XDP Dystonia Philippines

17/03/2026

https://m.me/j/AbboC4NZX9ItpXQU/?send_source=gc%3Acopy_invite_link_c

17/03/2026

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Magandang araw po! ☀️

Kayo po ay aming inaanyayahang dumalo sa aming Lay Forum para sa mga pasyente na mayroong X-Linked Dystonia Parkinsonism (XDP) o lubag.

Ito ay gaganapin sa 🗓 Sabado, Marso 21, 2026, 9:00-11:00AM sa UP-PGH Dietary Hall, 2nd floor.

REGISTRATION: Sa mga interesado sumali sa aming lay forum, maari po kayong magsign up sa link na ito upang magparehistro (tinyurl.com/XDPLayForum2026)

Maraming salamat po!

09/03/2026

Sa may gusto lang po... March 11, 3pm - 4pm po. For awareness po ng Dystonia, interview via zoomlink kung meron kayong katanungan please message inkluNasyon https://www.facebook.com/share/1FTWNT14Uc/

Ang dystonia ay isa sa mga kondisyong hindi gaanong kilala o nauunawaan sa ating bansa. Isa itong neurological disorder kung saan ang isang tao ay nakararanas ng hindi sinasadya o kusang paggalaw at pag-igting ng mga kalamnan.

Kasama ang isang neurologist, samahan ninyo kami sa isang mas malalim na talakayan tungkol sa kondisyong ito. Iyan at marami pa, dito sa InkluNasyon!

Live streaming at E-Net Philippines, PCUNCRPD, SeeSaw, NORFIL Foundation and other FB pages.

REPLAYS Available on InkluNasyon YouTube channel: https://youtube.com/

02/03/2026

Good morning/evening po!

📣 KAMI AY MULING NAGTATAWAG NG MGA KALAHOK / CALL FOR PARTICIPANTS

Inaanyayahan ang mga pasyenteng may kumpirmadong X-linked Dystonia Parkinsonism (XDP) na lumahok sa isang pag-aaral tungkol sa nutrisyon at kalusugan!

Kung ikaw ay:
✅ Kumpirmadong kaso ng XDP gamit ang genetic testing
✅ May edad 19 pataas
✅ Nakakaintindi ng Filipino, Ingles, o Hiligaynon

📞 Makipag-ugnayan kay Lyn sa 0968 592 2787 para sa karagdagang impormasyon.

*Nutritional Assessment in X-linked Dystonia Parkinsonism: A Cross-Sectional Study
Pananaliksik nina Dr. Lanuza, Dr. Tabuzo-Acuin, Dr. Libre, Dr. Pascual, Dr. Reyes, at Dr. Jamora
UPMREB Code: 2025-0406-01

09/02/2026

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DAVAO CITY — The Southern Philippines Medical Center (SPMC) has once again marked a historic milestone in healthcare as it successfully performed Mindanao’s first Deep Brain Stimulation (DBS) surgery for a patient diagnosed with X-linked Dystonia-Parkinsonism (XDP), locally known as Lubag, on February 7, 2026.

The groundbreaking procedure was carried out by the SPMC Institute of Clinical Neurosciences, in collaboration with the Cardinal Santos Medical Center Brain and Spine Center, signaling a major leap forward in advanced neurosurgical care in the region.

This landmark achievement was made possible through the unwavering support of SPMC Medical Center Chief Dr. Ricardo Audan, whose leadership continues to strengthen the institution’s mission of delivering specialized, world-class care closer to Mindanaoans.

This historic first reflects SPMC’s steadfast commitment to innovation, excellence, and equitable access to advanced medical care.

With this milestone, SPMC brings new hope to patients with complex neurological conditions and reinforces its role as a leading center for specialized healthcare in Mindanao.

Follow for more updates!

29/01/2026

Magandang araw po!
Kami po ay 2nd year medical students mula sa isang medical school sa Iloilo. Humihingi ng kaunting oras para sa pilot testing ng aming research na may titulong: "Coping Mechanisms and Quality of Life among Primary Caregivers of Patients with XDP in Capiz: A Mixed-Methods Approach."

Malaking tulong po ang inyong pakikilahok sa pagpapabuti ng aming pag-aaral. Maraming salamat po sa inyong suporta. 💙

https://docs.google.com/forms/d/e/1FAIpQLSdMxWMRPB3XYg9m-F1RNXv5Txq-RrWYkjUziAMNvUMIixm76A/viewform

Good day! We are 2nd-year medical student researchers from Iloilo Doctors’ College of Medicine. This is an invitation to participate in our study titled above. This is a pilot test to ensure clarity, relevance, and cultural appropriateness of the questionnaires. The feedback from this phase will b...

09/12/2025

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MGA SERBISYO SA PGH:

Ang Department of Neurosciences ng Philippine General Hospital ay nag-aalok ng mga makabagong pamamaraan ng pag-gamot, tulad ng High-Intensity Focused Ultrasound (HIFU) at Deep Brain Stimulation (DBS), para sa mga pasyenteng may movement disorders gaya ng Parkinson’s disease, X-linked Dystonia-Parkinsonism (XDP), at essential tremors. Upang malaman kung ikaw o ang iyong mahal sa buhay ay maaaring makinabang sa mga gamutang ito, bumisita sa Neuro Outpatient Department (OPD) sa Room 132 para sa pagsusuri.

25/10/2025

Eternal rest grant unto him, O Lord, and let perpetual light shine upon him. May he rest in peace. Amen.
May almighty God bless us with his peace and strength, the Father and the Son and the Holy Spirit.


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17/10/2025