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Monday 9am - 5pm Tuesday 9am - 5pm Wednesday 9am - 5pm Thursday 9am - 5pm Friday 9am - 5pm

Thalassaemia & Sickle Cell Australia

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Thalassaemia & Sickle Cell Australia

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Thalassaemia and Sickle Cell Australia is a not-for-profit community organisation

Thalassaemia and Sickle Cell Australia (TASCA) is a not-for-profit community organisation dedicated to:

(A) Serving as a support network for Australians affected by chronic genetic blood disorders known as "haemoglobinopathies", like thalassaemia and sickle cell anaemia. (B) Seeking to educate and raise public awareness of haemoglobinpathies within Australia, and the need to encourage the public to be tested for these conditions. (C) Encouraging healthy members of the public to donate blood to the Australian Red Cross Blood Service, as fellow Australians who are affected by genetic haemoglobinopathies, require regular blood transfusions in order to live and manage their condition.

01/11/2026

Casgevy works by editing a faulty gene in a patient’s bone marrow stem cells so that the body produces functioning haemoglobin. The stem cells are collected from the patient, edited in a laboratory and then infused back into the body following conditioning treatment.

🇬🇧 : UK approval now includes eligible children aged 5+

Younger with transfusion-dependent β- or severe disease are now included in Casgevy’s authorisation.

MHRA, the UK regulator for medicines and medical devices, granted the extension on 29 October and announced it today, lowering the approved minimum age from twelve to five years of age.

Casgevy is a gene-editing treatment using the patient’s own stem cells. Treatment involves conditioning therapy, specialist hospital care and continued safety monitoring.

The approved minimum age is two in the and remains 12 in the . Clinical eligibility criteria apply in each jurisdiction.

🔗 Read the full MHRA announcement:
https://www.gov.uk/government/news/mhra-approves-gene-editing-treatment-for-children-aged-five-and-over-with-serious-inherited-blood-disorders

26/10/2026

A huge thank you to everyone who came along to our AGM!

And another thank you to our guest speaker, Professor Berdoukas 🙌

We're so grateful for your support and can't wait for what's ahead ❤️

21/10/2026

The TASCA 2026 AGM is next week. Don’t forget to register your attendance: https://www.eventbrite.com.au/e/1998406737347?aff=oddtdtcreator

Get updates on TASCA’s events and activities and hear from guest speaker Professor Vasili Berdoukas on the updates in advances in Thalassaemia and Sickle Cell care.

Join us online from 6.30 PM AEST on Monday, 26th October.

We hope to see you there ❤️

20/10/2026

We are excited to announce Spleen Australia's first-ever consumer webinar!

❓Did you know ❓

The spleen plays an important role in filtering blood, including breaking down red blood cells at the end of their life cycle and removing iron so it can be reused.

For someone living with Thalassaemia, the Thalassaemic red blood cells often get stuck inside the spleen, due to their small size and abnormal shapes. Additionally, when the spleen breaks down the red blood cells in someone with Thalassaemia, the iron typically remains inside the spleen rather than being reused. These factors can contribute to the enlargement of the spleen, also known as ‘splenomegaly’.

For someone living with Sickle Cell, the hard, sticky, sickle-shaped red blood cells can contribute to a spleen crisis, where the red blood cells get trapped inside the spleen. The sickling of the cells in the spleen can also cause scarring, limiting how well the spleen can function.

👉Register now to hear from a range of experts and to have your questions answered: https://forms.cloud.microsoft/r/zWfRaRCv8e
🗓️Tuesday, 10th November, 5-6 PM, Online via Zoom

10/10/2026

Together We Thrive! ❤️

World Mental Health Day takes place on October 10th every year, with Mental Health Month taking place throughout October.

This is an important time to not only raise awareness of mental health, but to check in with ourselves and those around us and reflect on our own mental well-being.

Life can feel like a lot, and with all the change and conflict happening in the world, it's more important than ever to stay connected and support each other.

Visit the Mental Health Australia website for tips and ideas on how you can start supporting your mental wellbeing.
👉 https://www.mentalhealthaustralia.org.au/get-involved/world-mental-health-day/calendars/

“When we come together – through small, everyday moments of care, kindness, conversation and connection – we can help each other to truly thrive.”

07/10/2026

Don’t miss your chance to hear from world-renowned Thalassaemia expert.

Professor Vasili Berdoukas will be presenting at TASCA’s AGM this October!

Join us online from 6.30 PM AEST on Monday, 26th October.

👉RSVP here: https://www.eventbrite.com.au/e/1998406737347?aff=oddtdtcreator

30/09/2026

📣Introducing our guest speaker, Professor Vasili Berdoukas!

Prof Berdoukas is a world-renowned Thalassaemia expert and will speak about the latest advances in Thalassaemia and Sickle Cell Anaemia care.

Join us on Monday, 26th October from 6:30 PM AEST via Microsoft Teams.

Don’t miss your chance to hear from world-renowned Thalassaemia expert.

RSVP your attendance here: https://www.eventbrite.com.au/e/1998406737347?aff=oddtdtcreator

We hope to see you there! ❤️

26/09/2026

First bounce is almost here! 🏉

Which team are you rooting for? The Dockers ⚓️ or the Lions 🦁

The Grand Final is an exciting time for most, but the donations don't stop!

Visit your local Lifeblood donation centre, or book your blood donation online at https://www.lifeblood.com.au/ today. Your one donation can save many lives ❤️🩸

25/09/2026

We are pleased to share an update to Rare Voices Australia’s (RVA) Rare Disease Disability Toolkit!

Codesigned with RVA and people living with rare disease disability, the toolkit has seen updates to its resources to make them stronger and more useful. The toolkit:
▪️Includes new peer-to-peer supports.
▪️Builds capacity in disability rights and self-advocacy.
▪️Supports people to better access and navigate disability and other systems (such as health, education and employment).

The toolkit includes:
1. Rare Disease Disability Management Plan
2. Reasonable Adjustments in Healthcare
3. Navigating Air Travel with Rare Disease Disability
4. NDIS and Rare Disease Disability

✨How to Use the Toolkit
Each resource includes a main guide and extra tools to help you speak up for yourself and use them together with your support team.

👉Visit the toolkit page to view the resources: https://rarevoices.org.au/rare-disease-disability-project/rare-disease-disability-toolkit/

23/09/2026

🗣️Save the Date! Our Annual General Meeting is coming up!

Join us on Monday, 26th October, from 6:30 PM AEST via Microsoft Teams.

RSVP your attendance here: https://www.eventbrite.com.au/e/1998406737347?aff=oddtdtcreator

We hope to see you there! ❤️

Address

92 Bignell Road
Bentleigh East, VIC
3165

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+61370155637

Website

https://www.tasca.org.au/

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