ALS United North Carolina

08/21/2026

We are thrilled to aannounce that Jennifer D’Entremont has joined our team as our new Care Services Coordinator! Jennifer will provide support to people living with ALS (pALS) and their families at the Duke ALS Clinic.

Jennifer brings 12 years of nursing experience across a variety of healthcare settings, including medical-surgical and telemetry units at UMass Memorial Medical Center, rehabilitation, and long-term care, as well as medical office and school environments. She also brings many years of experience in the travel industry, giving her a diverse background and a natural ability to connect with people from all walks of life.

Jennifer is passionate about helping others, building meaningful relationships, and making a positive difference in the lives of those she serves. We are thrilled to welcome her to our ALS care services team and know that her compassion, experience, and dedication will be a wonderful resource for the individuals and families we support.

Outside of work, Jennifer enjoys spending time with her husband, John, and their three children: Grace, a senior at James Madison University; Jack, a sophomore at UNC-Chapel Hill; and Lucas, a junior in high school. She also loves traveling, spending time with her pets, and cheering on the New England Patriots!

08/18/2026

We are so excited to announce we're hosting our second annual ALS Classic to benefit those living with ALS in NC!

🗓️ Save the Date: 09.19.2026

📍Castle Bay Country Club, Hampstead NC

⛳️ https://events.golfstatus.com/event/als-classic-powered-by-blueprint-for-hope-2026/

This event is a 4-person scramble format with a 9 AM shotgun start. Every registration includes green/cart fees, range balls, lunch, and tournament swag. Sponsorship opportunities are available as well for local businesses! Spots are limited — grab your team and register today!

All proceeds from this benefit tournament will go directly to ALS United North Carolina supporting free services and programs for individuals and families affected by ALS. Your swing will help fund care, equipment, and impact the lives of those living with ALS and their caretakers. Last year we raised $5000 - let's see where we can take it this year!

Join us on September 19th and play with purpose

The link to register or donate: https://events.golfstatus.com/event/als-classic-powered-by-blueprint-for-hope-2026

08/17/2026

STILL TIME! DON’T WAIT — TABLES ARE LIMITED! 🏒
Be part of Lunch with a Legend, featuring Stanley Cup Champion and Carolina Hurricanes Head Coach Rod Brind’Amour.
With limited seating available, now is the time to reserve your table or individual ticket:

*Legend Table — $5,000
Premier company-branded seating for 10, plated lunch, autographed swag for each guest, event recognition, and an exclusive opportunity to submit a question for Rod during the Q&A.

* Champion Table — $2,500
Reserved company-branded seating for 10, plated lunch, event swag, and event recognition.
* Individual Ticket — $150

One reserved seat, plated lunch, event swag, and access to the exclusive conversation with Rod.
Thursday, September 3, 2026
Embassy Suites Raleigh-Durham Research Triangle, Cary

Want to share the experience with our ALS community? Table purchasers may donate unused seats so people living with ALS and their caregivers can attend.
Space is limited, so reserve your spot today.
Questions? Contact [email protected]. See less

08/14/2026

Community Partner Spotlight: Papa Barks

Sometimes the most meaningful ideas are born from personal experience.

In 2020, Mark founded Papa Barks, an online gaming fundraiser inspired by his father's ALS diagnosis. What began as a way to fight alongside his dad has grown into an incredible community event that continues to honor his father's legacy following his passing in 2022.

Over the past five years, Papa Barks has raised more than $318,000 to support individuals and families affected by ALS and to advance ALS research. In recognition of these extraordinary efforts, the event has received the Circle of Excellence Award from ALS United North Carolina.

Today, Papa Barks brings gamers and supporters together from across the country to raise awareness and critical funds for ALS United North Carolina. Through the power of online gaming and community, participants are helping ensure that families facing ALS have access to the care, support, and resources they need.

We are incredibly grateful to Mark and everyone involved with Papa Barks for transforming one family's ALS journey into a lasting legacy of hope. Their dedication is a powerful reminder that every passion can become a force for good.

Ready to join the challenge? Click the link below to register, donate, or learn more about this year's Papa Barks event!

https://papabarks.org/

08/13/2026

STILL TIME TO GET YOUR TICKETS!Join us for an unforgettable afternoon where incredible food, music, and community come together to make a difference.
A Taste of Hope – A Fundraiser for ALS United North Carolina

📅 Sunday, August 23, 2026
🕑 2:00–5:00 PM
📍 Serafina Ristorante
126 N. Salem Street, Apex, NC

Enjoy:
🍷 Authentic Italian cuisine
🎸 Live Classical & Flamenco guitar by Eduardo de Rosamaria
🎟️ Raffles & prizes
🎤 Special guest speaker Dr. Richard Bedlack, Director of the Duke ALS Clinic and a nationally recognized leader in ALS research and care.
This special event is dedicated to the memory of Lisa Giannuzzi, a beloved Festa Italiana North Carolina sponsor whose courageous battle with ALS continues to inspire hope and action.

Tickets are just $40, and space is limited—don't wait to reserve your seat! https://www.zeffy.com/en-US/ticketing/annual-gala-5447

Every ticket helps support ALS United North Carolina's mission to provide care, advocacy, and hope for individuals and families living with ALS while advancing the search for treatments and a cure.
See less

Join Festa Italiana and Serafina Ristorante for "A Taste of Hope", a fundraiser for ALS United NC:Sun, August 23, 20262 PM-5 PMSerafina Ristorante 126 N Salem…

08/12/2026

DON’T WAIT — TABLES ARE LIMITED! 🏒

Be part of Lunch with a Legend, featuring Stanley Cup Champion and Carolina Hurricanes Head Coach Rod Brind’Amour.

With limited seating available, now is the time to reserve your table or individual ticket:

*Legend Table — $5,000
Premier company-branded seating for 10, plated lunch, autographed swag for each guest, event recognition, and an exclusive opportunity to submit a question for Rod during the Q&A.

* Champion Table — $2,500
Reserved company-branded seating for 10, plated lunch, event swag, and event recognition.

* Individual Ticket — $275
One reserved seat, plated lunch, event swag, and access to the exclusive conversation with Rod.

Thursday, September 3, 2026
Embassy Suites Raleigh-Durham Research Triangle, Cary

Want to share the experience with our ALS community? Table purchasers may donate unused seats so people living with ALS and their caregivers can attend.

Space is limited, so reserve your spot today.
Questions? Contact [email protected].

Take the challenge and help a great cause.

08/10/2026

FREE Concert for ALS Awareness
Saturday, August 29 | Foothills Tasting Room | Winston-Salem

Join us for an unforgettable evening of live music featuring Guilty Party, one of Winston-Salem’s favorite cover bands, as they perform in support of ALS awareness and in honor of Dr. Mark Stallworth.

This special community event is free to attend, with donations benefiting ALS United North Carolina and helping provide care, advocacy, research support, and hope for families affected by ALS across our state.

📍 Foothills Tasting Room
3800 Kimwell Drive, Winston-Salem, NC 27103
🗓 Saturday, August 29
🚪 Doors open at Noon
🎵 Live music from 6:00–9:00 PM
💙 Admission is FREE. Donations are encouraged in honor of Dr. Mark Stallworth.
🪑 Seating is limited, so bring your camp chairs and enjoy an evening of music, community, and purpose.

Together, we can raise awareness, support families, and move closer to a world without ALS.

08/05/2026

Lunch with a Legend Featuring Rod Brind’Amour

Join ALS United North Carolina on Thursday, September 3, 2026, for Lunch with a Legend, a special fundraising luncheon featuring Stanley Cup Champion and Carolina Hurricanes Head Coach Rod Brind’Amour.

Guests will enjoy a seated luncheon and an inspiring conversation with Rod about leadership, perseverance, teamwork, and the values that have shaped his championship career—both on and off the ice

This one-of-a-kind event will bring together business and community leaders, sports fans, ALS supporters, and families from across North Carolina, all united in making a meaningful difference for people living with ALS.

Proceeds will support ALS United North Carolina’s mission to provide care, equipment, financial assistance, education, advocacy, and hope to individuals and families affected by ALS throughout our state.

Event Details
Thursday, September 3, 2026
Registration begins at 11:15am
Program and Lunch to begin promptly at 12pm

Embassy Suites Raleigh-Durham Research Triangle
201 Harrison Oaks Blvd.
Cary, NC 27513

Register Today: https://p2p.onecause.com/lunchwithalegend?fbclid=IwY2xjawTdvnBleHRuA2FlbQIxMABicmlkETFxdWd0VndQSEJhYnR6NjVPc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHi1aR3KeOV_daPJTMLOsnN_1ubkEQisxygovnDw996ZH_I31E18-OCfYXWoE_aem_VeYcY3nERf5GlUl_060PTQ

08/05/2026

ALS United North Carolina is proud to recognize our valued partner, the UNC Chapel Hill ALS Clinic, for their unwavering commitment to individuals and families living with ALS.

Recently, ALS United NC had the honor of presenting the clinic with a commemorative partnership plaque as a token of our gratitude for their continued collaboration and steadfast commitment to the ALS community.
We are deeply thankful for our longstanding partnership with the UNC Chapel Hill ALS Clinic and look forward to continuing our work together to advance care, support families, and improve the lives of those affected by ALS across North Carolina.

Thank you to the entire UNC Chapel Hill ALS Clinic team for your compassion, partnership, and dedication. Together, we are making a difference.