Huntington Society of Canada

06/19/2026

Accreditation with Imagine Canada's Standards Program!

We are proud to announce that the Huntington Society of Canada has been accredited by Imagine Canada’s Standards Program, which is designed to strengthen the practices of Canadian charities and nonprofits and increase public confidence in the sector’s work through demonstrated transparency and accountability.

The Standards strengthen five fundamental areas of governance and operations within every nonprofit organization:

💙 Board governance
💙 Financial accountability and transparency
💙 Fundraising
💙 Human resources
💙 Volunteer involvement

The Standards provide shared best practices to strengthen governance, improve operations, and manage risk effectively. We are very proud of this certification!

06/18/2026

Together with our partner, Brain Canada, we are proud to announce the recipients of the 2026 HSC and Brain Canada Undergraduate Student Summer Fellowship. Supported in part by the Canada Brain Research Fund, these fellowships offer undergraduate students across Canada the opportunity to work alongside senior HD scientists and contribute to projects that help advance HD research.

𝗔𝗻𝗻𝗼𝘂𝗻𝗰𝗶𝗻𝗴 𝘁𝗵𝗲 𝟮𝟬𝟮𝟲 𝗿𝗲𝗰𝗶𝗽𝗶𝗲𝗻𝘁𝘀:

💙 Woojae (Matt) Cho: University of British Columbia
💙 Harsimran Dhillon: University of British Columbia
💙 Lianna Li: University of Toronto
💙 Hannah McLean: University of Windsor
💙 Emily Pan: University of Toronto / fellowship at University of British Columbia
💙 Jeea Thakker: McMaster University / fellowship at Western University
💙 Ella Williams: University of Calgary
💙 Wan Qi Zhang: Université de Montréal / fellowship at CHU de Québec-Université Laval

Please join us in welcoming our 2026 HSC Student Fellowships to the HD community. Thank you to our supporters for making these fellowships possible and helping inspire the next generation of HD researchers.

06/17/2026

UniQure reports the U.S. FDA has agreed that existing trial data could support an accelerated approval filing for its HD treatment: AMT-130. This decision is a reversal by the FDA after indicating late last year that available data was insufficient to support a filing. The FDA has now told uniQure that the 3-year analysis would be sufficient as the main basis for a marketing application, and the FDA has agreed to work with uniQure to finalize the design of a required confirmatory study before the filing.

Learn more by reading the full press release:https://hsc.huntingtonsociety.ca/public/press-release/june-2026-uniqure.pdf

Read the community letter to the HD community:https://hsc.huntingtonsociety.ca/public/commmunity-letter/june-2026-uniqure.pdf

Read HDBuzz's summary article here: https://en.hdbuzz.net/the-other-shoe-drops-uniqure-shares-plans-to-submit-licensing-application-with-the-fda-for-amt-130/

06/15/2026

Canada Day is just around the corner and there are only two weeks left to shop our HD Awareness pop-up shop!

Show your Canadian pride while supporting the HD community with our Canadian-designed HSC apparel. Order now to get your gear in time for the festivities.

Shop now: https://huntingtonsociety.sellfy.store/products/

Our pop-up shop closes June 30, so don't miss out on stylish, cozy awareness gear you can sport all year long.

06/12/2026

06/11/2026

🙌 Hands up if you're ready for YPAHD Day 2026!

YPAHD Day is a one-day conference for youth affected by HD (ages 14-35) taking place on Saturday, November 14, in Mississauga, ON.

We're pleased to offer funding support for a select number of YPAHD Chapter delegates attending YPAHD Day, which may include complimentary registration, accommodation, and travel assistance.

Don't miss this opportunity! Apply today and learn more: https://docs.google.com/forms/d/e/1FAIpQLSebxM8a2F8tbxM_zX8qKsD4I-23Y4xywmqJnZeVE2BXgdmhFg/viewform

⏰ Application deadline: Monday, July 6, 2026

06/10/2026

Join us on Thursday, June 25 at 12:00 p.m. to 1:00 p.m. ET for our next HD Research Webinar featuring Dr. Patrick O'Donoghue, HSC Research Chair at Schulich School of Medicine & Dentistry - Western University.

Dr. O'Donoghue will share an update on the latest research emerging from his lab, including innovative work exploring novel nucleic acid-based therapeutics for HD and helping us better understand how hidden protein errors may point toward new treatment approaches.

Don't miss this opportunity! Learn more and register today: 21ed3d17-f0bd-4010-86f2-fea45b959c9c@c7af713b-0a6b-48fb-afd5-b1ab334c8559?bbeml=tp-rMAuMdAMB06vzWoBGAI3Ug.jk6WohwqrmUWqKdnHyjX95Q.rvwSZwCYvvk2UakhbcNj2mQ.ll0XmX_Qfsk6D4mnjuXjM6Q" rel="ugc" target="_blank">https://events.teams.microsoft.com/event/21ed3d17-f0bd-4010-86f2-fea45b959c9c@c7af713b-0a6b-48fb-afd5-b1ab334c8559?bbeml=tp-rMAuMdAMB06vzWoBGAI3Ug.jk6WohwqrmUWqKdnHyjX95Q.rvwSZwCYvvk2UakhbcNj2mQ.ll0XmX_Qfsk6D4mnjuXjM6Q

06/10/2026

We're sliding into the celebrations with our 2026 National Walk contest winners!

🏆 Starting Line Draw: Brian Freeze & Heidi Pauselli
🏆 Top Fundraiser: Gabriel Lessard-Kragen
🏆 Social Media Draw: Rebecca Madeline

Thank you to everyone who participated, shared your stories, and helped spread awareness this May. Your support made this our most successful walk yet. We are so grateful to have such an incredible community by our side 💙💜

06/09/2026

RECORD-BREAKING YEAR!

Thanks to the incredible support of our community throughout HD Awareness Month, this year's National Walk was our biggest and most successful yet:

👟 $559,839 raised (match included)
👟 1,034 walkers registered
👟 20 in-person walks

From sharing stories and raising awareness online to fundraising, participating in events, purchasing HSC gear, appearing in the media, and supporting one another, you came together in incredible ways this May.

Behind every dollar raised and every step taken is a community that cares deeply. Thank you for making this record-breaking year possible. We couldn't do it without you 💙💜