Prune Belly Syndrome Network -PBSN

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Prune Belly Syndrome Network -PBSN

Welcome to the Prune Belly Syndrome Network, Inc. page! www.prunebelly.org.

We are a 501(c)3 volunteer organization serving people who have prune belly syndrome (also known as Eagle-Barrett syndrome) and their families and friends.

08/21/2026

The cats out of the bag or in Charlie Browns case the dog is out of the bag. Snoopy shared Julie’s age with us Happy 52nd Birthday plus a day. We hope you enjoyed every minute of your birthday.

08/20/2026

Today we celebrate 15 years of you and all the joy, love, and unforgettable memories you left behind. We know you’re up there riding through the clouds, causing a little trouble, and smiling that beautiful smile.Happy Heavenly Birthday Tristan.

08/14/2026

Birthdays are best spent with the ones you love the most. Happy Birthday to this young man in Canada we hope you had a wonderful day celebrating you and you put that hammer down for the day. Wishing you a wonderful year ahead Richard.

08/12/2026

Keep swinging, climbing, laughing, and monkeying around.Happy 7th Birthday to Jep in North Carolina. We hope your day is bananas

08/07/2026

CJ would prefer to be back at the fiesta but instead he is back in the OR for number 52. Please keep this warrior in your thoughts and prayers for a successful surgery and a smooth recovery.

08/04/2026

Congratulations to survivor Blake and his beautiful bride Rachel and big brother Griffin. Welcome to the world little man. Miracles happen all the time. Say hello to Britten Todd team Boy for the win.

08/03/2026

Baby Lawler is here! Submit your guesses and we will update you later if it was a boy or girl.

07/28/2026

PBS FUTURE
Prune Belly Syndrome , Fertility , Understanding, Testing , and Uncovering Evidence.
Open to males 16-25 scan the QR code below and answer a few quick questions to determine eligibility. Moms let your teens answer these questions themselves.

07/23/2026

With heavy hearts, we share the passing of 19 y/o Dwayne.
For 19 years, Dwayne faced challenges that many will never fully understand. He fought with courage and strength for so long. His family has shared that he had simply grown tired of fighting and was ready to be at peace. While our hearts ache with this loss, we find comfort in knowing that Dwayne’s struggle is over and that he is finally resting. We will remember him for the life he lived, the people who loved him, and the impact he made on those around him.

Please join us in praying for Dwayne’s parents and twin sister, his extended family and friends during this incredibly difficult time. May God surround them with comfort, strength, and peace in this difficult time.
Fly high , Dwayne.

07/20/2026

Brian enjoyed his time in Philadelphia but it was time to travel back to Columbus where he made lots of new friends. Unfortunately, his friends couldn’t join him as they went to their new homes all across the country. Brian is making his new temporary home in North Carolina. Looks like it was a long car ride home yesterday for Brian and his pal Jep. Glad to see they could catch some zzzzs before Jep shares all of Brian’s new adventures.

Address

PO Box 16071
Philadelphia, PA
19154

Telephone

+18552757276

Website

http://www.prunebelly.org/

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