Clear Cell Sarcoma Foundation

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Clear Cell Sarcoma Foundation CCSF is a 501(c)3 nonprofit patient advocacy organization focused on funding research to find a cure

⏰ TOMORROW: Last chance to join our CCS Biology & Research sessionExpert insights. Real answers. Patient-friendly format...
10/12/2026

⏰ TOMORROW: Last chance to join our CCS Biology & Research session

Expert insights. Real answers. Patient-friendly format.

đź“… Oct 13 at 3pm ET / 12pm PT / 8pm BST

Final registration: https://us06web.zoom.us/meeting/register/mNmyi4d2Sd6v_vwX4oO51Q

Can't join the live event? Register anyway and we'll send a copy of the recording!

🚨 5 DAYS AWAY: Don't Miss This Rare OpportunityOur CCS Biology & Research session is almost here!If you've been wonderin...
10/09/2026

🚨 5 DAYS AWAY: Don't Miss This Rare Opportunity

Our CCS Biology & Research session is almost here!

If you've been wondering:
• What exactly is Clear Cell Sarcoma at the biological level?
• What research is happening RIGHT NOW?
• What clinical trials have been tried?
• Where is treatment headed?

…this is your chance to get answers from the experts.

Dr. Chris Paluch (clinician & researcher) will break it down in plain language, followed by discussion with Dr. Kelley Argraves and Dr. Priya Chudasama.

đź“… October 13, 2026
đź•’ 8pm BST / 3pm ET / 12pm PT

Already registered? Add it to your calendar NOW and join us live for the Q&A.

Not registered yet? There's still time but don't wait. 👇

đź”— https://us06web.zoom.us/meeting/register/mNmyi4d2Sd6v_vwX4oO51Q

We are proud to share that the Clear Cell Sarcoma Foundation’s research abstract has been accepted for a poster presenta...
10/07/2026

We are proud to share that the Clear Cell Sarcoma Foundation’s research abstract has been accepted for a poster presentation at the 2026 Connective Tissue Oncology Society (CTOS) Annual Meeting!

CTOS brings together sarcoma researchers, physicians, patient advocates, and industry leaders from around the world to share new findings and advance care for people affected by sarcoma.

This presentation builds on CCSF’s ongoing collaboration with xCures, through which we have supported the collection and analysis of real-world data from people living with Clear Cell Sarcoma. By bringing patient experiences and data to the scientific community, we hope to deepen understanding of this ultra-rare cancer and help identify opportunities to improve research, treatment, and care.

At CTOS 2026, our team will present these findings while also connecting with researchers and advocates, learning about emerging developments in sarcoma, and exploring new opportunities for collaboration.

For a cancer as rare as CCS, progress depends on bringing patients, families, researchers, clinicians, and organizations together.

Thank you to our donors, patients, families, researchers, and supporters who make this work possible. Your support helps ensure that Clear Cell Sarcoma continues to have a voice in the broader sarcoma research community.

New merchandise from the Clear Cell Sarcoma Foundation Official Store is now available! When you shop CCSF merchandise, ...
10/05/2026

New merchandise from the Clear Cell Sarcoma Foundation Official Store is now available! When you shop CCSF merchandise, you’re helping support our mission and bringing greater visibility to this ultra-rare cancer.

From t-shirts and hats to mugs, backpacks, and more, there are plenty of ways to represent CCSF while helping raise awareness for Clear Cell Sarcoma.

Our merchandise can also be shipped worldwide, so supporters everywhere can get involved!

👉 Visit the CCSF Shop through our website (https://www.clearcellsarcoma.org/shop) or shop directly through our Bonfire store.

Every purchase and every share helps us continue working toward a future where Clear Cell Sarcoma is universally survivable.

🌻 Knowledge is power, especially when facing a rare cancer with no standard treatment.On October 13, we're bringing toge...
10/02/2026

🌻 Knowledge is power, especially when facing a rare cancer with no standard treatment.

On October 13, we're bringing together three brilliant minds to break down CCS biology, current research, and what's on the horizon for treatment.

Dr. Chris Paluch will lead a patient-friendly discussion, followed by a Q&A with Dr. Kelley Argraves and Dr. Priya Chudasama from our Medical Advisory Board.

Whether you're newly diagnosed, a caregiver, or simply want to stay informed, this conversation is for you.

đź“… October 13, 2026
🌍 8pm BST / 3pm ET / 12pm PT

Register now: https://us06web.zoom.us/meeting/register/mNmyi4d2Sd6v_vwX4oO51Q

Can't join the live event? Register anyway and we'll send a copy of the recording!

Thanks to the generosity of the Clear Cell Sarcoma community, CCSF was able to support an important research project led...
09/30/2026

Thanks to the generosity of the Clear Cell Sarcoma community, CCSF was able to support an important research project led by Dr. Kevin Jones and his team: the CCS Oncoprotein Co-Factor Finding (OFF) Project.

The goal of this research is to better understand the abnormal fusion protein that drives Clear Cell Sarcoma by identifying other molecules that interact with it. By uncovering these interactions, researchers hope to identify new vulnerabilities that could one day become targets for treatment.

The project continues to move forward, and the team is getting closer to beginning the planned experiments. It may still be about six months before meaningful data are available to share, but each step brings the research closer to answering important questions about CCS.

We are incredibly grateful to everyone in our community whose support helped make this research possible. We look forward to sharing more updates as the work progresses.

CCSF Champions are survivors, families, friends, and community members who turn their support for the Clear Cell Sarcoma...
09/28/2026

CCSF Champions are survivors, families, friends, and community members who turn their support for the Clear Cell Sarcoma community into action. Whether you’re fundraising, hosting an event, raising awareness, or becoming a recurring donor, there are many ways to make an impact.

Our Champions have already found creative ways to support CCSF, including:
• Hosting memorial golf outings and community events
• Rallying family and friends to fundraise
• Organizing recurring monthly donations
• Sharing loved ones’ stories to raise awareness
• Supporting CCS research and advocacy through their own foundations

Every effort (big or small) helps strengthen our community and advance the mission to make Clear Cell Sarcoma survivable. đź’™

Interested in becoming a CCSF Champion? Email [email protected] to learn how you can get involved.

09/23/2026

Today, on Rare Cancer Awareness Day, we recognize the patients, families, caregivers, researchers, and advocates impacted by rare cancers.

Rare cancers often come with unique challenges, including limited treatment options, fewer clinical trials, and less available research. Raising awareness helps bring greater attention to these unmet needs and the importance of continued research, collaboration, and advocacy.

Every patient deserves answers, options, and hope. đź’™

REMINDER HAPPENING TOMORROW! Join Clear Cell Sarcoma Foundation’s AYA Team for open, supportive conversations about navi...
09/18/2026

REMINDER HAPPENING TOMORROW!

Join Clear Cell Sarcoma Foundation’s AYA Team for open, supportive conversations about navigating life with cancer. In a safe and welcoming environment, we’ll share personal experiences and discuss topics such as balancing a cancer diagnosis with school, scan anxiety and fear of recurrence, navigating relationships, and building your identity after diagnosis. Come connect with others who understand, share what you’re comfortable with, and know that you’re not alone. We’ll explore these topics and many more together.

The CCSF team will once again be attending to connect with researchers and advocates, learn about the latest developments in sarcoma research, and share updates on ongoing CCS initiatives.

Date: September 19, 2026
Time: 1:00 p.m. Eastern Time
Registration Link: https://us06web.zoom.us/meeting/register/ulsTfF8VQeGqsDAfFiPtMA

🎙️ Happening TODAY at 6 p.m. CTHow to Talk to Kids About Rare Cancer, a free Pickles Group webinar, and our own Ann Lope...
09/16/2026

🎙️ Happening TODAY at 6 p.m. CT

How to Talk to Kids About Rare Cancer, a free Pickles Group webinar, and our own Ann Lopez (CCS survivor, CCSF's Communications & Marketing Director) is on the parent panel.

If you've been putting off that conversation, this is your nudge.

đź”— Register now: https://www.picklesgroup.org/program-calendar/rarecancer

Can't make it live? Register anyway, you'll get the recording.

Tag someone who needs to see this.

Address

PO Box 13418
Charleston, SC
29422

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