Ataxia-Telangiectasia A-T Society

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Ataxia-Telangiectasia A-T Society

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Ataxia-Telangiectasia in the UK Welcome to the AT Society page! There is no cure or treatment available at present. Charity No: 1105528

This is a place for people with AT, their friends, families, and anyone interested in the Society, to chat, share stories, news, pictures, plus plan and announce upcoming AT Society events and fundraising ideas. Ataxia-Telangiectasia (“AT”) is a complex genetic disease which affects many parts of the body and causes severe disability. The symptoms include lack of balance, slurred speech and perhaps a more than normal number of infections. The AT Society is a small national charity unique to the UK in the services it offers families. Since its foundation in 1989, the Society’s objective has been to alleviate the distress and suffering caused by AT. The AT Society provides support services for families, funds research and specialist AT clinics, and helps raise awareness. Join the AT Society group to show your support! For more information visit the website www.atsociety.org.uk or call the Society direct on +44 (0) 1582 760733
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AT Society - Awareness Research Care
Reg.

09/11/2026

📱 Stay connected with the AT Society on WhatsApp!

We've launched an AT Society WhatsApp Channel for anyone who would like to receive charity news and updates straight to their phone.

You'll hear about upcoming events, fundraising opportunities, research news, awareness campaigns and more.

Most importantly, it's not a group chat. Our channel works as a one-way broadcast, so you won't receive messages from other followers, and your phone number and details aren't visible to others. It's simply an easy way to receive updates from us when they matter, with no conversations to keep up with.

We'll continue to share news and updates through our website, emails and social media as usual. Our WhatsApp Channel is simply another way to stay connected for those who prefer getting updates directly through WhatsApp.

We're excited to grow our WhatsApp community and bring the latest AT Society news straight to your phone.

👉 Click the link below and select Follow to join: https://whatsapp.com/channel/0029VbA2XYLEQIakCtArW01W

07/11/2026

🎟️ WIN BIG THIS WINTER! 🎟️

Our Winter Raffle is back! For just £1 a ticket, you could win £500 cash in time for Christmas, plus a fantastic range of donated prizes including family breaks, theatre trips, afternoon tea, hampers and more! ✨

Every ticket helps fund vital support, research and care for people affected by AT.

📅 Draw Date: 11 December 2026
🎟️ Tickets: £1 each

👉 Enter now: https://atsociety.org.uk/events/winter-raffle/

06/11/2026

🧑‍🎄We're delighted that our Director of Fundraising and Operations, Susie, will be taking part in Santa In The City, the iconic festive fun run. Each year, thousands of Santas take to the streets of London, choosing between a 3km or 5km walk or run and creating a sea of red hats and Christmas cheer along the way.

Are you a seasoned runner, a keen walker, or simply looking for a fun festive challenge? we'd love for you to join Susie and be part of Team AT Society.

Every step taken and every pound raised will help us continue supporting families affected by ataxia telangiectasia and funding vital research into this rare condition.

Ready to don your Santa suit and make a difference? Join Team AT Society and help spread some festive cheer while supporting an important cause.
Email [email protected] for more info.

👉https://atsociety.org.uk/events/16349/

06/11/2026

🎄✨ A Wonderful Christmas Concert ✨🎄
Join us on the 3rd December at St John's Church, Harpenden for an uplifting evening of festive singing, community spirit, mulled w**e, mince pies, and Christmas cheer.

🎟️ Adults £12 in advance
🔗 Book here: https://atsociety.org.uk/events/concert-2/

05/11/2026

We're excited to launch our new partnership with Mumford's Not Just Travel, a wonderful mother-and-daughter travel team who have chosen the AT Society as their Charity of the Year. 💙

Whether you're planning an accessible holiday, a family getaway, a cruise or the trip of a lifetime, booking through our dedicated travel page means that 10% of the commission earned from your holiday booking will be donated to the AT Society at no extra cost to you.

So, your next adventure could help support children and families affected by ataxia telangiectasia.

Thank you, Mumford's Not Just Travel, for your generosity and support.

✈️ Start planning your next trip and help make a difference - just click on the link: https://atsociety.org.uk/support-us/mumfords-not-just-travel/

04/11/2026

From forgotten goggles to a fantastic finish! 🏊‍♂️ A huge congratulations to James Hart, who completed the 10K Marathon Swim Challenge at the London Aquatics Centre in an impressive 3 hours and 48 minutes while raising funds for the AT Society.

Despite a pre-race panic when he realised he'd left his swimming goggles behind, James pushed through 10 kilometres and even stayed afterwards to volunteer and support fellow participants.

Thank you, James, for your incredible effort and to everyone who has donated and supported him along the way. 💙

Inspired by James's achievement? Why not take the plunge yourself! 🏊‍♀️🏊‍♂️ Contact Sally to find out how you can get involved in a swim challenge and support the AT Society while taking on a personal goal.

03/11/2026

💡 Top Tip Time!

A big thank you to Ian for sharing this helpful tip with the AT community. It's often the little ideas that can make a big difference day to day.
https://www.geberit.co.uk/bathroom-products

Have a tip of your own? We'd love to hear it! Submit your suggestion using our quick online form, and you could be featured in a future Top Tip post.

🔗 https://atsociety.org.uk/tips/

01/11/2026

🌟 Could you be a future leader? 🌟

Applications are now open for the BBC Children in Need Youth Leadership Programme 2027-2028!

If you're aged 14-17, involved in making a difference in your community, and want to build your confidence, leadership skills and influence change, this could be for you.

✅ Free to take part
✅ Meet young people from across the UK
✅ Residentials, events and 1:1 support
✅ Help shape the future of BBC Children in Need

📅 Applications close 15 November 2026

Find out more and apply: atsociety.org.uk/bbc-children-in-need-youth-leadership-programme-2027-2028/

30/10/2026

🔬💗 Exciting News! Our Latest AT Research Study Is Underway!

We're delighted to announce the start of the Precision AT study, an exciting new research project that the AT Society are co-funding with Action for A-T, aefat, BrAshA-T Ataxia-Telangiectasia
The Precision AT study could help develop more effective and longer-lasting personalised treatments for more children with AT by targeting a wider range of changes in the ATM gene.
🔗 Find out more about the Precision AT project: https://atsociety.org.uk/research/research-we-support-2/

Hope is where it’s AT 💗

Address

Unit 54, Thrales End Business Centre, Thrales End Lane
Harpenden
AL53NS

Telephone

+441582760733

Website

http://www.atsociety.org.uk/

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