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Myheart

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If you have been suddenly diagnosed with a congenital or inherited heart condition we would love to hear from you.

myheart offers help and support to people with cardiac conditions. If you are a between the ages of 12 and 35 and have been diagnosed with one of the following conditions, myheart can help you.
- Cardiomyopathies such as hypertrophic cardiomyopathy (HCM), arrhythmogenic right ventricular cardiomyopathy (ARVC) and dilated cardiomyopathy (DCM)
- Ion channelopathies such as long QT syndrome (LQTS), Brugada syndrome, catecholaminergic polymorphic ventricular tachycardia (CPVT), progressive cardiac conduction defect (PCCD) and short QT syndrome (SQTS)
- Wolff-Parkinson-White syndrome (WPW)
- Marfan syndrome
- Myocarditis
- Coronary artery anomalies
- Premature coronary artery disease
- Familial hypercholesterolemia

26/10/2026

Register now for the Autumn virtual myheart meeting taking place on Saturday, 21st November 2026

There will be a question and answer session with Dr. Raghav Bhatia, Consultant Cardiologist and service lead for Inherited Cardiac Conditions and Sports Cardiology at NHS Humber Health Partnership, Hull University Teaching Hospitals NHS Trust. He is also a lecturer at City St. George’s, University of London, and serves as a cardiologist for Cardiac Risk in the Young and the My Heart Network. In this session, members can ask questions they have about their condition, the exercise/s they can do or any other cardiac concerns they may have especially with regards to current circumstances.

To see more information about the meeting and to register, go to: https://www.myheart.org.uk/autumn-video-myheart-meeting-saturday21st-november-2026/

12/10/2026

Nothing prepared us for the result… by Ollie Hagedorn and Ollie's mum, Louise.

"Ollie had no symptoms. The Wolff Parkinson-White syndrome was silently there since birth."
"We, as a family are so grateful we got that ECG for Ollie and that CRY as a charity are out there because we would never have known there was an issue without CRY."

Read Ollie's story here: https://sbrew.link/s6JYmWS3

25/09/2026

myheart member Kaitlin Lawrence and CRY supporter Hilary Nicholls joined the Little and Large podcast for a special episode about Cardiac Risk in the Young.

Hilary shares the heartbreaking story of the death of her 20-year-old daughter, Clarissa, from a sudden cardiac arrest. Kaitlin, whose life was saved after collapsing and receiving an ICD implant, shares her experience of diagnosis and recovery.

Together, they discuss the reality of hidden heart conditions in young people, the importance of cardiac screening, and why schools can play a vital role in helping prevent future tragedies.

This is an emotional but ultimately hopeful conversation about raising awareness, empowering families, and turning personal experiences into life-saving advocacy.

Please note: This episode includes discussions of bereavement and experiences of ICD shocks.

Listen now: https://open.spotify.com/episode/0o3wj7ZpKz0nygqEEETN4c

21/09/2026

I wish that cardiac screening was a national programme so I could be diagnosed years ago by Liam Harper

"I do wish that screening was a national programme that I could have had years ago. I was born with this condition but only found out I had it when my body couldn’t compensate any more. If I had known that I had this condition years ago, it could have been managed and monitored and may have bought me more healthy time to enjoy my football for longer and I, and my family would not have endured the stress and anxiety caused by misdiagnosis and delayed treatments at the beginning of this journey.

"Since my diagnosis, my family have all been screened and my dad also has heart failure, and my middle brother’s heart has lower than normal function. So screening is vital!"

Read Liam's story here: https://sbrew.link/dgJPEIpS

15/09/2026

I went to play a football match but was diagnosed with ARVC! by Chris J. Bernard

"My journey is still ongoing, but I have come a long way since that first episode in September 2024. I hope that by sharing my story, I can help someone else recognise the importance of listening to their body, seeking appropriate medical advice and understanding their own cardiac health before it is too late."

Read Chris' full story here - https://www.myheart.org.uk/i-went-to-play-a-football-match-but-was-diagnosed-with-arvc-by-chris-j-bernard/

01/09/2026

"The doctors say that I am in the best health that they’ve ever seen me in and that my heart is working sufficiently. If life didn’t have the bad times we wouldn’t enjoy the good."

After suffering a sudden cardiac arrest at the age of 16, Luke was diagnosed with Hypertrophic Cardiomyopathy, alongside other health complications, that led to a challenging recovery.

Read Luke's full story here - https://www.myheart.org.uk/if-life-didnt-have-the-bad-times-we-wouldnt-enjoy-the-good-by-luke-phythian/

14/08/2026

Vital Beat has created a unique and specialized protection and comfort solution for people with medical devices such as an ICD, EV-ICD or S-ICD. Wearing the Vital Beat shirt and protection shields will allow you to safely and comfortably enjoy your sports, hobbies and work.

After meeting at a cardiology convention last year, Vital Beat has collaborated with CRY to offer myheart members a €40 (aprx £35) discount on selected items!

Find out more at: https://www.myheart.org.uk/vital-beat/

04/08/2026

It is recommended that anyone with a hidden medical condition carries a form of identification detailing their condition and any medication they are on. This could be in the form of a card placed somewhere visible in your wallet/purse, or an identification jewelry, such as a MedicAlert ID.

MedicAlert is the UK’s first and only medical ID charity, trusted by healthcare professionals and members for more than 60 years.
myheart members can receive 15% off MedicAlert IDs using the code CRY15.

Find out more at: https://www.medicalert.org.uk/CRY/

Address

Unit 1140B The Axis Centre, Cleeve Road
Leatherhead
KT227RD

Opening Hours

Monday	10am - 5pm
Tuesday	10am - 5pm
Wednesday	10am - 5pm
Thursday	10am - 5pm
Friday	10am - 5pm

Telephone

+441737363222

Website

http://www.myheart.org.uk/

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