National FASD

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National FASD National FASD builds brighter tomorrows, through prevention and support.

📣 Calling all maternity professionals!Build your confidence in conversations about alcohol and pregnancy with National F...
16/10/2026

📣 Calling all maternity professionals!

Build your confidence in conversations about alcohol and pregnancy with National FASD’s Alcohol & Pregnancy Toolkit.

All resources are expert-reviewed and support clear, consistent advice in line with NICE QS204.

The toolkit includes:
🎓 A free, CPD-accredited e-course for maternity teams
📚 Leaflets, posters and practitioner fact cards
💬 A practical tabletop guide to support informed, non-judgemental conversations.

Explore the toolkit and share with your colleagues 👇
www.alcoholandpregnancy.info

Thanks to Tristan and Scott from FASD Ireland for visiting our offices and meeting with Sandy, as well Sue and Martin fr...
15/10/2026

Thanks to Tristan and Scott from FASD Ireland for visiting our offices and meeting with Sandy, as well Sue and Martin from Herts FASD Hertfordshire and Area FASD Support Network.
A great chance to share experiences pushing for national and local level policy change as well as to wish Scott a happy 50th!

Thanks to Rachael Maskell MP for raising prenatal alcohol exposure and FASD in debate on the Infants, Parents and Carers...
15/10/2026

Thanks to Rachael Maskell MP for raising prenatal alcohol exposure and FASD in debate on the Infants, Parents and Carers Bill

“Taking a public health approach to pregnancy means acknowledging that many of the factors that impact on outcomes are determined preconception. One clear example is the exposure of infants to fetal alcohol spectrum disorder. Around 77% of parents at the point of conception have used alcohol, exposing the foetus to risk of developing FASD. The trajectory through pregnancy and beyond of that infant has therefore been impacted by what happened in preconception.
If we are serious about the outcomes as set out and addressing the inequalities, we cannot simply start at the point of conception because we would miss a huge opportunity to change the outcomes for those infants and address these issues. Given that children with FASD are now more prevalent than children on the autism spectrum, we must recognise the impact that focusing on preconception can have in ensuring that parents have support.”

🔗Link to the debate here: https://www.theyworkforyou.com/pbc/2026-27/Infants%2C_Parents_and_Carers_Bill/01-0_2026-10-14a.1.3?s=FASD .0

Last week was hard. A 599-page government review on mental health, ADHD and autism did not mention FASD once. Many of yo...
14/10/2026

Last week was hard. A 599-page government review on mental health, ADHD and autism did not mention FASD once. Many of you told us how that felt.

But we want you to know this: we are not starting from nothing. The case for recognising FASD is already written into official guidance. Swipe through to read what it says, in its own words.

Public Health England calls reducing the harms caused by alcohol in pregnancy “a public health priority”.

The Department of Health and Social Care’s FASD Health Needs Assessment says “There is no ‘mild FASD’“. It also warns that without a diagnosis, people may be unable to get the support available for conditions such as autism.

SIGN 156, the diagnostic guideline accepted by NICE, says prenatal alcohol exposure “should be actively considered” as a possible cause of neurodevelopmental delay.

NICE Quality Standard 204 says children and young people with probable prenatal alcohol exposure and significant difficulties should be referred for assessment.

And we have new evidence. Our Cost of Inaction report shows FASD costs the UK around £9.2 billion every year. It also shows that a four-nation programme to prevent and respond to FASD could be funded with the equivalent of just 0.25% of alcohol duty receipts. Action is affordable. Inaction is not.

The Government has said it will now write a Mental Health Strategy. We have already contacted the Government and dozens of MPs to make sure they know the importance of including FASD in it.

Next, we are bringing people together. Over the coming months we will hold a series of roundtables with clinicians, policy makers, and people with lived experience and their families. Together we will turn this evidence into a plan that cannot be ignored.

Your voices have brought FASD this far. Together, we will take it further.

🔗Read the Cost of Inaction report: https://nationalfasd.org.uk/the-cost-of-inaction-on-fasd/

🔗Read our response to the Fonagy Review here: https://nationalfasd.org.uk/mental-health-adhd-autism-review-ignores-fasd/

Leaving FASD out of the Review was not an oversight.⁠⁠In January 2026, soon after the Review began, we wrote to the chai...
11/10/2026

Leaving FASD out of the Review was not an oversight.⁠
⁠
In January 2026, soon after the Review began, we wrote to the chair and vice chairs, Professors Fonagy, Baird and Wessely. We explained how much FASD overlaps with ADHD, autism and mental health conditions. We asked for a meeting and offered to bring together leading FASD clinicians, people with FASD and their families.⁠
⁠
We were never invited to meet.⁠
⁠
In March, the interim report did not name FASD. In Parliament, Lord Adebowale asked whether the final report would address FASD. The Government said it was up to the chair and vice chairs.⁠
⁠
On Friday the final report was published. FASD is not mentioned once.⁠
⁠
The Review was told about FASD and offered expert help, and it was asked about FASD in Parliament. It still chose to leave FASD out.⁠
⁠
Read our response: https://nationalfasd.org.uk/mental-health-adhd-autism-review-ignores-fasd/
⁠

"Nearly 600 pages, and FASD does not appear once. That is not a blind spot. We wrote to the Review at the very start, of...
10/10/2026

"Nearly 600 pages, and FASD does not appear once. That is not a blind spot. We wrote to the Review at the very start, offered our help, and offered to bring in the country's leading FASD clinicians and people with lived experience. We were never invited to meet them. They chose not to look."⁠
Sandra Butcher, Chief Executive, National FASD⁠
⁠
Yesterday's final report of the Independent Review into mental health conditions, ADHD and autism will shape the Government's new Mental Health Strategy. If FASD is left out of that too, the reforms will fail the people they are meant to help.⁠
⁠
It is still not too late to fix this. We are calling on everyone working on the Government's response to consult FASD experts and people with lived experience now.⁠
⁠
Read our full response: https://nationalfasd.org.uk/mental-health-adhd-autism-review-ignores-fasd/
⁠

599 pages. Around 185,000 words. Not one mention of FASD.The final report of the Government's Independent Review into me...
09/10/2026

599 pages. Around 185,000 words. Not one mention of FASD.

The final report of the Government's Independent Review into mental health conditions, ADHD and autism was published today. Autism is mentioned 902 times and ADHD 617 times. FASD is mentioned 0 times.

Prenatal alcohol exposure, the cause of FASD, gets half a sentence on page 418, and no recommendation follows from it.

FASD is more common than autism. Many people with FASD are already in mental health, ADHD and autism services, often with the wrong label and the wrong support. A report this long, on these conditions, cannot leave them out. That is not acceptable.

Read our response: https://nationalfasd.org.uk/mental-health-adhd-autism-review-ignores-fasd/

We’re delighted to share that the Royal College of Speech and Language Therapists’ new Policy Statement on FASD and Spee...
30/09/2026

We’re delighted to share that the Royal College of Speech and Language Therapists’ new Policy Statement on FASD and Speech and Language Therapy is now live.

National FASD was pleased to support the development of this important statement alongside the FASD UK Alliance, which highlights the speech, language and communication needs of people with FASD and the vital role speech and language therapists can play in supporting them.

People with FASD deserve timely, strengths-based and informed support across their lives. This statement is an important step towards improving understanding, recognition and access to appropriate speech and language therapy.

Read the policy statement and find out more from RCSLT:

🔗Statement -https://www.rcslt.org/wp-content/uploads/2026/09/Policy-statement-on-FASD-and-SLT-September-2026.pdf

🔗 RCLST announcement -
https://www.rcslt.org/news/highlighting-the-speech-language-and-communication-needs-of-people-with-fasd/

You are not alone.FASD affects an estimated 2–4% of people in the UK, and support is available from people who understan...
30/09/2026

You are not alone.

FASD affects an estimated 2–4% of people in the UK, and support is available from people who understand. Across the country FASD support groups offer connection, shared experience and community.

Find a group near you at www.FASDukalliance.info

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National FASD, The Priory, High Street
Ware
SG129AL

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