West Lancashire and Merseyside Myeloma Support Group

West Lancashire and Merseyside Myeloma Support Group The West Lancs and Merseyside Myeloma Support Group is a registered charity. We support patients in

We are a registered charity no 1187791
Our charitable objectives
To relieve the needs and preserve and protect the good health of people affected by myeloma, residing in the West Lancs and Merseyside area, their families and carers, through the provision of a support group and such other activities, services, advice and information as the trustees deem fit with the aim of facilitating the best

possible care of such persons and raising awareness of myeloma. We also promote the early diagnosis of myeloma in our community, we do this by raising awareness at public events and by supporting primary healthcare training. Our support group consists of people with similar challenges who have mostly found ways to live with myeloma in a positive way. It can be uplifting to communicate with people who understand how you are feeling and some patients and family members say they gain a real sense of strength by meeting and chatting with others. Therefore we hold a local informal, friendly meeting once a month. We recommend attending face to face but the meeting can be attended via zoom also. If you are interested in joining us then please email or request to join our Facebook support group ‘West Lancs and Merseyside Myeloma Support Group’ for patients, carers, family and those affected by Myeloma. Who are we:
Support Group Leader David Simister
Support Group Deputy Dave Lovelady
Patron: Air Commodore Fin Monahan OBE DFC PhD

Membership enquiries Email: [email protected]
Social media enquiries Email: [email protected]
Website: www.wlm-myeloma.uk
Macmillan Information Centre E: [email protected]

Please read Mark’s incredible inspirational and brave story.  👏💪👏💪
15/06/2026

Please read Mark’s incredible inspirational and brave story. 👏💪👏💪

Mark Scott speaks with Joanna Tilley, Operations Director LMRUK, about his journey from diagnosis to treatment and life beyond cancer. Q: When and how were you diagnosed with myeloma? I was diagnosed at 45. At the time, I was training for the Manchester Half Marathon and dealing with persistent back...

15/06/2026

Any form of exercise is beneficial for cancer patients. Swimming is a full body exercise that is highly recommended. We meet in Splashworld every Wednesday during school term time (we are not on during school holidays). Its is a lovely group that is really supportive and as you can see from the photo, not all the time is spent swimming!
The great thing is that we have the whole pool to ourselves, which can be so important for some patience who may have a compromised immune system.

Splashworld
Wednesday (School terms= time only)
10.30am (meet in reception at 10.15am)

Call the centre on 01704 533024 for more information.

15/06/2026

⏰ Just 10 days left to book!

Our upcoming Haemato-Oncology Conundrums education event is nearly here, and we now have only a handful of spaces remaining.

Join us for an engaging evening exploring abnormal blood results, common haemato-oncology cases, key red flags, and referral pathways, with opportunities for discussion and learning alongside fellow healthcare professionals.

📅 25th June�📍 Lunya, Albert Dock, Liverpool�🕡 6:30pm – 8:30pm�🎟️ Free to attend (registration required)

Book via the link 🔗 https://docs.google.com/forms/d/e/1FAIpQLScEpCa07M51ARR3i0YKmSe7Qemn4tx6Dkdc3X4AJ4GlnSZzKA/viewform

15/06/2026

The British Medical Association (BMA) has called off the strike by resident doctors in England from 7:00am (07:00) on Monday 15 June 2026 until 6:59am (06:59) on Friday 19 June 2026 after a new pay offer from Government.

They will now hold a referendum on the new pay offer.

There is no strike from Monday 14 June to Friday 19 June 2026.

15/06/2026

Your old clothes don’t belong in landfill. 🌍 Donate them instead and help protect our planet. Give your clothes a second life—donate, reduce waste and help us continue to fund life-saving research♻️👕 https://lmruk.org/donate-clothes/

15/06/2026
15/06/2026

in the UK for 2026 runs from 15–21 June - Help us spread the word and raise awareness!

12/06/2026

We're delighted to share that following a draft no decision, NICE have approved the life-extending treatment, DVRD, for use on the NHS in England and Wales.

We submitted more data and evidence to NICE’s appraisal committee and, along with clinicians and the pharmaceutical company behind the treatment, successfully made the case for DVRD to be rolled out on the NHS.

DVRD is aimed at newly-diagnosed patients who are not eligible for a stem cell transplant. It combines daratumumab (Darzalex®), bortezomib (Velcade®), lenalidomide (Revlimid®) and dexamethasone.

The latest trial data shows that 68% of people on DVRD were still in remission after four and a half years.

Caroline Donoghue, our Access Manager, said:

“This is fantastic news and a great result for patients who felt let down by NICE’s initial decision not to approve DVRD. We have been working very hard to get NICE to reconsider and we’re delighted they’ve agreed to roll it out on the NHS. We know how devastating being diagnosed with myeloma is and new patients deserve the best possible treatment right from the off.

Not only does DVRD have the potential to keep myeloma at bay for more than four years, but it means less time spent in hospital for people with myeloma and their families. We can’t emphasise enough what this means for their quality of life."

🔗Read more about DVRD here: https://brnw.ch/21x3aEv

11/06/2026

Getting a cancer diagnosis, for yourself or someone you love, can feel completely overwhelming.
Macmillan Cancer Support have put together some really helpful guidance on those first difficult days and weeks.
You can find it at https://www.macmillan.org.uk/cancer-information-and-support/diagnosis
And remember - if you need someone to talk to locally, we're right here. Drop in any weekday between 10am and 4pm, or call us on 01704 533024.
You don't have to face this alone.

Address

West Lancs & Merseyside, , Guide HQ Green Lane Ormskirk
Ormskirk

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