The Aicardi Syndrome Foundation

The Aicardi Syndrome Foundation Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from The Aicardi Syndrome Foundation, Nonprofit Organization, 1003 W. Indiantown Road Suite #210, Jupiter, FL.

A 501(c)(3) volunteer-based non-profit dedicated to funding research & conferences, raising awareness of Aicardi Syndrome, improving lives of Aicardi children & their families & providing support & comfort to families who have lost an Aicardi angel. The Aicardi Syndrome Foundation

• Provides the ground work for the Aicardi Syndrome website linking our families worldwide.

• Sponsors the biennial

Aicardi Syndrome Family conference, giving a unique opportunity for families to learn about Aicardi Syndrome through workshops, seminars and discussions of topics of interest.

• Contributes to ongoing research of Aicardi Syndrome at Baylor University, Texas Children’s Hospital and The University of California, San Francisco.

• Hosts Aicardi Syndrome’s symposium for researchers and scientists allowing collaboration on identifying the Aicardi gene. (Our first symposium was October 2013 and was met with much success)

It is our hope, with your support to continue to make a difference in the lives of our children.

Read the Fall Issue of the ASF Newsletter!
09/01/2026

Read the Fall Issue of the ASF Newsletter!

https://www.ksl.com/article/51610594
08/18/2026

https://www.ksl.com/article/51610594

Zion National Park just became the first national park to be the owner of accessibility equipment available for public use, and it recently shared that news with the world.

BREAKING NEWS: The Social Security Administration announced that it is adding 14 conditions to its fast-track disability...
08/12/2026

BREAKING NEWS: The Social Security Administration announced that it is adding 14 conditions to its fast-track disability list, which can help people with these conditions speed up the process of receiving benefits . Aicardi Syndrome is included on this list!

For our Aicardi community, this is a very important & meaningful change. Families who previously faced a long disability determination process, may now have a more timely route to receiving benefits.

The Social Security Administration is expanding its list of diseases and other health conditions that may qualify for accelerated approval of disability benefits.

Newsletter Special Summer Edition: Important Conference Information
08/03/2026

Newsletter Special Summer Edition: Important Conference Information

Happy Father’s Day weekend to all of our amazing Aicardi Dads! 💙 To the Dads holding their child in their arms; We see y...
06/21/2026

Happy Father’s Day weekend to all of our amazing Aicardi Dads! 💙

To the Dads holding their child in their arms; We see your daily dedication & your unconditional love.

To the Dads holding them in their hearts; We walk beside you, as you honor & remember your precious child.

Amazing work supporting Aicardi Families! 💜 The Sadie McCann Fund
06/17/2026

Amazing work supporting Aicardi Families! 💜 The Sadie McCann Fund

BIG NEWS.....2027 Aicardi Syndrome Family Conference Announcement!
06/11/2026

BIG NEWS.....2027 Aicardi Syndrome Family Conference Announcement!

06/07/2026
05/25/2026
05/25/2026

Address

1003 W. Indiantown Road Suite #210
Jupiter, FL
33458

Website

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