PBC Research Foundation

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PBC Research Foundation Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from PBC Research Foundation, Nonprofit Organization, 345 Saxony Road Ste 203A, Encinitas, CA.

The mission of the PBC Research Foundation (PRF 501c3) is to accelerate the path to clinical treatments for rare liver diseases by harnessing the power of patient-centered and patient-owned data.

It was an honor to speak at the National Liver Gathering. Thank you Community Liver Alliance for having us and for liste...
10/15/2026

It was an honor to speak at the National Liver Gathering. Thank you Community Liver Alliance for having us and for listening to the PBC patient voice.

10/15/2026

What if your routine blood work could tell you more about your liver health? This Liver Health Awareness Month, we’re asking everyone to take one simple step: talk with your healthcare provider about your liver health.

FIB-4 combines your age, two liver enzyme results, and your platelet count to estimate your risk for advanced liver scarring. It’s a simple starting point that can help your healthcare provider decide whether you need additional testing.

This Liver Health Awareness Month, ask your doctor: “Do I have the results needed to calculate my FIB-4 score?”

Learn more about liver health at liveradvocates.org

10/13/2026

Left undiagnosed or undetected, fatty liver disease can progress to liver cancer. It often starts silently: fat buildup, then inflammation, then scarring (cirrhosis), and cirrhosis significantly raises the risk of liver cancer. The earlier it’s caught, the more options you have. A simple FIB-4 score can help flag risk before it progresses this far. Don’t wait for symptoms. Ask your doctor.

Learn more at: https://liveradvocates.org/

Calling all Primary Biliary Cholangitis (PBC) patients: join our patient registry and study. Be part of the change and s...
10/13/2026

Calling all Primary Biliary Cholangitis (PBC) patients: join our patient registry and study. Be part of the change and share YOUR journey!
Https://TheLiverMatrix.acrossmatrix.com
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Calling PBC patients who want to make change: We are so close to our goal! We want to include YOUR Voice in a compliant ...
10/02/2026

Calling PBC patients who want to make change: We are so close to our goal! We want to include YOUR Voice in a compliant and secure manner! All PBC patients can enroll! Https://TheLiverMatrix.acrossmatrix.com
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PBC patients: Help us get accross the finish line! We will start analyzing data soon and need YOUR journey shared. All P...
09/30/2026

PBC patients: Help us get accross the finish line! We will start analyzing data soon and need YOUR journey shared. All PBC patients can enroll! Https://TheLiverMatrix.acrossmatrix.com
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Madrigal Pharmaceuticals is hosting MASH Across America in San Diego! Join us and United Liver as we learn about liver h...
09/23/2026

Madrigal Pharmaceuticals is hosting MASH Across America in San Diego! Join us and United Liver as we learn about liver health and walk through a giant liver. We are excited to see some of our friends there!

May Is Hepatitis Awareness Month. Hepatitis affects millions of people worldwide, and many don’t even know they have it....
05/05/2026

May Is Hepatitis Awareness Month.
Hepatitis affects millions of people worldwide, and many don’t even know they have it. That’s why awareness matters. Getting tested, learning the risks, and understanding prevention can save lives. Your liver plays a vital role in your health—don’t take it for granted.
Early detection can lead to treatment, management, and in some cases, a cure. Break the stigma, start the conversation, and encourage those around you to get checked.
Know your status. Protect your future. Spread awareness.

The PBCers Organization (Carol Roberts ) hosted a lunch and learn event in San Diego county yesterday. Dr. Julio Gutier...
05/03/2026

The PBCers Organization (Carol Roberts ) hosted a lunch and learn event in San Diego county yesterday. Dr. Julio Gutierrez MD lead an engaging and interactive talk that was so informative for all of us patients and our caregivers. So many of us had never met a PBC patient that was local to is and for many, they had never ever met another PBC patient! We had a great turnout! Having a rare disease is lonely and that is why events like this are so important. Ipsen and Gilead Sciences thank you for sponsoring this event! Brenda Tocko Remo you did an amazing job!

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345 Saxony Road Ste 203A
Encinitas, CA
92024

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