Hemophilia Philippines - Haplos Community

12/08/2026

LIVE | Kabataan may Kapansanan: Mga Pangarap, Hamon at Tagumpay

Ang bawat kabataang may kapansanan ay may sariling kuwento—mga pangarap na gustong maabot, mga hamong nalampasan at mga tagumpay na bunga ng kanilang sipag, tapang at determinasyon.
Sa episode na ito ng Inklunasyon, makikilala natin ang mga kabataang may kapansanan na patuloy na nagbibigay-inspirasyon sa kanilang komunidad. Maririnig natin ang kanilang mga karanasan, pananaw at mga adhikain para sa isang lipunang tunay na inklusibo at may pantay na oportunidad para sa lahat.
Inaanyayahan namin ang lahat—mga kabataan, magulang, g**o, organisasyon at mgaka-inklunasyon na makiisa sa usapang ito. Sama-sama nating kilalanin ang kakayahan ng bawat isa at palakasin ang boses ng mga kabataang may kapansanan.

Live streaming at E-Net Philippines, PCUNCRPD, SeeSaw, NORFIL Foundation and other FB pages.

REPLAYS Available on InkluNasyon YouTube channel: https://youtube.com/

08/08/2026

🥗 FUELING RESILIENCE: How Smart Nutrition Empowers Life with Hemophilia

Good nutrition is an important part of living well with hemophilia. What we eat can help support a healthy weight, strong bones and muscles, recovery, and overall well-being.

Join Hemophilia Philippines (HAPLOS Community) Foundation, Inc. and the HAPLOS Western Visayas Chapter, in collaboration with the Members’ Affairs Committee, for an informative webinar on practical nutrition for persons with hemophilia and their families.

🎙️ Speaker:
Romela Dee Candoliza, RND
Nutrition Officer
National Nutrition Council – Region VI

📅 Saturday, August 22, 2026
⏰ 3:30–4:30 PM
💻 via Google Meet

This webinar is open to persons with hemophilia and other bleeding disorders, parents, caregivers, families, and members of the HAPLOS Community.

📲 Scan the QR code on the poster to register.

We hope you can join us as we learn how everyday nutrition choices can help us build healthier and more resilient lives.

💚 See you online!

07/08/2026

💚 A Mother's Hope

At the 2026 World Federation of Hemophilia (WFH) World Congress, Ms. Alice Guipon saw how prophylaxis has become a reality in many countries—giving people with hemophilia the opportunity to live healthier, more active lives.

As a mother of three persons with hemophilia, that experience strengthened her hope that Filipino families will one day have the same opportunity.

In this short video, Alice shares a heartfelt message—and a vision we continue to work toward: access to prophylaxis through the PhilHealth Hemophilia Treatment Package.

Every voice matters. Every story strengthens our advocacy.

🎥 Watch Alice's message.

05/08/2026

💚 Strengths Within: John's Story

Every person has strengths that help them navigate life.

For John, those strengths are a welcoming spirit and the ability to see life with perspective. Through the simple image of a bird, he shares what freedom, belonging, and community mean to him.

Watch John's story and discover the strength behind his drawing.

02/08/2026

💚 Strengths Within

Marlon: Patience. Perseverance. Endurance.

For Marlon, these are the strengths that help him face life's challenges. But perhaps his greatest realization is this:

"Hindi pala ako nag-iisa."

Through the HAPLOS Community, he found people who understand, support, and walk alongside one another—because no one should face hemophilia alone.

🎥 Watch Marlon share the story behind his drawing.

26/07/2026

💙 Strengths Within: Cittie's Story

"Meet 7-year-old Cittie. Her strength shines through kindness, friendship, and a heart that welcomes everyone."

Her drawing shows a patient holding a blue flag.

Her mother shares that Cittie easily makes friends, connects with everyone—even those who are difficult to approach—and dreams of sharing her stories with the world.

Her gift is bringing people together through kindness. 💚

20/07/2026

📢 IMPORTANT UPDATE FOR THE HEMOPHILIA COMMUNITY 💙

We are pleased to share an important development in our continuing advocacy for better access to hemophilia treatment in the Philippines.

We have received an update that the Department of Health (DOH) has approved the inclusion in the Philippine National Formulary (PNF) of plasma-derived Coagulation Factor VIII for the prophylaxis (prevention) and treatment of bleeding episodes in Hemophilia A, in the following strengths:

• 250 IU/10 mL (25 IU/mL)
• 250 IU/5 mL (50 IU/mL)
• 500 IU/10 mL (50 IU/mL)
• 500 IU/5 mL (100 IU/mL)
• 1,000 IU/10 mL (100 IU/mL)

Powder for solution for intravenous administration

This is an important development for the hemophilia community and addresses one of the issues HAPLOS has consistently raised—the need for appropriate Factor VIII dosage strengths and indications for the prevention and treatment of bleeding in Hemophilia A.

HAPLOS will continue to advocate for broader access to appropriate treatment options for people with hemophilia.

We look forward to the official publication of the updated PNF information and will share further details with our community as they become available.

💙 Every step toward improved access to appropriate treatment brings us closer to better care for people with hemophilia in the Philippines.

Send a message to learn more

19/07/2026

💚💙**Save One Life Sponsorship Program Distribution 2026**

On July 18, 2026, HAPLOS welcomed young adults supported through the Save One Life Sponsorship Program, together with their families, at the University of Santo Tomas Hospital for the distribution of sponsorship support.

Through the program, individual sponsors provide continuing assistance to persons with bleeding disorders from 7 to 25 years old whom they have chosen to support. Currently, 20 members of the HAPLOS Community participate in the program. Eighteen beneficiaries and their representatives attended, while two were unable to join.

Some participants traveled from distant areas, and HAPLOS provided meals for everyone during the event.

Our sincere thanks to **Save One Life** and to the individual sponsors for their generosity and continued support. More than financial assistance, the program creates meaningful connections and reminds these young people that a wider community cares about their well-being and believes in their future.

We are also grateful to the University of Santo Tomas Hospital for providing AVR 1 at the St. John Paul II Building free of charge.

Thank you to all the beneficiaries, families, and HAPLOS volunteers who joined us and helped make the event possible. 💚💙

Learn more about Save One Life and its programs for people with bleeding disorders worldwide:

🔗 https://saveonelife.net/

18/07/2026

🎶 From the HAPLOS archives

After the pandemic kept us apart, music helped bring the HAPLOS community together again. Here is the HAPLOS Ukulele Group video, which premiered on July 30, 2022. 💙

Watch our HAPLOS Ukulele Group share their music and joyful spirit. 💙

https://www.youtube.com/watch?v=SUC4g_xo4K4

"HAPLOS: Panimulang Klase sa Ukulele para sa mga Kababayang may Hem...

12/07/2026

🎨 Every design tells a story.

Our 2026 HAPLOS Community T-shirt is more than just a logo—it reflects the values, hopes, and unity that bring our community together. 💚

Watch Jared Formalejo, winner of our 2026 HAPLOS Community T-shirt Design Contest, as he shares the inspiration behind his winning design.