CarsonStrong Foundation

CarsonStrong Foundation Positively impacting children and their families facing a life-threatening diagnosis After taking part in an experimental protocol at St.

The CarsonStrong Foundation is a 501(c)(3) organization that enhances the quality of life for children facing cancer and other life challenges by funding programs that provide therapeutic, medical, and educational opportunities. The Higgins family founded the CarsonStrong Foundation in 2017, one year after losing their son and brother to cancer. Carson Higgins was first diagnosed with Stage 4 neur

oblastoma at the age of three. Jude Children’s Research Hospital, Carson miraculously exhibited no signs of cancer. On Thanksgiving 2015, the cancer returned. This time, it was terminal. Carson passed away with his family, on their Trip Of A Lifetime, in 2016 at the age of 12. Carson faced adversity with peace and grace. In his short life, he inspired so many to be kind and generous, regardless of the circumstances. He was always “paying it forward”, and it is in this spirit that the CarsonStrong Foundation was formed. Through the CarsonStrong Foundation, the Higgins family and CarsonStrong donors help families and children affected by cancer and other life challenges. They seek to bring comfort and hope to families who are facing the unimaginable, just as family, friends and community members supported the Higgins family in their time of need. The CarsonStrong Foundation relies on individual and corporate donations to pay it forward. With your help, we can bring hope to other families facing difficult and sometimes devastating life challenges. Together, we are .

Today marks the start of Childhood Cancer Awareness Month. 💛Childhood cancer affects far too many children and families,...
09/01/2026

Today marks the start of Childhood Cancer Awareness Month. 💛

Childhood cancer affects far too many children and families, and raising awareness helps bring their stories, needs, and strength to the forefront.

Share this post, start a conversation, and help spread awareness. Every action matters. 💛

Ten years ago today, we laid Carson to rest.It was a warm, sunny day in New York. Family gathered around the gravesite a...
08/26/2026

Ten years ago today, we laid Carson to rest.

It was a warm, sunny day in New York. Family gathered around the gravesite as the little boy who had filled every room with laughter, jokes, and endless energy was laid to rest. It was almost impossible to comprehend.

There is one moment none of us will ever forget—watching two parents and four brothers say their final goodbye.

No family should ever have to experience that.

And then, somehow, life kept moving.

Derek returned to school for his first year without his little brother. Garrett and Brett went back to school. Brendon and John returned to work. Debbie went home to a house that suddenly felt far too quiet. No more meals to cook for five boys. No more little footsteps or mischievous smiles.

The world expected life to continue, but nothing felt normal anymore.

How do you go back to living after burying your child?

The truth is, you never go back. You learn to carry them with you.

In the months that followed, a bright red cardinal began appearing outside the living room window. Day after day, it became a quiet source of comfort—a reminder that love doesn’t end when someone is gone.

Our faith reminded us that death is not the end. God promises a day with no more pain, tears, or goodbyes. That promise didn’t erase the grief, but it gave us something to hold onto.

As Carson’s first anniversary approached, we realized we could allow grief to define us, or we could turn that grief into purpose.

We chose purpose.

What began as unimaginable heartbreak became the CarsonStrong Foundation. Through our Gift of Time Together program, families facing cancer can step away from hospital rooms and treatment schedules to make memories together. We know firsthand that time together is life’s greatest gift.

Ten years later, we still miss Carson every single day. His absence is felt at every holiday, family gathering, and milestone.

But because of him, hundreds of families have been given time together they may not have otherwise had.

That is Carson’s legacy.

And we believe with all our hearts that God is still using his story to bring light into the lives of others.

Cancer takes so much. Energy. Peace. Normalcy. Time.What it shouldn’t take is the chance for a family to simply be toget...
08/21/2026

Cancer takes so much. Energy. Peace. Normalcy. Time.

What it shouldn’t take is the chance for a family to simply be together.

This summer, Kylie, a mom of two navigating breast cancer, stepped away from the weight of treatment for a few days with her family in a quiet cabin through our Gift of Time Together program.No appointments. No schedules. Just time to rest, reconnect, and be present with the people who matter most.

Afterward, she shared, “It was so relaxing. The kids are begging to go back… our hearts are so full. Saying thank you just isn’t enough.”That’s what this program is all about.

It’s not just a trip. It’s a chance to breathe. To laugh. To create moments that carry families through some of their hardest days.

And because of this community, we get to keep making that possible—for Kylie, and for so many others.

🎓 Carson Higgins Memorial Scholarship Spotlight: VictoriaCongratulations to Victoria, a 2026 graduate of Revere High Sch...
08/18/2026

🎓 Carson Higgins Memorial Scholarship Spotlight: Victoria

Congratulations to Victoria, a 2026 graduate of Revere High School and recipient of the Carson Higgins Memorial Scholarship! 💙

Carson’s legacy lives on through students like Victoria, as we celebrate their accomplishments and support their journey toward the future.

Wishing Victoria a wonderful school year and all the best in what’s ahead! 🎓✨

Thank you so much to You Dew Youth Skincare LLCfor your continued support of the CarsonStrong Foundation through the sal...
08/14/2026

Thank you so much to You Dew Youth Skincare LLCfor your continued support of the CarsonStrong Foundation through the sale of “Trenton” lotion. 💛

We are incredibly grateful for your generosity and for helping keep Trenton’s memory and legacy alive while giving back to families affected by cancer.

Thank you for making a difference with us! 💛

Ten years. On August 11, 2016, at 9:03 in the morning, our son Carson Gene Higgins left this life and entered eternity. ...
08/11/2026

Ten years. On August 11, 2016, at 9:03 in the morning, our son Carson Gene Higgins left this life and entered eternity. Somehow, ten years feels impossible, and yet here we are.

There are moments when it feels like an entire lifetime has passed since I last heard his voice. Then there are moments when I can close my eyes, and he is right there. I can see the blue eyes, that smile, the quick wit, and the slightly mischievous look that usually meant he was about to say something that would make us all laugh. Grief does something strange to time.

I still miss him. I miss watching him read a book as though the rest of the world had disappeared. I miss the way he loved his brothers and the way they loved him. I miss watching him with Debbie and watching her watch over him. I miss hearing him call me Dad. I miss being the Higgins family of seven.

It would be easy on this anniversary to remember Carson primarily through cancer, but that would get his story terribly wrong. Cancer was something Carson had. It was never who Carson was, and he would not allow it to define him. He was a son, a brother, a friend, a reader, a Boy Scout, a Minecraft enthusiast, and a horseback rider. He was a kid with an extraordinary sense of humor and intellect, and a young man with remarkable humility and kindness.

Carson never seemed interested in being the center of the story. Even near the end of his life, he never wanted it to be about him. We were on what we called our Trip of a Lifetime, traveling through the Badlands, Mount Rushmore, Yellowstone, the Grand Tetons, Glacier, Alaska, the Pacific Northwest, and many places in between.

His doctors had told us that, barring a miracle, we were running out of time. I could see him getting tired and things becoming more difficult. Carson, however, wanted us focused on the trip, on his brothers, on what we were seeing, and on what we were doing together.

Along the way, National Park Rangers heard his story and fell in love with him. Many of them gave Carson their personal challenge coins, and he treasured them. He carried them everywhere in his St. Jude wallet.

Carson loved the idea of creating his own challenge coin, so he designed one using the things that mattered to him: St. Jude, his faith, Scouting, books, and Minecraft. Twelve stars were eventually added, one for each year of his life. We had it minted in his memory and sent the coins across the country to the Rangers who had made Carson’s last days special.

His faith continues to ripple outward too. When we told Carson his cancer was back, and he relapsed, he said, “God healed me once. If He wants to, He can do it again.”

Through all of it, he also maintained his sense of humor. One of my favorite memories came during his final hours. The night before Carson died, he needed to go to the children’s hospital in Las Vegas for blood, platelets, fluids, and the kinds of things that had simply become part of his life.

As Debbie, Garrett, and Carson left the hospital and drove back down the Las Vegas Strip around 2:30 in the morning, Carson looked at his mom and said, “Mom, did you ever think you’d let your twelve-year-old be on the Vegas Strip at 2:30 in the morning?”

Hours before he died, exhausted and after his body had been through more than most of us will experience in a lifetime, Carson was still making his mom and brother laugh. Cancer was winning its battle against his body, but it never got that part of him.

The morning of August 11 changed our lives forever. We awoke to the sound of Carson struggling and unconscious. We performed CPR, and paramedics arrived. At the hospital, doctors worked desperately to save him until eventually they told us there was nothing more they could do.

Then something happened that I will never forget. Brendon asked if we could pray. Our family gathered around Carson, and while we prayed, after more than an hour of CPR, his heart began beating again. His blood pressure returned. The doctor called it miraculous and told us he was a real fighter.

God gave him back to us; I believe it was a gift, and an opportunity to say goodbye and let him go.

For ten years, I have lived with the absence he left behind, but I have also lived with everything he left within us. I see Carson in his brothers. I see him in their compassion, their loyalty, their strength, and their willingness to put family first.

Ten years later, Carson would be twenty-two years old. What would Carson be doing today? I watched as life left my son, but I do not believe his light went out. I have watched that light continue in the lives he touched.

So today I will grieve, and I will celebrate. I will cry, and I will smile. I will remember that for twelve incredible years, I had the privilege of hearing him call me Dad.

Until I hear it again, happy ten years in Heaven, Gene Gene, my Jellybean. I love you, son. More than the ocean. More than the sky. More than words will ever be able to say.

– John, Carson’s Dad


Continue to our blog page to read John’s full reflection on Carson, ten years later.

https://carsonstrong.org/remembering-carson-10-years/

Due to an unexpected medical procedure, Dave “Bucket” Colwell recently underwent successful eye surgery. His doctors hav...
08/06/2026

Due to an unexpected medical procedure, Dave “Bucket” Colwell recently underwent successful eye surgery. His doctors have instructed him not to fly for approximately eight weeks to allow for a full recovery.

As a result, Rock Out for a Cause featuring Bad Co. Legacy with special guest Kinda Kinks starring The Rubinoos has been canceled and will not be rescheduled.

Anyone who purchased tickets through our GiveButter page will automatically receive a refund. If you purchased tickets through another outlet, please contact your original point of purchase regarding your ticket.

We sincerely appreciate your support and understanding. Please join us in wishing Dave a smooth and speedy recovery!

Running the Akron Marathon? Run with us! 🏃💙We're proud to be an official Blue Line Charity Partner for the Akron Maratho...
08/05/2026

Running the Akron Marathon? Run with us! 🏃💙

We're proud to be an official Blue Line Charity Partner for the Akron Marathon!
Every mile you run can help provide Gift of Time Together experiences for families facing cancer—creating meaningful moments and lasting memories when they matter most.

Whether you're chasing a PR or crossing your first finish line, make your miles count.
💙

Run with the CarsonStrong™ Foundation. Together, we can make every step make a difference.
https://raceroster.com/events/2026/113171/2026-firstenergy-akron-marathon-half-marathon-and-team-relay/fundraising-organization/85318

Recently, we had the privilege of sending 2-year-old Lainey and her family on a Gift of Time Together trip to Gatlinburg...
08/04/2026

Recently, we had the privilege of sending 2-year-old Lainey and her family on a Gift of Time Together trip to Gatlinburg, Tennessee.

Lainey is bravely fighting medulloblastoma, a battle no child should ever have to face. During their trip, they were able to step away from hospital rooms and appointments and simply focus on being a family and building new memories together.

They explored Ripley’s Aquarium, made new memories together, and soaked in the beauty of the Smoky Mountains.

One of the most meaningful moments of their journey was a beautiful family photoshoot in the mountains. Surrounded by breathtaking views, they captured something truly priceless moments.

When families are walking through unimaginable circumstances, creating memories becomes one of the most valuable gifts we can offer.

We are honored to have helped make this special trip possible and to have given Lainey’s family time to focus on what matters most.

Address

PO Box 2592
Stow, OH
44224

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