Max On A Mission

22/10/2020

To all you beautiful mums and dads out there, I’m sure we all have people in our lives that can handle the big book.
We all need to let one or two in.
Our love is definite but our emotional strength is human.
Love to all. 🤗🤗❤️❤️

Truth!

27/08/2020

Look what arrived today for Max!👩🏼‍🦼👌🏻✅

Safe to say we are so excited to see what this chair opens up for him👏🏼💪🏼!

The look on his face when he drove off was priceless and to know he will be able to access his school, community and recreational activities with so much independence is what it is all about♿️👍🏼!

Looks like we will be chasing him now🤣😍👌🏻

16/08/2020

On this day 3 years ago I set out on a journey with 2 brother in laws, 3 child hood mates and 5 new friends with 6 year old max and his mate Gus.
What we didn't know was how that journey would change the lives of so many children and their families that are living with physical disabilities.
Our aim was to raise awareness and funds to conduct a trial on the benefits of intensive physical therapy for improving mobility and mental health in children with physical disabilities. (Including Cerebral Palsy)
Since this journey the average hours of physical therapy included in our children NDIS plans increased up to 500%.
We have not stopped and will continue to ensure all children are receiving appropriate hours of therapy to improve their lives.
This journey is still one of the greatest things I have ever done.
Thanks heaps
The Peter Condon Claire Eldridge Nelly Joseph Adam Troy Mason MathewGee Greg Smalley Lauren Gillett Stuart Zurrer Les Tyack Christopher Geurts Claire Geurts Shearman Shears Micky

https://youtu.be/ZQC4sV_7MU8

Max On A Mission Kokoda. The heart warming father and son team conquering Kokoda for Cerebral Palsy Trial.

17/06/2020

Autism is:
Unable to speak, or maybe speaking too much
Hugging everyone, or disliking touch
Escaping outside,
Or trying to hide
Excitedly flapping
Inappropriate clapping
Autism varies so much

Won't wear a coat, or wears one all year round
Fussy eater, or would eat dirt from the ground
Screaming or humming
Annoyingly drumming
Toys in a line
The same way every time
Autism varies so much

Struggling to learn, or has wonderful gifts
Obsessions of numbers, trains, films or lifts
Spinning around
Throws things on the ground
Constantly spitting
Aggressively hitting
Autism varies so much

Alone without friends, or controls every game
Always looks different, always dresses the same
Swinging on doors
Head banging on floors
Freaks at the dryer
Keeps climbing higher
Autism varies so much.

Can't answer questions, won't do as they're told
In their own world or bossy and bold
Over prepared
Anxious and scared
A spectrum so wide
But they all bring us pride
When autism touches our lives.

I support autism awareness 🥰

❤️🧡💛💚💙💜

Support, ask questions rather than talk behind our back, don’t stare, judge or ridicule, its genuine, and can’t be helped. Support is welcomed, this could be any child, any parents daily struggle, but understanding and patience is a virtue . I support autism awareness... always 💕❤💕

09/06/2020

If anyone is looking for an upcoming intensive, make sure you get in quick with our friends at Bright Start! 💪🏼💙

03/06/2020

Love this!

26/05/2020

19/05/2020

To all you beautiful OT’s out there looking for a change please give the Bright Start Therapy Team a call.
As you all know Zoe Quinn and Brooke Whittaker now through our media campaigns, our successful trial and most importantly all the amazing gains all our beautiful children have achieved.
I look forward to seeing your smiling face in the village.
🤗🤗🤗

10/05/2020

Happy Mother’s Day! ❤️❤️

Happy Mother’s Day to all you beautiful mums out there giving your children your all! ❤️🤗
From our Max On A Mission team we appreciate and support you.
🙌🙌🙌

10/05/2020

Happy Mother’s Day to all you beautiful mums out there giving your children your all! ❤️🤗
From our Max On A Mission team we appreciate and support you.
🙌🙌🙌

27/04/2020

5km per day on the beach! 🙌🙌🙌
This kid is next level! Every lesson in home schooling he asks.
“Is it time for a ride yet!” ❤️
“I wanna hit 6k’s”

This would not be a possibility if intensive therapy was not introduced to our family.

Thankyou to Bright Start Therapy Greg Hunt MP and NDIS National Disability Insurance Scheme

Our children now have a brighter future.
🙌❤️🤗

22/04/2020

Day 10 people!!!
Feel free to inbox us your vids and I can post different families and individuals each day.

Stay safe and healthy. ❤️🙏😊🧘‍♂️

Shears Micky Claire Geurts Shearman

13/04/2020

DAY 1!!! 🤩
Angel joining in on the fun! 😻
50 day Burpee Challenge 🙌

13/04/2020

DAY 1!!! 👊

Max’s choice of exercise is a squat. 💪

Good luck everyone 🙌

11/04/2020

Burpee challenge for sanity and wellbeing!!🙌
During our fundraising efforts we ran a 100 day burpee challenge. Now lets do one for fun and our personal wellbeing.
50 Day burpee challenge. It’s simple and really challenging.
Day 1 = 1 burpee
Day 2 = 2 burpees
Day 3 = 3 burpees
Day 4 I think you get the drift.
Send your videos here for everyone to see for motivation.
Starting on Monday 13/4 and then on the 1st of June it will be 50 burpees together.
Please post your 50 here on MOAM. 👌
I think you will find this really challenging and fun. Get the kids involved. If like Max a burpee is difficult try a sit up or something that will challenge you. 💪
To all the surfers watch your pop up improve. 🏄‍♂️
Post challenge accepted if you are taking part. 🙌

Great way to work all the chocolate off!

HAPPY EASTER EVERYONE.
STAY HAPPY AND SAFE! ❤️🙏🐣🤗

05/04/2020

Max and his amazing therapist/bestie! Zoe Quinn you are a game changer! Thank you so much for making therapy fun and helping Max achieve so so many goals that were thought impossible 🤗💕😍🙏🥳

02/04/2020

In a time where we all feel helpless and there is so much uncertainty, we need to focus what we can control and not feed the anxiety of what we can’t!

So this week we went back to therapy because it is an ESSENTIAL service and while the world is in the middle of a pandemic, Max’s life still needs to move forward and therapy in a clinical environment is a big part of that progression!

So Max and Zoe are back to what they do best and he is just loving that his ‘normal’ is back!

Working hard on some life tough skills for the next two weeks, these two are already making some incredible gains!

And what I love most is that no matter how dark the world looks, the right people always know how to make it shine bright!

Max turned 9 this week and he still got to celebrate with his friend!

So glad to be back into our intensives! Stay Tuned!

06/03/2020

PIASTM 🙌
Thank you Dr. Kanu Kaushik KPI for helping Max this week! I am blown away!!!
For those of you who don’t know Max personally all these positions were not achievable last week. His flexibility now is insane!
His stand position without AFO’s prior was on tippy toes, crouched at the knees and a little hunched over.
Max’s comment.
‘My body just feels lighter and freer!’ 🙌
What a great new find to combine with Therasuit.
If any therapist is interested in learning how to please let us know.
If anyone is interested in a session in Melbourne let us know.


🥰🥰🥰🥰🥰🥰🥰

05/03/2020

Fabulous to see that Stem Cells for the Brain are a topic for Australia. 🙌
We need to do more!
So many Australian families travelling internationally for Expensive and risky therapy for their children when we can be providing this therapy in Australia in a safe environment.
Stem Cell Therapy is the way of the future let’s not wait another 20 years!

02/03/2020

Today was the first day of a new Intensive Therapy from India.
This rotation in Max’s left arm is a first! So supple 🙌. It’s like his spasticity disappeared without surgery 😳
Working with the fascia is definitely more suitable to our beliefs about the human body thanks to Sarah Mackay Wiggers. 🙏
We will keep you posted on how the week goes. I’m tipping it will be step by step. 😉

23/02/2020

This has been a long term goal - absolutely smashed with the amazing Bright Start Therapy. Zoe Quinn. ❤️❤️❤️
A simple task that most 8 year old kids take for granted.
‘To pick up an object from the ground without falling over’ 🙏👊👍❤️
If you don’t have a disability try to imagine that being difficult and a life goal!
I don’t need to say how pumped Max was to achieve this goal.
My Rock Star!!!!! Proud, proud Mumma and Papa bear.
🥰🥰🥰🥰👏👏👏👏🤗🤗🤗🤗❤️❤️❤️❤️

15/02/2020

Technology at its finest!!! 😳🥰
Love the world we live in and beautiful scientists to create such a device for our children and adults with physical disabilities. 🙌🙌🤗🤗❤️❤️

06/02/2020

WHAT WE HAVE IS MORE IMPORTANT THAN WHAT WE DONT HAVE!

❤️🙌❤️

28/01/2020

Thank you The Project. 🤗
For those who missed it tonight.
Oh what a journey. Thank you to everyone involved in helping our beautiful children with physical disabilities.
I’m looking forward to meeting you Stuart Robert MP. It’s time!

https://www.facebook.com/170633049728000/posts/1760125674112055/?d=n

Six years ago we introduced you to Max Shearman; a toddler who doctors weren't sure would ever be able to walk. A whole lot of love and dedication has helped the now 9-year-old defy the odds - but his parents have a new fight on their hands.

28/01/2020

Just incase you missed it live, here is the follow up story on our Mr Max on a Mission 🙌🏻🎥

Six years ago we introduced you to Max Shearman; a toddler who doctors weren't sure would ever be able to walk. A whole lot of love and dedication has helped the now 9-year-old defy the odds - but his parents have a new fight on their hands.

28/01/2020

Here is a little grab for tonight! 🙌
Max is so excited! 🤗
6:30pm tonight.
The Project
Channel Ten

https://spaces.hightail.com/receive/Je5DLxjFFO

Powered by Hightail

27/01/2020

In 2014, Chanel Ten’s The Project🎥 came to spend a day in the life with our little 2 year old Max👦🏼, the surfer boy🏄🏼‍♂️!

With our family’s love of surfing🏄🏽‍♀️🏄🏼🏄🏼‍♂️ there was no way our little go getter would sit on the sidelines👊🏻! So Mick and his friend Jase - created a surf board adaption that would allow Max to sit and surf right there with him😎💪🏼

The Project showcased 🗣our story to show Australia📺 🇦🇺 that with a little bit of creativity, we can break down barriers to prove that living with CP, doesn’t have to stop you from being able to do the things you love🙌🏻💓!

Now 6 years later, they have come for a follow up story and safe to say ALOT has happened in 6 six years for Max since the introduction of intensive therapy🤛🏼🏋🏼‍♂️🏋🏼!

So we now we have another story to showcase🗣 and the follow up story will air to TV tomorrow night on the Project Tuesday 28th January at 7pm👀📺!

Check out the original story from 2014👇🏻 - we forget just how little he was😭 and just how far our boy has come😍👊🏻!

Here’s to breaking down barriers and proof intensive therapy is the way of the future😎🙌🏻🙌🏻!

20/01/2020

These ladies are Maxi’s therapists and for anyone who is considering or actively looking for available intensive therapies - take a look!

We know in the current situation, it is extremely frustrating knocking on every therapy door to a wait list, so we want to ensure when availability comes along we can assist as many families as we can to access it!

Maxi loves his therapists, his therapists love him and the work they do together is why we keep fighting for it everyday!

20/01/2020

Max On A Mission are running again in Rosebud’s Australia Day Fun Run! 🙌
Anyone who would like to join us in 5kms please let us know. MOAM T-Shirts or Singlets available.
We have enjoyed this run for the past 4 years. Mick pushing Max in a chair most of the way and Max completing by himself unaided. His distance unaided has been increasing every year.
Champion! 🙌🙌🙌 🏃‍♀️ 🏃‍♂️🏃‍♀️ 🇦🇺 🇦🇺 🇦🇺

19/01/2020

I love this beautiful woman! ❤️❤️❤️

17/01/2020

What an emotional day! 😢
Max and Angel have been really disturbed by the fires as the whole world is!
We decided to go to the state park behind Clifton Creek to leave food for any surviving animals.
The silence was so eerie!
The most beautiful thing happened though. Once we threw out all the fodder we saw all these bugs and ants appearing carrying the food back to their colony, and just as we were admiring this we heard 2 birds start to sing to each other.
The joy and excitement in the children was overwhelming. They did their bit to restore Mother Nature.

02/01/2020

Fun at the skate park.
Fairy skater and 8 wheeler.
Summer Fun. 🤗❤️🙌

15/12/2019

What is inclusion? 🤔
Is it always making it possible for our children with disabilities to do the same as their peers, which often becomes to difficult or is it going the extra mile to be creative and find something to help them have fun and give them a role in the activity that they can excel in or even just feel part of the bigger picture. 🤔
Max had his school ‘Colour Run’ on Friday.
He was extremely excited about it until he saw it was an obstacle course. Great initiative by the school but not so great for Max.
‘I’m happy to just watch my mates mum’ Max said when he saw the grade 6 kids complete the course. 😢
I had to think quick as my heart sunk for him.
Then I noticed it was the teachers throwing the colour and shooting the water.
‘Max do you want to be a sniper?’ 🔫
Max beamed and had the time of his life! 🙏
There is always a way our kids can have just as much fun, it’s up to us parents to think quick, be creative and know our children.
Please share your stories so we can all help each other be creative. 🤗🤗

06/12/2019

.... and what a successful trial it was.
🙌🙏🤗👏💪
Thank you to all involved! 🙏😍

Max On A Mission - Heal The World

25/11/2019

Omg!
Beautiful people in this world have the ability to change a persons perception of life.
Stand up all you Beautiful people. ❤️❤️❤️

06/11/2019

A MUST READ!!!! 🙌🙌🙌
This is now Case Law!
What a fight this family has made.
NDIS will now listen to therapists recommendations.

Have the NDIS given you fewer therapeutic supports than your allied health professionals have recommended?

You're not alone, but one family fought through the AAT, and won the Reasonable and Necessary supports recommended by their therapists...

Here's an official statement from one young man's mother, though Villamanta Disability Rights Legal Service, who do great work!

"Castledine and National Disability Insurance Agency
October 18, 2019

A recent AAT decision has confirmed:

That reports by qualified therapists who have interacted with the participant are better evidence of reasonable and necessary supports than a number of hours allocated by the NDIA; and
That practice coaching which is “specifically aimed at building the capacity of (the participant’s) support staff so they may provide their support care for him in an informed and consistent way to improve (his) ability to ….. “co-regulate” his emotions and to minimise his behaviours of concern may be a reasonable and necessary support.
That in some instances the AAT will find that funding ALL the participant’s travel is reasonable and necessary.
The matter was run by Nive Achuthan of Victoria Legal Aid, and the decision can be read in full here: http://www8.austlii.edu.au/cgi-bin/viewdoc/au/cases/cth/AATA/2019/4240.html

Jake Castledine was the applicant in this matter, and his mother Janice has this to say today:

“We are extremely pleased about what this AAT decision means for Jake and for other NDIS participants with complex support needs.

Moving over to the NDIS was meant to save us from the old
underfunded system which made it impossible for Jake to have a good life. But instead, we have been forced into a three-year fight in review after review, formal complaints, and endless report-writing, while Jake’s progress towards adult life stalled.

We truly admire the tenacity of Victoria Legal Aid and Villamanta Disability Rights Legal Service, who together produced such a strong legal case, and VALID who contributed hundreds of advocacy hours from the very first NDIS planning meeting in 2016, all the way through the AAT process. We also want to thank Jake’s allied health therapists and support team, whose credibility and professionalism was tested by the NDIA’s legal team – we couldn’t have done it without you.

We know that many participants with complex support needs
are not getting what they need from the NDIS. We hope that this AAT decision gives hope to people in similar situations, and can pave the way for all NDIS
participants to have truly individualised supports. “ "

http://www8.austlii.edu.au/cgi-bin/sign.cgi/au/cases/cth/AATA/2019/4240

28/10/2019

Hi all.
If you missed this on Saturday night here is the Podcast!
Not only did our amazing team speak, we heard other researchers exploring more amazing studies in early detection and Stem Cell Therapy.
Our new Mission!!!! To help these academics research non related match trials!!!
Watch this space.
🤗🤗🤗
Cerebral Palsy - A Brighter Future. ❤️
Zoe Quinn Tim Moss Josie Palancian Greg Hunt MP Stuart Robert MP Shears Micky Claire Geurts Shearman Claire Galea

https://www.3aw.com.au/talking-health/

Each week Dr Sally Cockburn brings you leading health experts to demystify medical topics.

26/10/2019

Please share your story. 🙌
We love to hear how the hours are rolling out for our beautiful children.
If you are having any trouble with your planner please reach out and share your story too.
We are here to help.
❤️❤️❤️❤️
Greg Hunt MP
Stuart Robert MP

//SHARE SHARE SHARE//

300 THERAPY HOURS FROM THE NDIS

I would like to share some INCREDIBLE NDIS news from Chrissy - James’ mum.... for those who are new to this page, James is a 5 years old boy with quadriplegic cerebral palsy GMFCS 3. James has just received over 300 therapy hours from the NDIS 🍾🍾🍾

>>The NDIS (national disability insurance scheme) came to our area early this year. We were mostly excited and hopeful as we had been doing over 260 hours of therapy with James per year so the prospect of having it all covered by the NDIS was very exciting for our family. We presented his case to the planner and outlined all the intensive therapy he was doing with reports and PROOF that it was working. We were devastated to receive just 67 hours of therapy in his plan 😥.

We appealed this decision and 15 weeks after submitting the appeal (all his funding was gone by this time) we got the answer we had been dreaming of. Not only was he approved for the 260 hours we had requested.... they really saw and understood the benefit this would have for James in the long run so they gave him ...... 312 hours ...... of therapy for the year.

This feels like the biggest win EVER!! I burst into tears in the office when they told me. Not only were the NDIS giving us what we had asked for but it felt like they were really placing a high value on it.

Their feedback to me was “we are so glad you appealed the initial decision because we can see this is what’s best for James” 😱

I know lots of others families are struggling to get the supports they need for their children and when it comes to therapy one size does not fit all. Please share this far and wide to give hope to those that are still fighting for the therapy hours their children need!! It CAN be achieved!! It IS possibly!! We had no ministerial input!! The fight seriously almost broke me but it was so worth it in the end!! I know you will all still celebrate with us even while you continue to fight!!
💗Chrissy

26/10/2019

Tune in tonight to hear these amazing people talk to Sally Cockburn at 6pm.
3AW Melbourne - 693AM
Cerebral Palsy- A Brighter Future.
Shears Micky Josie Palancian Tim Moss Zoe Quinn Claire Geurts Shearman Ritchie Center
🙌🙌❤️❤️🤗🤗