The Aicardi Syndrome Foundation

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The Aicardi Syndrome Foundation

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Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from The Aicardi Syndrome Foundation, Nonprofit Organization, 1003 W. Indiantown Road Suite #210, Jupiter, FL.

A 501(c)(3) volunteer-based non-profit dedicated to funding research & conferences, raising awareness of Aicardi Syndrome, improving lives of Aicardi children & their families & providing support & comfort to families who have lost an Aicardi angel. The Aicardi Syndrome Foundation

• Provides the ground work for the Aicardi Syndrome website linking our families worldwide.

• Sponsors the biennial Aicardi Syndrome Family conference, giving a unique opportunity for families to learn about Aicardi Syndrome through workshops, seminars and discussions of topics of interest.

• Contributes to ongoing research of Aicardi Syndrome at Baylor University, Texas Children’s Hospital and The University of California, San Francisco.

• Hosts Aicardi Syndrome’s symposium for researchers and scientists allowing collaboration on identifying the Aicardi gene. (Our first symposium was October 2013 and was met with much success)

It is our hope, with your support to continue to make a difference in the lives of our children.

10/28/2026

10/24/2026

Get your Yard Flag in time for Aicardi Syndrome Awareness Day on November 8th:

https://www.bonfire.com/aicardi-syndrome-awareness-yard-flag/

All proceeds go to the Aicardi Syndrome Foundation!

10/18/2026

Buy Aicardi Syndrome Awareness Yard Flag merchandise that supports Aicardi Syndrome Foundation. Featuring White 12" x 18" Yard Flags, professionally printed in the USA.

10/18/2026

Fundraising for the Aicardi syndrome foundation!

10/14/2026

BIG NEWS! Aicardi Syndrome was recently featured in the newest issue of Rare Revolution Magazine.

Read all about it on pages 67-70: https://editions.rarerevolutionmagazine.com/html5/reader/production/default.aspx?pubname=&edid=a879f992-d7b6-4577-a1e2-3ba26643b60c&pnum=67

We love seeing our Aicardi Community represented in the news!

Please feel free to share with friends and family and on your own social media pages, to help us raise awareness.

10/08/2026

Aicardi Syndrome Awareness Day is 1 month from today on November 8th. Re-opening the Aicardi Syndrome Awareness Flag Fundraiser, in case anyone wants to order a flag to help raise awareness!

ALL proceeds go to the ASF! Order yours today:

Buy Aicardi Syndrome Awareness Yard Flag merchandise that supports Aicardi Syndrome Foundation. Featuring White 12" x 18" Yard Flags, professionally printed in the USA.

10/03/2026

Fundraiser for the ASF: https://www.bonfire.com/store/aicardi-syndrome/

Order by October 21st! 💜

Fundraising for the Aicardi syndrome foundation!

09/11/2026

EXCITING NEWS: The Aicardi Syndrome Foundation has a NEW Regional Coordinator Program, that will help match up families with coordinators in each region, based on where you live.

Here is a link to the Regional Coordinator page on our website: https://ouraicardilife.org/regional-coordinators/

09/01/2026

Read the Fall Issue of the ASF Newsletter!

06/21/2026

Happy Father’s Day weekend to all of our amazing Aicardi Dads! 💙

To the Dads holding their child in their arms; We see your daily dedication & your unconditional love.

To the Dads holding them in their hearts; We walk beside you, as you honor & remember your precious child.

Address

1003 W. Indiantown Road Suite #210
Jupiter, FL
33458

Website

http://aicardisyndromefoundation.org/

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