Kaila's Komfort-CRMO

06/12/2026

10 YEARS of CRMO awareness 💜
10 YEARS of community 💜
10 YEARS of strength 💜

Registration is officially OPEN for the 10th Annual Kaila’s Komfort CRMO Awareness Virtual 5K Walk‑A‑Thon!
For anyone new to this event, here’s a little history: Kaila’s Komfort hosted the first-ever CRMO Awareness 5K in October 2017, marking the largest organized worldwide CRMO awareness event at that time. Ten years later, we are honored to continue this tradition of connection, visibility, and hope. This year — our Decade of Awareness — we’re once again hosting the CRMO Awareness Virtual 5K Walk‑A‑Thon during CRMO Awareness Month, October 10–18, 2026. As always, participation is flexible and inclusive: join in-person or virtually, wherever you are in the world, in whatever way feels right for you. Walk, run, bike, skip, wheel, or roll your 3.1 miles — every step shines a light on CRMO and supports our global community. You can participate solo, with your family, with a group of friends, or by organizing a team. Complete your miles at a park, on a track, through your neighborhood, or even on your treadmill at home. The beauty of this event is that everyone can take part, from anywhere, at any time during the event week. Register by September 10 to guarantee this year’s special-edition event t‑shirt and matching jelly bracelet — created to celebrate ten powerful years of awareness, advocacy, and community.

A huge shoutout to CRMO Warrior Lauren Potts for designing this year’s incredible anniversary logo. It captures the spirit of strength, unity, and resilience that defines our community.

To register, visit:
https://givebutter.com/2026-crmo-awareness-virtual-5k-walk-a-thon

You can create a team, share your link with friends and family, and invite others to join or donate. Last year, one of our most successful teams participated entirely virtually — supporters from around the world signed up through their shared link and completed their miles in their own towns on the same day. It became a beautiful collection of micro‑walks honoring one amazing Warrior. Other teams gathered at local parks, inviting friends and family to walk together in support of their Warrior. Whether your group is one person or one hundred, your participation makes a meaningful impact. As we celebrate ten years of awareness, we can’t wait to see who joins us, how far our reach extends, and how brightly we can shine together. Let’s make this the biggest and most inspiring CRMO Awareness 5K yet — and let’s continue to raise our voices, our miles, and our hope for the CRMO community.

06/09/2026

Get ready to start assembling teams to bring awareness to your local community — and help us celebrate a decade of awareness and bringing families together! The worldwide Kaila’s Komfort CRMO Awareness 5K Walk‑A‑Thon returns October 10–18, uniting families across the globe to raise awareness, honor our warriors, and support much‑needed CRMO‑specific research. You can walk, run, or roll from anywhere you are and be part of something truly powerful. Registration opens this week — stay tuned and get ready to join the movement. Let’s make this milestone year our biggest and most impactful yet. Gather your team, spread the word, and help us make this 10‑year celebration unforgettable.

05/05/2026

We have a WINNER!!!

We are excited to share this year's CRMO Awareness 5K logo, which was designed by CRMO Warrior and Advocate, Lauren. Lauren has shared her talents with this community over the years, and we feel so honored to have her design as this year’s 5K logo. Congratulations, Lauren! We will soon share a mock-up of this year's event shirts with her amazing logo. And we are excited to bring the worldwide CRMO community together to show support and spread awareness throughout the month of October, which is CRMO Awareness Month! More information on the 5K will be shared soon.

Our Kaila's Komfort Board selected the winning logo this year, which was not an easy task because we had so many awesome designs to choose from (we will be sharing those separately so you can see the talent we have in our group)! Thank you to everyone that took the time to design a logo!!

05/03/2026

A HUGE thank‑you to everyone who submitted a drawing for this year’s CRMO Awareness 5K logo contest. We were blown away by the creativity, heart, and talent that poured into every single design. Choosing just one winner is going to be incredibly tough — each drawing reflects the spirit of our community in such a meaningful way. Our team will be reviewing all submissions this weekend, and the winning design will be selected and announced on Monday. Thank you again for sharing your talent, your time, and your support. This event is stronger and more beautiful because of all of you.

04/17/2026

If you are in the Seattle area, or willing to travel for a great cause, we would love you to support this year’s CRMO/CNO Gala. While this is a Seattle-based event, the impact reaches far beyond one city. The funds raised will support research that benefits our entire global CRMO/CNO community.

We know many of you won’t be able to attend in person, but you can still make a meaningful difference. Please consider sharing this post—you never know who in your network may own, work for, or be connected to a business (large or small) that would be inspired to support CRMO research. Through the Seattle Children’s CRMO Warriors Guild, they offer multiple levels of business sponsorship, each with valuable visibility and advertising opportunities. These partnerships not only help advance critical research, but also align businesses with a compassionate, impactful cause supporting patients and families. If you’re interested in becoming a sponsor or learning more, please reach out and we can put you in touch with the proper person.

One of the leaders of the event shared this message: “Don’t underestimate the power of many small contributions—together, they can move the needle in a big way.” Let’s all come together and support this wonderful event and help move CRMO research forward.

Join us Saturday, May 2nd. Every child deserves the opportunity to live a full, happy life. Help give children living with Chronic Recurrent Multifocal Osteomyelitis hope for a better future.

04/09/2026

It’s official! We have reached a decade of our worldwide, uniting annual CRMO Awareness 5K!! It will once again be coming your way this October, with this year’s theme being “From One Story to Thousands: A Decade of Awareness”! 📖

🎨 We're once again calling all CRMO Warrior Artists: we’re inviting YOU to design this year’s most special and official 5K logo for the decade-old walk! 🌟 The winning design will be used on all event promotional materials and printed on our event shirts (giving you proper credit). All design ideas must be print-ready, use no more than 3 colors, be gender-neutral, and be appropriate for all ages. Theme: “From One Story to Thousands: A Decade of Awareness” 📦 Submissions must be print-ready📅 Deadline: FRIDAY, MAY 1. Please send your submission to [email protected]. The winner’s design will be on this year’s event shirts, all messaging and advertisements, and you will receive some fun prizes!

More details to follow on the dates and registration for the walk, but we are just so excited to bring this walk your way and want to start with the most exciting part, the visuals! If there are any questions, please email us at [email protected]

02/04/2026

A Heartfelt Update From Our Tiny Non‑Profit

This is one of the hardest decisions we’ve ever had to make, and sharing it with you weighs heavily on our hearts. After a great deal of reflection, we’ve made the difficult choice to downsize our nonprofit. While this shift is necessary at this time, our commitment to the CRMO community remains as strong as ever.

At least through the end of 2026, we will continue raising funds specifically for CRMO research, and we are moving forward with hosting our 10th annual CRMO Awareness 5K this October. Our hope is that, in time, we can transition the walk to another home—one that will allow this beautiful community to keep gathering, supporting one another, raising essential research funds, and spreading awareness in local communities around the world. And we will always participate and support that.

As part of this transition, our care package program has officially ended, and we will no longer be selling CRMO merchandise after next week. If you’d like to purchase any remaining items, please place your order by Thursday, February 12. All merchandise has been marked down, and the prices include shipping. [https://www.kailaskomfort.org/crmo-awareness-products.html] Any remaining merchandise will be donated to the CRMO Research Guild at Seattle Children’s Hospital on February 13 to support their in-person fundraising efforts for CRMO research. If you recently requested a care package, we are working on putting those together and they should go out this week.

To everyone who has supported us—whether you purchased a shirt, sent a message, shared a post, or simply held our mission in your heart—thank you. You’ve helped us reach families who needed comfort, connection, and hope. You’ve helped us shine a light on a rare disease that deserves to be seen. You have touched our hearts in ways we will carry forever. It has been one of the greatest honors of our lives to walk alongside so many Warriors over the past eleven years, even in the smallest of ways.

This isn’t goodbye. It’s a transition. And even in this time of change, our gratitude for you is bigger than ever. Thank you for being part of this journey, for believing in our mission, and for helping us build a community filled with compassion, strength, and hope. We hope you will continue to walk beside us and support our fundraising for CRMO research. And we hope you are all ready to walk with us in October!

Our website will stay up and any donations made to our organization from here on out will be directed to CRMO-specific research. We will keep you updated on any research projects that Kaila’s Komfort contributes to.
www.kailaskomfort.org

01/01/2026

We’re so thankful for an incredible year and an even more incredible community. Thank you for supporting our mission and helping us do great things. We can’t wait to see what the year ahead brings!  Wishing everyone peace, happiness, and health in the New Year!

12/11/2025

Lots of purple packages went out in the mail this week. If you ordered the limited offer CRMO Warrior name shirts, you should be receiving it soon!

We have extended our sale on all CRMO awareness merch on our website; use code WARRIOR20 for 20% off the sale prices. We’ve had fun putting together some pretty cool blind boxes; get yours before they’re gone - you won’t be sorry! Packages are being mailed out daily, so you should receive any orders placed soon before the holidays.

https://www.kailaskomfort.org/crmo-awareness-products.html

12/01/2025

Don't miss out on our huge CRMO Awareness merch sale happening now! In addition to the price reductions we've made to all items in our CRMO Awareness merchandise store, we are also offering an additional 15% ( https://www.kailaskomfort.org?cc=Rare15) off your entire purchase today through Sunday (12/7). Use code "Rare15" at checkout! We will not be reordering any of the items in our store, so once they are gone, they are gone. We will be shipping orders out daily, so you will receive any items in time for the holidays. Thank you for supporting our tiny non-profit.