Azariah: Yahweh has helped

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Azariah: Yahweh has helped Azariah is diagnosed with multiple congenital heart diseases and in need of prayer

Day 112 - Discharge!!!!After 12 days on a ventilator 2 G tube placements2 fentynal detoxes 1 stent placement1 minute of ...
10/10/2026

Day 112 - Discharge!!!!

After
12 days on a ventilator
2 G tube placements
2 fentynal detoxes
1 stent placement
1 minute of chest compressions
And several thousand prayers,
The fine folks at Texas Children’s have deemed Azariah stable enough to be out patient for the time being.

Thank you to all who have prayed, encouraged us, and helped us out during this trial.

Azariah will need another heart surgery in the coming months, followed by a second surgery to fix his hernia. They surgeons are putting together their proposal for what they recommend for his heart, and will present that along with what Boston and Dallas came up with from Azzy’s unique anatomy.

“The LORD will keep you from all harm— he will watch over your life; the LORD will watch over your coming and going both now and forevermore.”
‭‭Psalms‬ ‭121‬:‭7‬-‭8‬ ‭NIV‬‬

102 days of hospital lifeWe are in the trenches of Azzy’s second fentanyl ween, and it seems worse than the first one.He...
09/30/2026

102 days of hospital life

We are in the trenches of Azzy’s second fentanyl ween, and it seems worse than the first one.

He will go into hour plus screaming fits for the slightest reason, like a blood pressure reading, only ceasing once he wears himself out. At which point, some other check will be needed to be done on him. It’s exhausting for all.

The G tube has been reinstalled and feeds have begun again. As we gradually approached full volume, he started having throw ups. It’s possibly due to the ween, and hopefully will improve in the coming days.

They were planning to move us out of the ICU today, but they decided to hold us until his symptoms improve.

Dad’s paternity leave ended three weeks ago, so mom is pulling a lot of extra weight these days

Please pray for the peace that surpasses all understanding would rest upon this sweet child.

“I consider that our present sufferings are not worth comparing with the glory that will be revealed in us.”
‭‭Romans‬ ‭8‬:‭18‬ ‭NIV‬

Our little heart warrior is three months old. He loves smiling at mom and dad along with all the doctors and nurses who...
09/23/2026

Our little heart warrior is three months old. He loves smiling at mom and dad along with all the doctors and nurses who visit him, brightening everyone’s day.

We are still in the ICU working on healing up the g-tube spot, which is looking really good. The surgeons hope to place the G-tube back in tomorrow, as they had put a foley in as a workaround to help with healing.

Once that is in, some x-rays will be taken and feeds will (finally!) restart.

Please continue praying that the AV valve regurgitation stays good! We’d love to see it decrease from moderate down to mild/ minimal.

Also pray that he will be able to have the biventricular repair as opposed to single ventricle palliation, the scans to determine that are beginning to approach.

Day 88 of hospital lifeAzzy is doing great and is no longer in need of respiratory support, so a free face again! His ec...
09/15/2026

Day 88 of hospital life

Azzy is doing great and is no longer in need of respiratory support, so a free face again!

His echo@ showed that his heart returned to the function he had prior to CPR, which is a huge win, as a transplant may have been in the cards if it stayed consistent with the day of the episode.

We are still in the ICU, his G-tube is not healing as expected and was leaking a lot of mucus. The doctors have made some adjustments to his protein intake and have a plan to get him healed up.

Please pray for the healing of his G-tube site so that we can start his feeds back up and punch our ticket out of the ICU for the fourth time.

““Thus says the LORD who made the earth, the LORD who formed it to establish it—the LORD is his name: Call to me and I will answer you, and will tell you great and hidden things that you have not known.”
‭‭Jeremiah‬ ‭33‬:‭2‬-‭3‬ ‭ESV‬‬

Day 80We had a challenging Saturday, with Azariah’s lung xray coming back showing haziness in his left lung. The doctor ...
09/07/2026

Day 80

We had a challenging Saturday, with Azariah’s lung xray coming back showing haziness in his left lung. The doctor began treatment for pneumonia, which he said would have been related to being connected to the ventilator, as he is still intubated.

Praise God that this morning we got better news, that his lungs now looked clear, and that he didn’t have pneumonia. They’ve begun to wean him off the ventilator, and are trying to move up a scheduled MRI from Wednesday, which will require intubation/sedation, so that the amount of time connected to the ventilator can be minimized.

Prayer Requests:

Please pray for healing from his G-tube site. They started him back on clear liquid feeds, and there is concern that the liquid may be leaking from the site.

Pray for the upcoming echocardiogram on Tuesday, for no AV valve regurgitation, proper rhythm, and improved function of all chambers and valves.

Pray for his glands and hormones, that they would produce the proper levels and not contribute to any problems.

We (Jason & Kelsey) were blessed to be able to step out this morning and go to our Houston home church, and have the entire congregation join us in praying for Azzy’s recovery.

“He rescued me from my powerful enemy, from my foes, who were too strong for me. They confronted me in the day of my disaster, but the LORD was my support. He brought me out into a spacious place; he rescued me because he delighted in me.”
Psalms 18:17-19 NIV

Thank you for the prayers for our sweet baby boy.No major updates today, Azzy has been stable. He is still intubated and...
09/04/2026

Thank you for the prayers for our sweet baby boy.

No major updates today, Azzy has been stable. He is still intubated and they have kept him sedated. The team had a brain MRI done yesterday to rule out stroke, which came back normal. They also have him on a 48 hour EEG brain study, which is what they do in cases like this, to see if his heart episode could be seizure related, which is not seeming to be the case.

Overnight when he was getting diaper changes his reaction to the disturbance was that his heart rate and saturations would dip, but the team was able to stabilize him with ventilation and medication adjustments. These episodes have improved today.

He had an echocardiogram done yesterday afternoon, and there were some changes from the previous echo that was done on August 28. The team has said it’s unclear if these changes are temporary and due to the stress his heart went through yesterday or if there has been a real change in heart function. Either way we know Jesus is more than able to restore the function. 🙌🏼🙏

Specific Prayers:

That the severe AV valve regurgitation improves.

That his ventricular function recovers back to clearly normal.

That the recurrent bradycardia/desaturation episodes stop.

That the team identifies exactly what is triggering them—whether cardiac, vagal, medication-related, respiratory, neurologic, or a combination—and can prevent them.

That his PDA stent and pulmonary blood flow remain stable.

That throughout this all, Azariah knows how loved and cherished he is.

“Yes, my soul, find rest in God; my hope comes from him. Truly he is my rock and my salvation; he is my fortress, I will not be shaken.”
Psalms 62:5-6 NIV

A little after 11 this morning, Azariah went into an inconsolable screaming fit that resulted in him holding his breath,...
09/02/2026

A little after 11 this morning, Azariah went into an inconsolable screaming fit that resulted in him holding his breath, turning blue, and his heart rate to drop into the 30s.

We called for the nurse and a code was called summoning least 20 medical professionals into our room while they did CPR on him for a minute until he regained regular heart beat and breathing rate.

We got moved to the ICU again and they are currently intubating him so they can place more lines and have him still for all of the follow up scans.

He was doing so well and we were planning to get discharged at the end of this week. Thank God this episode happened before that.

Thank you for the continued prayers.

Day 71 of hospital life.It’s starting to get a bit old, but there may finally be light at the end of the tunnel.We got t...
08/29/2026

Day 71 of hospital life.

It’s starting to get a bit old, but there may finally be light at the end of the tunnel.

We got test results back and they have decided that putting a G- tube near his belly button is the best step for now. He will go under anesthesia and have that installed on Monday.

The medical team performed another swallow study this week, which showed he is still silently aspirating, so drinking enough milk to sustain himself is not on the table, hence the need for the feeding tube.

The recovery time is much less than heart procedures, so hopefully we will be out in the sunshine soon.

Ronald McDonald house blessed us in a big way this week. They just completed some apartment style suites and selected us for the first family to move in. With Azzy’s asplenia, we will need to keep him semi-sheltered from masses until his next heart surgery, which is not ideal for the RMH communal living that we had up til now.

“Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness. And let steadfastness have its full effect, that you may be perfect and complete, lacking in nothing.”
‭‭James‬ ‭1‬:‭2‬-‭4‬ ‭ESV‬‬

Day 54 - Azariah continues to gain strength, surprising all of the doctors as he holds his head up and looks at them as ...
08/13/2026

Day 54 - Azariah continues to gain strength, surprising all of the doctors as he holds his head up and looks at them as they move around the room, very ahead of a baby who hasn’t hit 8 weeks yet.

Our team has allowed us to start taking Azzy outside. Though he has slept though both trips, and it takes longer to get ready for the trip than we actually spend out in the Texas heat, it’s a big win to us. Thank you to our resident Emily for making this happen!

All of the experts in the hospital have discussed the latest diagnosis of the silent aspiration, hernia, malrotation, and GERD. They have come to a consensus that a PH probe study is needed to figure out what type of feeding tube is best for Azzy.

This will be a tube down one of his nostrils to monitor the acid in his esophagus for 24 hours. Since his current feeding tube is taking up the one nostril already, his respiratory risk will be elevated, and require us to be back in the ICU for it. The ICU is currently full, and we will hopefully be able to proceed with that next week.

Once the study is done, it will take 1-2 weeks to determine what the surgical path is.

There is also a slight concern because he has lost weight over the past 4 days. It’s possible this is due to his frequent spit ups. We try to hold him upright for the majority of his feeds, and keep his bed elevated for the night feeds, but his spit ups were rather large today.

Thank you God for the wins and allowing the three of us to be together in this storm! Not sure if 12 weeks of paternity leave has ever been more of a blessing to a family, but I don’t know where we would be without it.

We pray that Azzy’s weight loss would reverse. We pray that all of the ICU babies would get well, allowing them to be discharged and make space for Azzy’s study. And we know that whatever the results, he will be healed one way or another. Amen

Day 47 of hospital life - Another bump in the roadAzzy had an upper GI and a swallow study yesterday, where the team exa...
08/05/2026

Day 47 of hospital life - Another bump in the road

Azzy had an upper GI and a swallow study yesterday, where the team examined how he consumed liquids under x-ray. They found three issues with his digestive system.

1. When he swallows on his own, part of the liquid enters the lungs with no gagging - known as silent aspiration, which can lead to pneumonia if volume accumulates.

2. Once the liquid is in the stomach, a hernia in his diaphragm is creating an issue that is contributing to his reflux when feeding.

3. When the liquid passes the stomach and enters the intestines, the issue of malrotation occurs. His intestines are not attached to his body like someone with normal anatomy, so there is a risk of a kink or twist causing a blockage that will result in a future medical emergency.

He under went a sonogram for the head and vocal chords today to check for a neurological or anatomical causes for the silent aspiration, which both came back normal.

The medical team is weighing installing a G- tube that would be a port from near the bellybutton that would go directly into his stomach, as that would allow us to be discharged and keep him fed on our own without risk of him ripping it out, like his current NG tube. While he was open for this procedure, the other issues could be addressed at the same time.

As much as we would love to avoid another intervention, it is very frustrating knowing that feeding is the only thing keeping us in the hospital. This is common for heart babies, but was the last thing we thought would be keeping us from walks in the stroller.

We are very blessed that these issues are nothing new to our medical team here. Azzy continues to grow and is at 8lbs 14 oz, which has the Drs very happy.

“Brothers, I do not consider that I have made it my own. But one thing I do: forgetting what lies behind and straining forward to what lies ahead, I press on toward the goal for the prize of the upward call of God in Christ Jesus.”
‭‭Philippians‬ ‭3‬:‭13‬-‭14‬ ‭ESV‬‬

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4115 Drake Street
Houston, TX
77005

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