Katie's Clinic for Rett Syndrome

09/07/2026

See you there!

08/28/2026

We are officially sold out for golfers! Still time to get a ticket for post-golf food and fun! Grateful to all our sponsors, golfers and volunteers!!

08/11/2026

Learn more about the fabulous George Mark House!

08/01/2026

Join us!!

07/20/2026

04/21/2026

Registration is open for the first session of Rett in Focus, a new IRSF webinar series designed to give the Rett syndrome community a closer look at specific treatments, clinical trials, and therapeutic developments.

Join us on Tuesday, April 28, at 6 p.m. ET for an overview of DAYBUE® STIX (trofinetide), moderated by Dr. Dominique Pichard, Chief Scientific & Medical Officer at IRSF.

This session will explore how DAYBUE was studied, what clinical trial results showed, possible side effects, and how DAYBUE STIX may offer added flexibility within the treatment experience. DAYBUE or DAYBUE STIX are prescription medicines used to treat Rett syndrome in adults and children 2 years of age and older.To learn more and register:

https://us02web.zoom.us/webinar/register/WN_fVvRD4ojTUmF5--BbJyVMA?fbclid=IwY2xjawRU525leHRuA2FlbQIxMABicmlkETFTOWpRRkdEajJoM09WZEdXc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHq0WU440RY38e0Jax2VCBeCzwsLmXOz1-Vn7XsjfK2PyA3HBnpIQvKXlmq-z_aem_cMyajscMQO92NSDBWz5o-A #/registration

Please read the full Prescribing Information:https://daybue.com/daybue-pi.pdf, including Patient Information:https://daybue.com/daybue-patient-info.pdf

04/15/2026

Get registered! See you there!!

04/13/2026

Please share with your child’s providers! Continuing education available around Rett care!

IRSF provides a one-stop location where providers can find a wealth of CME credit opportunities to learn about Rett syndrome. Find all your Rett CME resources here.

04/07/2026

Don’t miss this fun and informative event! 🏕️🔥🐴🏊‍♀️