Kennedy's Disease UK

16/06/2026

If you’re new here, this video explains the basics of Kennedy’s Disease and the impact it has on those living with it and their families.

Knowledge is the first step toward awareness, support, and change. ✨

👉 Watch and learn more today.

https://www.youtube.com/watch?v=gcIO-wkW8ho

Our vision is a world free from motor neurone disease. Join the fig...

13/06/2026

Every step matters, every moment counts, and progress looks different for everyone. For those living with Kennedy’s Disease, we celebrate strength, resilience, and the courage to keep moving forward at your own pace. ✨

07/06/2026

We’re calling on our amazing supporters to lace up and run The Big Half in support of Kennedy’s Disease. 🌍✨

Every mile you run helps raise vital funds and awareness for those living with KD - turning your challenge into real impact.

👉 Join Team KDUK and run for a cause that matters.

04/06/2026

We have dedicated pages designed to help you understand Kennedy’s Disease - including symptoms, research updates, and support information. 📚✨

👉 Visit our website to explore and learn more today.

01/06/2026

Colin is living with Kennedy’s disease and aged 72. His wife Georgina is his main carer. Colin self-diagnosed in 1998 as he was already aware of Kennedy’s disease being in the family. Colin focuses on mental health, “But today is the only day that counts…Yesterday’s gone. Tomorrow if it gets here…Live for today. Plan for tomorrow. But live today.”

https://www.mndassociation.org/support-and-information/health-and-social-care-services/mnd-views/colin-and-georginas-views

29/05/2026

John, KDA’s Treasurer, was recently featured on For The Love of Boomers, a YouTube channel created by John Frantz, author of the For The Love of the Baby Boomer book collection of short stories, essays and poems.

In his interview, John shares his story of adapting to Kennedy’s Disease. It's a powerful reminder that even in the face of change, there is strength, resilience, and hope.

Watch it here:
https://www.youtube.com/watch?v=Fbr12Foxcpg

26/05/2026

Every contribution, no matter the size, helps make a real difference to the Kennedy’s Disease community. From funding vital research to supporting families, your kindness creates lasting impact. ✨

Together, small acts of generosity lead to big change.

https://kduk.enthuse.com/ #!/

23/05/2026

🏃‍♀️🏃‍♂️💙 Run The Big Half for KDUK!

We’re looking for amazing supporters to take on The Big Half and run to help raise vital funds and awareness for Kennedy’s Disease. 🌍✨

Whether you’re an experienced runner or taking on your first challenge, your miles can make a real difference to our community.

👉 Join our team and fundraise for KDUK today!

20/05/2026

📣 Our 3rd International Newsletter is now live!

We’re excited to share the latest updates, research news, and everything happening across the Kennedy’s Disease community worldwide. 🌍✨

👉 Head to our website to read it now!
https://kd-uk.com/international-newsletter-for-kennedys-disease/

We are delighted to share the third edition of our International Newsletter for Kennedy’s Disease.