Clear Cell Sarcoma Foundation

Clear Cell Sarcoma Foundation CCSF is a 501(c)3 nonprofit patient advocacy organization focused on funding research to find a cure

September is Childhood Cancer Awareness Month. 🎗️This month, we recognize the children and adolescents affected by cance...
09/04/2026

September is Childhood Cancer Awareness Month. 🎗️

This month, we recognize the children and adolescents affected by cancer, honor their families and loved ones, and acknowledge the healthcare professionals, researchers, and advocates working to improve outcomes.

For those affected by rare cancers, awareness is especially important. Clear cell sarcoma is a rare soft-tissue sarcoma that can affect adolescents and young adults, and much remains to be learned about how to better diagnose and treat this disease.

At the Clear Cell Sarcoma Foundation, we believe that every patient deserves hope, continued research, and a community committed to moving progress forward.

This September, help us shine a light on childhood cancer and the need for continued research into rare cancers. 💛🎗️

Learn more about how to get involved here: https://www.clearcellsarcoma.org/get-involved

Join Clear Cell Sarcoma Foundation’s AYA Team for open, supportive conversations about navigating life with cancer. In a...
09/02/2026

Join Clear Cell Sarcoma Foundation’s AYA Team for open, supportive conversations about navigating life with cancer. In a safe and welcoming environment, we’ll share personal experiences and discuss topics such as balancing a cancer diagnosis with school, scan anxiety and fear of recurrence, navigating relationships, and building your identity after diagnosis. Come connect with others who understand, share what you’re comfortable with, and know that you’re not alone. We’ll explore these topics and many more together.

Date: September 19, 2026
Time: 1:00 p.m. Eastern Time
Registration Link: https://us06web.zoom.us/meeting/register/ulsTfF8VQeGqsDAfFiPtMA

Awareness is powered by community.Every share. Every conversation. Every donation. Every person who chooses to learn abo...
09/01/2026

Awareness is powered by community.

Every share. Every conversation. Every donation. Every person who chooses to learn about Clear Cell Sarcoma helps bring visibility to this rare cancer.

Because of supporters like you, our mission continues to grow.

Thank you for helping us educate, advocate, and support the CCS community.

08/30/2026

The Clear Cell Sarcoma Foundation is dedicated to supporting the CCS community through:

🔬 Advancing research
📚 Raising awareness
🤝 Connecting patients and families
📣 Advocating for the rare cancer community

Every program, partnership, and initiative brings us closer to a future where patients have more options and better support.

Help us continue our mission: https://givebutter.com/clearcellsarcoma

Thank you for being part of this community.

✅ CCS Trivia Answer!The correct answer is…🅲️ SurgeryFor localized Clear Cell Sarcoma, surgery is the cornerstone of trea...
08/26/2026

✅ CCS Trivia Answer!

The correct answer is…

🅲️ Surgery

For localized Clear Cell Sarcoma, surgery is the cornerstone of treatment. The goal is to remove the tumor completely with negative (clear) margins, meaning no cancer cells are found at the edges of the removed tissue. Achieving clear margins offers the best chance for long-term disease control.

Because Clear Cell Sarcoma is an ultra-rare cancer, it's important for patients to seek care from a multidisciplinary sarcoma team with experience treating rare sarcomas. Specialized expertise can make a meaningful difference in treatment planning and outcomes.

Thank you to everyone who participated in this week's trivia! By learning and sharing facts about Clear Cell Sarcoma, you're helping us Make Rare Visible.

🧠 CCS Trivia Tuesday!Let's test your Clear Cell Sarcoma knowledge!For people with localized Clear Cell Sarcoma, which tr...
08/26/2026

🧠 CCS Trivia Tuesday!

Let's test your Clear Cell Sarcoma knowledge!

For people with localized Clear Cell Sarcoma, which treatment is generally considered the cornerstone of care?

🅰️ Chemotherapy
🅱️ Radiation therapy alone
🅲️ Surgery
🅳️ Immunotherapy

💬 Comment with your answer (A, B, C, or D)! We'll reveal the correct answer tomorrow along with why it matters.

08/21/2026

🔍 Fact Friday

When it comes to treating localized Clear Cell Sarcoma, early diagnosis and expert surgical care can play a critical role in a patient's treatment journey.

Because CCS is an ultra-rare cancer, seeking care from a multidisciplinary team with sarcoma expertise can help ensure patients receive the most appropriate treatment and management.

📣 Help us spread awareness by sharing this post. Every share helps educate others about Clear Cell Sarcoma and the importance of specialized care.

🌎 Celebrating Everyday HeroesOn World Humanitarian Day, we recognize the people who dedicate their time and energy to he...
08/19/2026

🌎 Celebrating Everyday Heroes

On World Humanitarian Day, we recognize the people who dedicate their time and energy to helping others.

In the Clear Cell Sarcoma community, everyday heroes include:

Patients sharing their stories
🌻Caregivers providing support
🌻Volunteers giving their time
🌻Researchers searching for answers
🌻Advocates raising awareness
🌻Donors making progress possible

Together, these individuals show the power of compassion and community.

Thank you for helping us Make Rare Visible.

🌻 Honoring the Caregivers Behind Every JourneyA Clear Cell Sarcoma diagnosis impacts more than the patient, it affects f...
08/16/2026

🌻 Honoring the Caregivers Behind Every Journey

A Clear Cell Sarcoma diagnosis impacts more than the patient, it affects families, friends, and caregivers who walk alongside them.

Caregivers provide strength during difficult moments, celebrate milestones, ask questions, offer comfort, and remind warriors they are never alone.

Today and every day, we recognize the caregivers who support the CCS community with compassion and love.

💛 Tag a caregiver who has made a difference in your journey or the journey of someone you love.

Address

PO Box 13418
Charleston, SC
29422

Telephone

(843) 501-2055

Website

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