11/06/2026
In the words of Annie's Mummy and Daddy...
🧡💙❤️💚🩵💛
Annie is four years old and lives with KBG Syndrome, epilepsy, global developmental delay and learning difficulties. She faces challenges every single day that most people will never see. She struggles with communication, has mobility difficulties, sensory sensitivities, sleep issues, feeding difficulties and has had to endure more hospital appointments, assessments and therapies than any child should ever have to.
Despite everything she faces, Annie continues to amaze us. She is brave, determined, loving and has a smile that can light up any room. She works incredibly hard for every achievement, no matter how small it may seem to others, and we are proud of her every single day.
KBG Syndrome is a rare condition, and many people have never heard of it. Today we are helping to raise awareness not only for Annie, but for every child and family living with KBG. Behind every diagnosis is a child who deserves understanding, support and the opportunity to reach their full potential.
Annie, you have taught us more about strength, resilience and unconditional love than we could ever put into words. We could not be prouder to be your mum and dad
💚🩵💙💛🧡❤️💗