30/09/2026
What if some of the most important experts in medical research are the people living with the conditions researchers are working to treat?
Through the Bionics Institute’s Consumer & Community Involvement (CCI) Program, people living with dementia, Crohn’s disease, arthritis, epilepsy, chronic pain and other conditions are helping shape the future of medical research.
Facilitated by Dr Sally Herring, the program brings researchers together with people who have firsthand experience of living with challenging medical conditions. Their insights are helping researchers ask better questions, identify unmet needs and design research that is more relevant to the people it is ultimately intended to help.
Already, consumer insights have influenced the design of potential future clinical trials, sparked new ideas for medical device development and highlighted priorities researchers may otherwise have overlooked.
“By embedding lived experience into the research process, the Bionics Institute is helping create better science and better outcomes for the community.”
Dr Sally Herring
The CCI Program is still in its early stages, but the foundations are being built for a more collaborative approach to research, where scientific expertise and lived experience work together from early ideas through to clinical translation.
Read the full article to learn how consumers and researchers are working together to shape the future of medical research: https://www.bionicsinstitute.org/latest-news-newsletter/better-research-starts-with-listening/