foot complications associated with scleroderma
-Explain approaches to assessing and managing complex foot conditions
-Share practical strategies to support foot health, function and quality of life

Professor Debbie Turner is a leading podiatry expert and Professor in Podiatry at Queensland University of Technology. She has extensive clinical and research experience in rheumatology and diabetes, with specialist expertise in complex foot conditions associated with systemic diseases.

Debbie has worked as a clinical specialist podiatrist at leading rheumatology research centres in the UK, including Leeds and Glasgow, and has published extensively in rheumatology. She has also helped build capacity in podiatry rheumatology research and shape models of care for people living with rheumatology-related foot problems.

Whether you’re living with scleroderma, caring for someone who is, or simply looking to learn more, this session is for you!

Register today! Link in comments.


21/08/2026

🌻 Help raise awareness by sharing the first symptom you experienced with scleroderma.

20/08/2026

Listen as Kathleen shares the daily challenges faced by people living with scleroderma and why ongoing support matters.

Scleroderma nurses provide expert care, education, research support and, most importantly, compassion and reassurance.

Let’s make sure everyone living with scleroderma can access this vital care. 💛

NDIS changes: What could they mean for people living with scleroderma?For people with scleroderma, the impact of the con...
20/08/2026

NDIS changes: What could they mean for people living with scleroderma?

For people with scleroderma, the impact of the condition can be complex, fluctuating and often invisible. That’s why clear evidence of how scleroderma affects everyday life and independence is so important.

From eligibility and reassessments to the support people may need, getting NDIS reform right matters.

Swipe through to learn more about the changes, why evidence matters, and what scleroderma support should look like.

Living with scleroderma can bring challenges that affect everyday life, from fatigue and pain to sleep, stress, skin cha...
17/08/2026

Living with scleroderma can bring challenges that affect everyday life, from fatigue and pain to sleep, stress, skin changes and more. Having the right information, practical tools, and support can help you feel more confident!

SPIN-SELF is a new, free online self-management program created specifically for people living with scleroderma. Developed by researchers and people with lived experience, the program offers practical resources, educational tools and strategies to support day-to-day wellbeing.

And you don’t have to do it alone. SPIN-SELF will also offer peer-led online group sessions, giving people the opportunity to connect, share experiences and learn from others who understand life with scleroderma.

Want to learn more about SPIN-SELF? Read the full article today!
https://www.sclerodermaaustralia.org.au/feel-better-live-better-a-new-self-management-program-for-people-with-scleroderma/

Address

41 Victoria Parade
Fitzroy, VIC
3065

Telephone

+61392313651

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