Ataxia-Telangiectasia A-T Society

Ataxia-Telangiectasia A-T Society Ataxia-Telangiectasia in the UK Welcome to the AT Society page! There is no cure or treatment available at present. Charity No: 1105528

This is a place for people with AT, their friends, families, and anyone interested in the Society, to chat, share stories, news, pictures, plus plan and announce upcoming AT Society events and fundraising ideas. Ataxia-Telangiectasia (“AT”) is a complex genetic disease which affects many parts of the body and causes severe disability. The symptoms include lack of balance, slurred speech and perha

ps a more than normal number of infections. The AT Society is a small national charity unique to the UK in the services it offers families. Since its foundation in 1989, the Society’s objective has been to alleviate the distress and suffering caused by AT. The AT Society provides support services for families, funds research and specialist AT clinics, and helps raise awareness. Join the AT Society group to show your support! For more information visit the website www.atsociety.org.uk or call the Society direct on +44 (0) 1582 760733
--------------------------------------------------------------
AT Society - Awareness Research Care
Reg.

18/06/2026

🌟 Huge congratulations and an even bigger thank you to our incredible runners, Katie and Teresa! 🌟

You both absolutely smashed the @ on Sunday - what an achievement. Your hard work, determination and brilliant fundraising have made a real difference for the AT Society!

If this has inspired you and you’d like to take part in next year’s event on Sunday 13th June, we’d love to have you on the team. Just get in touch with Sally at [email protected] to find out more.

Thank you again, Katie and Teresa — you’re stars ⭐

17/06/2026

💙 A MASSIVE Thank You to Our Volunteers!

What an incredible day! A huge shout‑out to every single one of our amazing volunteers who supported us at the on Sunday - you handed out too many ice lollies to count to all the fantastic runners, keeping spirits high and smiles wide. Your energy, kindness and teamwork made the day unforgettable. We appreciate you more than you know.

If you’d like to join our volunteer crew for 2027, we’d love to have you with us.
Email [email protected] to get involved.

17/06/2026

The World Cup is here, and so is our World Cup Virtual Raffle!

Running from 11 June to 20 July, you can win fantastic football‑themed prizes while helping raise vital funds for the AT Society and the families we support.

Get involved, show your support, and good luck to everyone taking part!
https://atsociety.org.uk/events/world-cup-raffle/

DONATIONS DOUBLED!! 22–29 June We’re taking part in the Big Give Small Charity Week. For one week only, every pound dona...
16/06/2026

DONATIONS DOUBLED!! 22–29 June

We’re taking part in the Big Give Small Charity Week. For one week only, every pound donated will be match funded - helping us drive forward research while supporting children, young people and families living with AT.

📅 Save the date: 22–29 June
Every £1 becomes £2 💜
Your support changes lives and accelerates research💜

16/06/2026

Behind every number is a story.
Today’s AGM and Trustees’ Meeting brought those stories into focus.

From research funding to specialist support, advocacy, and community events, every statistic represents real people whose lives are changed by the AT Society.

Thank you to our trustees, staff and supporters for helping us keep moving forward.

15/06/2026

🎶🎸A huge thank you to Mike Hodge, our fantastic Harpenden Busker, for filling Friday evening with music, nostalgia, and brilliant energy. His relaxed sing‑along of 60s and 70s favourites had everyone smiling and joining in. 🎵

It was also wonderful to see so many of you there, creating such a warm and friendly atmosphere throughout the night.

Thanks to your generosity - and Mike’s incredible effort - over £2,000 was raised in support of our work. A truly amazing result.

Thank you also to Lyndhurst Financial Management for sponsoring this event.

12/06/2026

The World Cup is ON - and so is our World Cup Virtual Raffle! ⚽🔥
We’re celebrating the beautiful game with amazing prizes and raising vital funds for the AT Society.

Feeling lucky? Feeling competitive? Feeling football‑mad?
Kick off your entry today and support an incredible cause.

🎟️ Get your tickets: https://atsociety.org.uk/events/world-cup-raffle/

Good luck to our fantastic runners taking on the St Albans Half Marathon this Sunday - you’ve got this! 💙💪We’ll be there...
12/06/2026

Good luck to our fantastic runners taking on the St Albans Half Marathon this Sunday - you’ve got this! 💙💪
We’ll be there cheering you on all the way!

Wishing Lizzie the very best of luck as she takes on the Cotswold Way Ultra Challenge this weekend. 💙Jogging, walking an...
11/06/2026

Wishing Lizzie the very best of luck as she takes on the Cotswold Way Ultra Challenge this weekend. 💙
Jogging, walking and running up to 100km in one go is an incredible undertaking, and doing it to support the AT Society makes it even more special. 🏃‍♀️✨

Lizzie, you’re taking on this challenge in memory of your lovely friend Rachel Ferguson, and that motivation will stay with you throughout the journey. 💛

If you would like to sponsor Lizzie, click here https://www.justgiving.com/page/elizabeth-hughes-2

We’re all behind you. 💪💙

The World Cup is ON - and so is our World Cup Virtual Raffle! ⚽🔥Running 11 June–20 July, featuring brilliant football‑t...
11/06/2026

The World Cup is ON - and so is our World Cup Virtual Raffle! ⚽🔥
Running 11 June–20 July, featuring brilliant football‑themed prizes:

>Football Legend Alan Shearer Signed Football
>Fulham FC 2021/22 Collectors’ Shirt Set - modelled beautifully by AT Bear! 🐻⚽
>Two Bolton Wanderers 2026/27 Home Game Tickets
>Jellycat Amuseables Football
>Signed Youssef Chermiti Photo (Glasgow Rangers)

All in support of the AT Society.

Kick off your entry today!
Get your tickets https://atsociety.org.uk/events/world-cup-raffle/

Address

Unit 54, Thrales End Business Centre, Thrales End Lane
Harpenden
AL53NS

Telephone

+441582760733

Website

Alerts

Be the first to know and let us send you an email when Ataxia-Telangiectasia A-T Society posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organisation

Send a message to Ataxia-Telangiectasia A-T Society:

Shortcuts

Share

Category