Rock4RV CJD Benefit Concert

04/23/2026

Progress …

Please see the Broad Institute of MIT and Harvard's Community Statement on their first-in-human clinical trial to evaluate an investigational drug called PrP-siRNA in patients diagnosed with prion disease.https://cjdfoundation.org/wp-content/uploads/2026/04/NN112-Community-Statement-2026-04-22.pdf

More information on drug development here: https://cjdfoundation.org/drug-development/

02/28/2026

TODAY IS RARE DISEASE DAY and I want to share a recent thank you letter addressed to me but should be addressed to all of you who have supported our ROCK4RV cause. YOU ARE MAKING A DIFFERENCE and directly supporting research to find a cure for CJD.

Rock4RV CJD Benefit Concert proudly supports The Creutzfeldt-Jakob Disease (CJD) Foundation, Inc. research grants and fellowships. THIS IS WHY WE DO IT!!!

Special thanks to Simple Jim for making this all possible!!!

Thank you for believing in the mission, showing up, and making a difference. If you would like to make a tax-deductible donation, click here https://secure.qgiv.com/event/rock4rv2025

YOU ALL ROCK!!

12/02/2025

Today is GIVING TUESDAY. Please join the ROCK4RV movement and consider a donation or sponsorship to help us find a cure at https://secure.qgiv.com/event/rock4rv2025

100% directly funds The Creutzfeldt-Jakob Disease (CJD) Foundation, Inc. research grants. Thanks to our donors and sponsors, we are the #1 family fundraiser in the 31-year history of The CJD Foundation! YOU ALL ROCK!