Illinois DeafBlind Project

05/27/2026

Illinois DeafBlind Project is hosting an Assistive Technology Exhibitor Fair on June 27th from 9am - 12pm. During the event, attendees will have time to browse the products and services from the following exhibitors and products:

Adaptive Toys
Chicago Hearing Society
Easter Seals Audiological Services
PODD, PRC-Saltillo and Tobii Dynavox Communication Systems
From 10am-11am we will have "Technology Spotlights" for our exhibitors to share their products and/or services as well as a personal story from brothers Austin and Zach Savickas and how they have used Assistive Technology!

Located at 501 Oak Brook Road, Oak Brook, IL 60523.

Please contact Abby Zurliene at [email protected] with any questions!

Register Here: https://www.surveymonkey.com/r/DD7PF88

05/01/2026

Families of children registered with Illinois DeafBlind Project - we want to hear from you! As our project plans upcoming activities, we would like input from families throughout the state to ensure we meet the needs of families and children on our registry.

Please complete the survey by June 1st to be entered in a raffle to win a $50 Amazon gift card! Winner will be drawn on June 2nd. Thank you for your input!

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04/10/2026

Sharing for National Family Association for DeafBlind
https://www.facebook.com/photo/?fbid=1502484411907448&set=a.369989451823622

🚨 THIS IS THE MOMENT! WE INVITE YOU TO TAKE ACTION WITH US ON FRIDAY, APRIL 10. 🚨

The Inaugural Bi-Partisan DeafBlind Caucus Meeting will take place next week - and your Federal Representative (or a staff member) needs to be in that room!

📣 Call or email your U.S. Representative and tell them to attend.
This is about access. Education. Equity. Real lives.

👉 If you are a DeafBlind individual:
You are their constituent. They need to hear directly from, and learn directly about, the community they represent.

👉 If your child attends a school for the Deaf and/or Blind:
Your Representative serves this population. They have a responsibility to understand the needs of the community they represent. CONTACT THEM and ask them to show up.

👉 If you believe in accessibility:
Don’t scroll past this. Take 2 minutes. Send the email. Make the call.

On Friday, April 10, let's unite together to:

📬 Fill the inboxes.
📞 Light up the phone lines.
📢 Make all Representative offices aware and accountable to attend!

This is how change happens - when we show up together and ask to be heard!

THE TIME IS NOW.

Save the invitation pictured and attach it to your email,
or
Visit nfadb.org to download the invitation linked on the homepage.

If you do not know who your Federal Representative is, visit www.house.gov to look it up by your address!

02/03/2026

CHARGE Syndrome Family Meet-Up with Dr. Tim Hartshorne!
DATE: Saturday, February 7th, 2026
TIME: 10:00 am – 12:30 pm
WHERE: Christ Church, 501 Oak Brook Road, Oak Brook, IL Fellowship Hall 1
The entire family is invited! Childcare is not provided, so feel free to invite additional responsible adults who can help your children, if needed.
An ASL interpreter is being requested.
Questions? Email Michelle at [email protected] or call 1 630-403-3253
Register at the link:

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02/02/2026

Show Some Love!
This February, we at ILDBP want to share the wonderful individuals in our DeafBlind community. By sharing, you are creating awareness and acceptance of DeafBlindness. Follow the survey link below for instructions!

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01/15/2026

Illinois teachers, therapists, early intervention providers and other professionals: It's time for the Ilinois DeafBlind Project's Annual Professional Needs Assessment. It should take about five minutes, depending on your level of detail. On Monday, February 23 a $50 Amazon gift card will be raffled to those who indicate that they want to enter the raffle. Non-federal funds are used for the raffle. Thank you for your time, input, and dedication to Illinois children!

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01/14/2026

Family Leaders Collaborative Conference: Caring for the Whole Child – Money, Mind and Disability Support Systems

SAVE THE DATE!

✨ Family Leaders Collaborative Conference 2026 ✨

Caring for the Whole Child – Money, Mind, and Disability Support Systems
Join us for a FREE virtual learning series designed for families and caregivers of children and youth with disabilities. This March, trusted family-serving organizations will come together to share practical tools, resources, and strategies that support the whole child—and you.

🗓 Mondays in March 2026
⏰ 12:00 – 1:30 PM (CT)
💻 Zoom Webinar (Registration Required)

Session topics include:
✔️ Managing overwhelm and caregiver stress
✔️ Financial planning for a loved one with disabilities
✔️ Getting paid as a caregiver
✔️ Building sustainable well-being practices
✔️ Navigating disability

🔗 Register here:
https://zoom.us/webinar/register/WN_zoWiLiB0TnyiOqFxvLze3g

📌 Free to attend | Open to families, caregivers & professionals
Hosted by STAR NET, Illinois DeafBlind Project, The Arc of Illinois, Family Matters PTIC, & The Heart of Illinois Down Syndrome Association, all organizations committed to supporting families across Illinois.

11/13/2025

Medicaid Waivers, PUNS List, ABLE Accounts! Webinar 1/22

Join National Special Needs Coordinator Jeanine Geraci from Protected Tomorrows to learn more about Future Care Planning for your family. An overview of Medicaid Waiver Services & PUNS Process, as well as using The ABLE Account as a useful tool for government benefit maintenance.

Register here:

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11/04/2025

Find Food IL Map: Webinar

University of Illinois Extension invites statewide organizations and families to join a noon-time webinar on Wednesday, November 5. Participants will be able to raise questions and give input during a discussion session following the presentations.

Click the link to register:

As part of our commitment to providing equal opportunities in our programming, University of Illinois Extension is required to collect and report overall statistics about the race, ethnicity, and gender of program participants. Your responses are voluntary and appreciated.

11/03/2025

Governor JB Pritzker joined the ribbon cutting ceremony at Philip Rock Center and School to celebrate the opening of their new facility! Congratulations to Philip J. Rock Center and School!