Landen's Story

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Landen's Story Landen was born with Primordial dwarfism and DNA Ligase 4 deficiency. In honor of his memory his parents have created the "Landen's Story Foundation."

In 2017, he had a bone marrow transplant and due to complications passed away in September of 2019. The Landen's Story Foundation was organized to assist families who have experienced the death of a child or currently have a child battling a rare diagnosis by providing financial aid to help offset the costs of medical care, counseling, funeral costs, everyday living expenses etc. The Landen’s Story Foundation will work locally with the Levine Children’s Hospital to understand the needs of families and serve to help meet those needs.

October is Dwarfism Awareness Month! In honor of this month get a head start on your Christmas shopping by purchasing “F...
10/12/2026

October is Dwarfism Awareness Month! In honor of this month get a head start on your Christmas shopping by purchasing “From Heartbreak to Hope: Landen’s Story.” Give a gift that will inspire, encourage, and give hope. 🙂 Audio, E-book, and Paperback available most places books are sold.

It has been a blessing to work with Genesis Publishing House!
10/09/2026

It has been a blessing to work with Genesis Publishing House!

From Heartbreak to Hope: Landen's Story

We had never seen this pic until recently! His Aunt Caroline, found it. This is from a visit to Nani and Papa’s when the...
10/03/2026

We had never seen this pic until recently! His Aunt Caroline, found it. This is from a visit to Nani and Papa’s when they took him to the aquarium. We miss this little guy every day!

10/02/2026

How do you find peace in life's most painful moments?

We fix our thoughts on what is true. We fix our eyes on the character of God and what we know to be true about Him.
-Heather Huff, Landen's Aunt

Philippians 4:8, "Finally, brethren, whatever is true, whatever is honorable, whatever is right, whatever is pure, whatever is lovely, whatever is of good repute, if there is any excellence and if anything worthy of praise, dwell on these things."

-From Heartbreak to Hope: Landxen's Story

09/16/2026

Evaluating temporary circumstances without considering eternal realities = panic.

Heartbreak --> HOPE

Today, is a great day to purchase From Heartbreak to Hope: Landen's Story. I appreciate my sister, Katie, and her church...
09/13/2026

Today, is a great day to purchase From Heartbreak to Hope: Landen's Story. I appreciate my sister, Katie, and her church featuring the book today during their coffee hour before church.

Hard to believe that it’s been seven years… Amanda said last night it feels like a lifetime ago but then again it doesn’...
09/13/2026

Hard to believe that it’s been seven years… Amanda said last night it feels like a lifetime ago but then again it doesn’t. Thankful for Landen‘s Nana and PaPaw providing the flowers and family that was able to gather with us today.

A good friend and brother in Christ sent me this today-“Robert Morgan says in his book, The Red Sea Rules- ‘The same God that led you in, will lead you out!‘“

The most tragic day of our lives was the most triumphant day of Landen's life. Today, we remember Landen. His life and h...
09/13/2026

The most tragic day of our lives was the most triumphant day of Landen's life. Today, we remember Landen. His life and his legacy of faith.

January 24, 2010 - September 13, 2019

Seven years later we still meet people who recognize us as Landen's parents and share with us the impact God used him to make in their lives.

If you're able, leave a memory you have in the comments. Thank you for your prayers and support on days like today.

💙TONIGHT’S THE NIGHT!💙🍗 Come grab dinner and make a difference! Join us TONIGHT from 5–7 PM at Chick-fil-A in Lincolnton...
09/03/2026

💙TONIGHT’S THE NIGHT!💙

🍗 Come grab dinner and make a difference! Join us TONIGHT from 5–7 PM at Chick-fil-A in Lincolnton as we support Landen’s Story Foundation!

Every meal is a chance to help us support families with children who have a rare diagnosis and families who are facing unimaginable loss...and it’s SO easy to participate! 🙌

👉 Ordering at the restaurant or in the drive-thru? Just mention Landen’s Story Foundation when you order.

📱 Ordering through the Chick-fil-A app? Select “Community Cares” when placing your mobile order.

Bring the family, grab some Chick-fil-A, and help us make a difference! 💙
We’d LOVE to see you tonight! 🥰

📍 Chick-fil-A Lincolnton
⏰ 5–7 PM TONIGHT
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Join us this Thursday night from 5p-7p at CFA in Lincolnton! Mention the Landens Story Foundation when ordering at the f...
09/01/2026

Join us this Thursday night from 5p-7p at CFA in Lincolnton! Mention the Landens Story Foundation when ordering at the front counter or in DT and select “Community Cares” when placing a mobile order. We hope to see you there!

Address

Lincolnton, NC
28093

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