A Lasting Mark

A Lasting Mark Luke was diagnosed with Linear Scleroderma in 2013. His goal is to spread awareness and raise funds His disease has presented in his right upper extremity.

Luke was diagnosed with Linear Scleroderma in May 2013, at the age of 13. Now all of his fingers, his wrist and his elbow have showed decreased mobility and function. In addition, he has discoloration and hardening of the skin in his lower and upper arm. The discoloration is a permanent mark to remind Luke of his diagnosis. Being diagnosed with a chronic disease has been life changing to Luke and

our family. Fortunately, we have had a tremendous amount of support along the way in helping us to adjust to the changes in our lives. Family, friends, teachers, therapists and doctors have all helped us on this journey. We have come to a place of acceptance and gratitude that Luke's disease is not in fact worse. For many with Linear Scleroderma it is much more challenging. Luke would like to turn his diagnosis of this disease into something positive and make a difference in the lives of children who are also affected. Luke wants to leave a Lasting Mark on others.

01/01/2026
  is a global generosity Movement unleashing the power of people and organizations to transform their communities and th...
12/02/2025

is a global generosity Movement unleashing the power of people and organizations to transform their communities and the world on December 2, 2025 & every day.
Whether it’s making someone smile, helping out a neighbor or stranger or giving to those who need our help. Every act of generosity counts and everyone has something to give.
This , help A Lasting Mark fulfill its mission to increase awareness about scleroderma and other autoimmune disease that affect children. Our goal is to raise money for research, treatments and eventually a cure. We want to improve the day to day lives of those children who are affected and provide emotional support for them and their families.
To find out more about A Lasting Mark and how to donate please visit our website

Leave Your MarkExtend a Hand for Something Positive.   Donate Now   Watch our TV Commercial Leaving our Mark in Salt Lake City 2025   The Pediatric Scleroderma conference was combined with the Juvenile Arthritis Summit this year. We had a wonderful time in Salt Lake City connecting with families ...

Time well spent in Utah for A Lasting Mark and the Medolla family 🩵Last pic  🥰
07/18/2025

Time well spent in Utah for A Lasting Mark and the Medolla family 🩵

Last pic 🥰

Family Summit in Utah 🩵
07/12/2025

Family Summit in Utah 🩵

June is National Scleroderma Awareness Month! Click the link below to learn more about scleroderma, Luke’s story, our fo...
06/03/2025

June is National Scleroderma Awareness Month! Click the link below to learn more about scleroderma, Luke’s story, our foundation and how to donate 💙

www.alastingmark.com

01/01/2025

Happy, Healthy New Year!!!

  is a global generosity Movement unleashing the power of people  and organizations to transform their communities and t...
12/03/2024

is a global generosity Movement unleashing the power of people and organizations to transform their communities and the world on December 3, 2024 and every day.
Whether it’s making someone smile, helping out a neighbor or stranger or giving to those who need our help. Every act of generosity counts and everyone has something to give.
This , help A Lasting Mark fulfill its mission to increase awareness about scleroderma and other autoimmune disease that affect children. Our goal is to raise money for research, treatments and eventually a cure. We want to improve the day to day lives of those children who are affected and provide emotional support for them and their families.
To find out more about A Lasting Mark and how to donate please visit our website www.alastingmark.com

Thank you to everyone that participated in our Black Friday raffle!! We truly appreciate all of the support. Happy Shopp...
12/02/2024

Thank you to everyone that participated in our Black Friday raffle!! We truly appreciate all of the support. Happy Shopping Lori!! 💙

THANK YOU to all of our sponsors, players & volunteers for supporting our Jayhawk Cup event. Because of each and every o...
11/30/2024

THANK YOU to all of our sponsors, players & volunteers for supporting our Jayhawk Cup event. Because of each and every one of you we are raising awareness and funds towards helping those affected with pediatric scleroderma.

With much appreciation and gratitude ~ Luke, Marybeth, Michael and the Medolla Family

A Lasting Mark 💙

www.alastingmark.com

The winner of our 2024 3rd annual Jayhawk Cup is the class of 2020!!! Congratulations!!
11/29/2024

The winner of our 2024 3rd annual Jayhawk Cup is the class of 2020!!! Congratulations!!

We’re ready for our 3rd annual Jayhawk cup! ⚽️💙
11/29/2024

We’re ready for our 3rd annual Jayhawk cup! ⚽️💙

Happy Thanksgiving!!We are so thankful for all of our sponsors who helped make tomorrow’s Jayhawk Cup event possible. We...
11/28/2024

Happy Thanksgiving!!
We are so thankful for all of our sponsors who helped make tomorrow’s Jayhawk Cup event possible. We’re looking forward to a great day of soccer but today we wish all of you and your families a wonderful Thanksgiving!

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Jericho, NY

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