Prune Belly Syndrome Network -PBSN

Prune Belly Syndrome Network -PBSN Welcome to the Prune Belly Syndrome Network, Inc. page! www.prunebelly.org.

We are a 501(c)3 volunteer organization serving people who have prune belly syndrome (also known as Eagle-Barrett syndrome) and their families and friends.

The time is now. Time to lock in. If you are planning on attending this years convention the hotel will be closing out o...
05/30/2026

The time is now. Time to lock in. If you are planning on attending this years convention the hotel will be closing out our room block on Monday 6/1/26. After Monday rates will be at whatever their current rate is. Currently their regular rate is $202 a night. Don’t get caught at paying those prices.

Knowledge and Research are so important for all of us to continue growing , but it is the moments together that really matter. Get Registered Today. Make new memories reconnect with old families meet new ones .
The PBSN Annual Convention is in
📍 Columbus, Ohio
🗓 July 15–19, 2026

Join us for connection, education, support, and community with families who truly understand. This is more than a convention — it’s a place to be seen, heard, and counted.

👉 Register here: https://prunebellysyndromenetworkinc.camp9.org/event-6447585

✨ You’re not the only one. Come join us for laughter, friendship, and making unforgettable memories.


Prayers for sweet Carter today he traveled to Ohio for surgery with Dr. Baker little man  may you have a smooth surgery ...
05/29/2026

Prayers for sweet Carter today he traveled to Ohio for surgery with Dr. Baker little man may you have a smooth surgery and a speedy recovery. You have got that PBS spirt of strength and resilience.

Darius jr may have entered the teen club but you are never too old to have all your old pals there to join in the celebr...
05/24/2026

Darius jr may have entered the teen club but you are never too old to have all your old pals there to join in the celebration. Happy 13th Birthday to this all star on and off the court.

Congratulations to Miller Reade Jolliff on reaching such a huge milestone! Here’s to all the memories made and the excit...
05/24/2026

Congratulations to Miller Reade Jolliff on reaching such a huge milestone! Here’s to all the memories made and the exciting future ahead. Southside High School in Alabama headed to Florida for his next chapter in business at Florida State.

Just a boy and his dog. Today this boy is throwing out the  last of his 50s with some Yankee  baseball hopefully the rai...
05/23/2026

Just a boy and his dog. Today this boy is throwing out the last of his 50s with some Yankee baseball hopefully the rain holds out. Happy 59th Birthday to the guy who needs no introductions.

Graduation season is upon us message us your best pic of your graduate from preschool to college and everything in betwe...
05/21/2026

Graduation season is upon us message us your best pic of your graduate from preschool to college and everything in between so we can share their amazing accomplishment.

Congratulations to Owen, who won the citizenship award at his middle school award ceremony last night. High school is ri...
05/21/2026

Congratulations to Owen, who won the citizenship award at his middle school award ceremony last night. High school is right around the corner for this guy.

Cheers to 25 wishing Dominick a Happy quarter of a century today. Have a great day celebrating everything that makes you...
05/21/2026

Cheers to 25 wishing Dominick a Happy quarter of a century today. Have a great day celebrating everything that makes you you.

Address

PO Box 16071
Philadelphia, PA
19154

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