Standing Voice

Standing Voice We promote the rights and well-being of people with albinism in Africa through health, education, economic empowerment, and capacity development.

Building local clinical expertise is one of the most effective ways to improve healthcare for people with albinism.Recen...
30/07/2026

Building local clinical expertise is one of the most effective ways to improve healthcare for people with albinism.

Recently, Standing Voice travelled to Zimbabwe to deliver a four-day clinical training workshop for doctors, nurses and medical students, equipping healthcare professionals with the knowledge and practical skills to prevent, diagnose and manage skin cancer in people with albinism.

Working alongside our partners at Global Aid Missions (GAM), we combined classroom teaching with hands-on clinical experience, while also sharing practical approaches to building stronger, more sustainable healthcare systems.

The visit highlighted the urgent need to expand access to specialist skin cancer prevention services in Zimbabwe. But it also demonstrated the passion and commitment of local healthcare professionals determined to improve care for people with albinism.

By investing in clinical training and strengthening health systems, we can help ensure more people receive the life-saving care they need, when they need it.

A special thank you to Dr Andrew Sharp, Chair of Standing Voice’s Medical Advisory Board, and dermatologist Dr Aine Kelly for generously sharing their expertise and helping strengthen skin cancer prevention services for people with albinism in Zimbabwe.

Read the full story through the link in our bio.

📸 global.aid.missions

How can vision support help students with albinism thrive in school?Many people with albinism are visually impaired beca...
16/07/2026

How can vision support help students with albinism thrive in school?

Many people with albinism are visually impaired because reduced melanin affects the development of the eyes. Yet access to vision care and educational support remains limited across Tanzania and Malawi.

Without support, low vision can make learning difficult. Many students struggle to read the board, see learning materials clearly and participate confidently in the classroom. In many schools, teachers are also not trained to support the visual needs of students with albinism — meaning many students are overlooked or left behind in education.

Through Standing Voice’s Vision and Education Programme, we are helping bring specialist eye care directly to students through school and community-based clinics.

The programme provides specialist eye examinations, assistive devices and educational support designed to help students with albinism learn, participate and thrive. We also work closely with teachers through our “Vision Ambassadors” initiative to help build more inclusive learning environments.

Through partnerships, we are helping strengthen sustainable and accessible vision care systems in Tanzania and Malawi — ensuring more students with albinism can access the support they need, now and in the future.

🔗 Find out more via the link in bio

📸 1-3 - Chihiro Tagata Fujii, 4 - , 5 - Chihiro Tagata Fujii, 6 - Kathy Ge**er

Healthy skin is something everyone deserves. 🌍This World Skin Health Day, we're celebrating the progress being made to e...
08/07/2026

Healthy skin is something everyone deserves. 🌍

This World Skin Health Day, we're celebrating the progress being made to ensure people with albinism can access the dermatological care they deserve.

Every skin screening, every health worker trained, every hat or bottle of sunscreen provided, and every conversation about sun safety helps create healthier futures for people with albinism in Africa.

Together with our partners and communities, we're proving that prevention and early detection works—and that access to regular skin healthcare saves lives.

Thank you to International League of Dermatological Societies and International Society of Dermatology for bringing organisations across the world together through World Skin Health Day. We're proud to be part of a global movement working towards skin health for all.

📸 1 - Imogen Freeland, 2 - Sylvi Schaffrath, 3 - Christina Silas, 4-7 - Andrea Zvadova

Inside our Q2 newsletter: stories, partnerships and impact from across our work.This edition features:🌍 International Al...
07/07/2026

Inside our Q2 newsletter: stories, partnerships and impact from across our work.

This edition features:

🌍 International Albinism Awareness Day celebrations in Tanzania, Malawi and around the world

🤝 Our new research partnership with the International Agency for Research on Cancer, WHO and Fondation Pierre Fabre

📍 The latest from our partnerships and projects across Tanzania, Malawi and Zimbabwe, including updates on our fight against skin cancer, how women impacted by albinism are tackling period poverty, frontline clinical training in Zimbabwe, and how eye care is transforming education in Tanzania

💬 Inspiring personal stories from UN Albinism: Muluka-Anne Miti-Drummond, SV Trustee Gurmeet Kaur, and student advocate Tellicia

🔗 Read the full newsletter here: https://bit.ly/4gqjImC

Last week, Standing Voice joined colleagues from the Fondation Pierre Fabre and the International Agency for Research on...
29/06/2026

Last week, Standing Voice joined colleagues from the Fondation Pierre Fabre and the International Agency for Research on Cancer, WHO in Lavaur, France, for our annual Steering Committee meeting.

The meeting brought partners together to review progress across our Skin Cancer Prevention Programme (SCPP) and wider health initiatives in Tanzania and Malawi, reflect on achievements and challenges, and set priorities for the years ahead. Discussions focused on programme impact and communications, the next phase of our partnership, and the launch of an exciting new research collaboration with IARC — watch this space.

We are deeply grateful to the Fondation Pierre Fabre, whose ten-year support has been instrumental in expanding access to skin cancer prevention and treatment services, strengthening health systems, and improving access to specialist healthcare for more than 14,000 people with albinism across Tanzania and Malawi.

Together, we are working towards a future in which every person with albinism has access to the healthcare, protection, and opportunities they need to live healthy, safe, and fulfilling lives.

Today, on International Albinism Awareness Day, we join the global community in celebrating this year’s theme: “Proudly ...
13/06/2026

Today, on International Albinism Awareness Day, we join the global community in celebrating this year’s theme: “Proudly in My Skin.”

Across the world, people with albinism are challenging stereotypes, breaking down barriers, and showing that albinism is something to be embraced, not hidden. Their stories are powerful reminders of resilience, confidence, and the importance of being seen and valued for who we are.

Here, people from across our community share, in their own words, what it means to be proud in their skin. Their reflections are inspiring and a celebration of identity, strength, and belonging.

Join us in celebrating their voices today and every day.

📸 1/2 - Harry Freeland, 3 - Sylvi Schaffrath, 4 - Brian Benson, 5 - Global Albinism Alliance/ Dominik Kucera, 6 - Harry Freeland

Why are people with albinism in Africa at such high risk of skin cancer?People with albinism have little or no melanin, ...
05/06/2026

Why are people with albinism in Africa at such high risk of skin cancer?

People with albinism have little or no melanin, leaving their skin highly vulnerable to harmful UV radiation. Combined with intense sun exposure and limited access to protection and dermatological care, this creates a severe and often life-threatening health risk.

In sub-Saharan Africa, skin cancer remains the leading cause of early death for people with albinism. At Standing Voice, we work alongside governments and partners to strengthen health systems and expand access to life-saving services.

Albinism should never be a death sentence.

🔗 Learn more about how we’re working to prevent avoidable deaths through our Skin Cancer Prevention Programme here: https://www.standingvoice.org/skin-cancer-prevention

📸 1- Sylvi Schaffrath, 2- Mite Organization, 3- Michael Ndosi, 4- Chihiro Tagata, 5- Ramadhan Mfinanga, 6- Owen Howard Mchekeni, 7- Harry Freeland, 8/9- Innocent Mwandu

For many mothers impacted by albinism, the journey can begin with isolation, stigma and uncertainty.Women from the Mothe...
29/05/2026

For many mothers impacted by albinism, the journey can begin with isolation, stigma and uncertainty.

Women from the Mothers’ Albinism Action Group (MAAG) share their experiences in their own words — reflecting on the challenges they have faced, the confidence they have built together, and the growing sense of inclusion within their communities.

Their stories highlight the power of collective support, lived experience and community-led advocacy.

“There is far less stigma than before, and that is because of the work of this group of mothers.”

🔗 Read their stories here: https://bit.ly/4ffbfSC

📸 Harry Freeland

We are deeply disturbed by reports surrounding the discovery of the body of a man with albinism in Malawi, who had previ...
26/05/2026

We are deeply disturbed by reports surrounding the discovery of the body of a man with albinism in Malawi, who had previously been reported missing in March 2025.

This case is a painful reminder that people with albinism continue to face serious threats to their safety, dignity and right to life.

Together with APAM, we are calling for a swift and thorough investigation, and for anyone responsible to be held accountable through due legal process.

Our thoughts are with the individual’s family, loved ones and community at this difficult time.

In March, during the 61st Session of the United Nations Human Rights Council in Geneva, advocates from across the global...
22/05/2026

In March, during the 61st Session of the United Nations Human Rights Council in Geneva, advocates from across the global albinism movement came together to speak on the right to employment for persons with albinism.

Representing organisations and communities across the world, Hilda Macheso, Kristina Venning Rose, Kwame Andrews-Daklo, Clarke, Donté Mickens, Julio Garcia, Lei Xiao, Sarah Kane and Antoine Gliksohn highlighted the barriers that continue to limit equal access to work and opportunity.

Their interventions reflected a shared reality: exclusion from employment is often shaped long before adulthood through stigma, unequal access to healthcare and education, and a lack of inclusive support systems.

Standing Voice was proud to support Gift Sakala’s oral statement at the UN in Geneva.

🔗 Read the full story in our latest newsletter here: https://bit.ly/4nEcGfi

📸 Global Albinism Alliance / Dominik Kucera

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