HDSA Texas Affiliate

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HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease and their families

10/27/2026

Join us on Thursday, November 12th at 11:00 AM ET for a community webinar on the PRECISE-HD Trial, a Phase 3 study evaluating pridopidine in Huntington’s disease.

Learn more about the PRECISE-HD study, what potential participation might involve, and where to find additional information.

The presentation will feature Nils Confer, PhD, Executive Medical Director at Prilenia, along with HDSA's own Tamara Maiuri, PhD, Associate Director of Research and Patient Engagement. Allison Bartlett, Esq., Senior Manager of Disability Programs; and MaryAnn Emerick, LMSW, Senior Manager of Youth & Community Services.

To learn more, and register, visit: https://hdsa-org.zoom.us/webinar/register/WN_j8aCveJNTxCk2yzQpJj5Zg #/registration

10/26/2026

Alnylam has shared early results from a trial of its huntingtin-lowering drug, now named brezosiran.

To read Alnylam’s letter to the community, visit:https://hdsa.org/wp-content/uploads/2026/10/EHDN-Summary-for-PAE_Final_21Oct2026.pdf and, to read the full press release, visit: https://hdsa.org/news/alnylam-announces-positive-initial-phase-1b-data-for-brezosiran-aln-htt02-demonstrating-deep-and-durable-huntingtin-lowering-in-huntingtons-disease/

Thank you to the participants and families who made this possible. 💙

10/23/2026

Upcoming webinar!

Join us on Thursday, November 12th at 11:00 AM ET for a community webinar on the PRECISE-HD Trial, a Phase 3 study evaluating pridopidine in Huntington’s disease.

Learn more about the PRECISE-HD study, what potential participation might involve, and where to find additional information.

The presentation will feature Nils Confer, PhD, Executive Medical Director at Prilenia, along with HDSA's own Tamara Maiuri, PhD, Associate Director of Research and Patient Engagement. Allison Bartlett, Esq., Senior Manager of Disability Programs; and MaryAnn Emerick, LMSW, Senior Manager of Youth & Community Services.

To learn more, and register, visit: https://hdsa-org.zoom.us/webinar/register/WN_j8aCveJNTxCk2yzQpJj5Zg #/registration

10/23/2026

Amaryllis season is officially HERE! 🌸🌿

With over 20 amazing products to choose from, with vibrant amaryllis varieties and fragrant paperwhites! 🌺 Shop with confidence knowing that FP (FlowerPower) guarantees all products will grow beautifully. 🌼

Don't forget to credit your order to your chapter or affiliate at checkout! Let's bloom together.

Click:https://www.flowerpowerfundraising.com/index.php/marketplace/seller/profile/shop/hdsa to learn more.

10/21/2026

🌸🌿 Amaryllis season is officially HERE!

With over 20 amazing products to choose from, with vibrant amaryllis varieties and fragrant paperwhites! 🌺 Shop with confidence knowing that FP (FlowerPower) guarantees all products will grow beautifully. 🌼

Don't forget to credit your order to your chapter or affiliate at checkout! Let's bloom together.

Click:https://www.flowerpowerfundraising.com/index.php/marketplace/seller/profile/shop/hdsa to learn more.

10/14/2026

Upcoming webinar!

Join us on November 12th at 11:00 AM ET for a community webinar on the PRECISE-HD Trial, a Phase 3 study evaluating pridopidine in Huntington’s disease.

Learn more about the PRECISE-HD study, what potential participation might involve, and where to find additional information.

The presentation will feature Nils Confer, PhD, Executive Medical Director at Prilenia, along with HDSA's own Tamara Maiuri, PhD, Associate Director of Research and Patient Engagement. Allison Bartlett, Esq., Senior Manager of Disability Programs; and MaryAnn Emerick, LMSW, Senior Manager of Youth & Community Services.

To learn more, and register, visit: https://hdsa-org.zoom.us/webinar/register/WN_j8aCveJNTxCk2yzQpJj5Zg #/registration

10/07/2026

Watch Part 2 of the Clinical Trials Showcase, recorded at the 2026 HDSA Annual Convention in Phoenix, Arizona.

Continue exploring Huntington’s disease clinical research and the role clinical trials play in advancing potential treatments. This session offers individuals and families impacted by HD an opportunity to learn more about research and the hope driving our community forward.

Visit: https://youtu.be/6WuuOHgK1JA to watch the full video, and learn more about HDSA’s resources, research, and ways to get involved at Huntington's
Disease Society of America.

Help for Today. Hope for Tomorrow.

10/05/2026

Let’s Talk About the BLA Update: What It Means for the HD Community

Join Tam, Allison, and Maryann for a conversation about the Biologics License Application (BLA) update and what it means for the Huntington’s disease community.

Together, they break down the terminology, discuss questions on the minds of individuals and families impacted by HD, and offer perspective on navigating hope and uncertainty as the community follows the path toward potential new treatments.

Visit: https://www.buzzsprout.com/2092862/episodes/19896338-let-s-talk-about-the-bla-update-what-it-means-for-the-hd-community.mp3?download=true to listen to the full episode.

10/02/2026

Watch Part 1 of the HDSA Clinical Trials Showcase, recorded at the 2026 HDSA Annual Convention in Phoenix, Arizona.

Hear from presenters about clinical trials in Huntington’s disease and the ongoing work to advance potential treatments. This session offers individuals and families impacted by HD an opportunity to learn more about clinical research and its role in moving research forward.

Visit: https://youtu.be/StXXf0oWkVw to watch the full video, explore more sessions from the HDSA Annual Convention on our YouTube channel, and visit https://hdsa.org for resources and support.

Help for Today. Hope for Tomorrow.

Address

New York, NY

Telephone

+12122421968

Website

http://texas.hdsa.org/

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