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Monday 8:30am - 5pm Tuesday 8:30am - 5pm Wednesday 8:30am - 5pm Thursday 8:30am - 5pm Friday 8:30am - 5pm

Huntington Society of Canada

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Waterloo, ON
Huntington Society of Canada

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Non-profit dedicated to improving the quality of life for those affected by Huntington disease.

11/05/2026

Mark your calendars! HSC’s 2027 National Conference is coming to Moncton, New Brunswick!

We are so excited to bring our HD community together again for a day of learning, connection and community.

Here’s what you need to know:

📍Location: Moncton, New Brunswick
📆 Dates: October 22- 23, 2027
• Friday, Oct. 22: YPAHD Day
• Saturday, Oct. 23: Main Conference & Awards Gala Dinner

This year, we are bringing back our rotating conference locations and introducing a one-day conference format. These changes will help make the conference more accessible to families across Canada and create more opportunities for members of our community to attend.

We look forward to seeing you in Moncton! Stay tuned for more details.💙💜

11/05/2026

We know how much HSC’s National Conference means to our community, and we are excited to share what is in store for 2027! Watch our video with Kelsey Laidlaw (Conference Lead) for a first look at what is planned!

To stay up-to-date with conference details visit: https://www.huntingtonsociety.ca/conference/

11/04/2026

Our amaryllis are almost 90% sold! 🌺

Thank you to everyone who has already ordered and helped make this fundraiser such a success! If you’ve been thinking about getting one, now’s the time - we are down to the final few!

Purchase your amaryllis before they’re sold out: https://www.huntingtonsociety.ca/purchase-amaryllis/

Every order helps support families and individual affected by HD. Thank you for your support!❤️

11/03/2026

Do you play pickleball? 🏓

We are looking to partner with pickleball clubs across Canada to host fundraising tournaments for HSC, and we’d love to know where you play! Please email [email protected] if you’re a pickleball player and share your club details.

We’d love to have some fun on the courts in support of the HD community! 💙

11/02/2026

A beautiful quilt, a great cause!

The Huntington Society of Canada’s Niagara Chapter is hosting a handmade quilt raffle this November! A lucky winner will take home a beautiful, handmade quilt donated by the Stoney Creek Quilters Guild.

Get your tickets here: https://rafflebox.ca/raffle/niagaraquiltraffle/

• 30 tickets for $50
• 10 tickets for $25
• 3 tickets for $10
• 1 ticket for $5

The raffle is open until November 30, 2026!

Proceeds from the raffle will be donated to HSC. Thank you for taking part and supporting the HD community. Good luck!💙

11/02/2026

The U.S. FDA has accepted uniQure's application for ifezuntirgene inilparvovec (AMT-130), an investigational gene therapy for Huntington disease, and granted it Priority Review. The FDA’s target decision date is May 1, 2027, although this is not a guarantee of a decision or approval. The therapy is not yet approved. UniQure and the FDA have also aligned on key elements of a confirmatory study that expects to enroll 200 participants for a minimum 3-year long study. International study sites are expected to be announced in the first half of 2027.

For more details, visit https://www.huntingtonsociety.ca/news/

10/30/2026

Did you know that…

Small, frequent meals can be a helpful way for people with HD to get enough calories throughout the day.

To learn more, please refer to our newly revised factsheet “Eating and Swallowing with HD”:https://hsc.huntingtonsociety.ca/public/factsheet/eating-and-swallowing-with-hd.pdf

10/29/2026

💙Join HSC for our latest research webinar with Dr. Lynn Raymond on Thursday, November 19, 12:00 p.m. ET.

This presentation will provide a summary of the Phase 3 PRECISE-HD study, what potential participation might involve, and where to go to get more information.

Dr. Lynn Raymond is the Director of the Djavad Mowafaghian Centre for Brain Health at the University of British Columbia. She is also a Professor in the Department of Psychiatry, the Louise A. Brown Chair in Neuroscience, and Clinic Director of the Centre for Huntington Disease. Dr. Raymond is an internationally renowned neuroscientist and neurologist, and her work bridges foundational science and clinical research.

Register here: 552ec46b-5c33-4e6d-8226-7ef1af575a6e@c7af713b-0a6b-48fb-afd5-b1ab334c8559?source=copyLinkOneEventsShareDialog" rel="ugc" target="_blank">https://events.teams.microsoft.com/event/552ec46b-5c33-4e6d-8226-7ef1af575a6e@c7af713b-0a6b-48fb-afd5-b1ab334c8559?source=copyLinkOneEventsShareDialog

10/28/2026

For Corinne Bees, finding a cure for Huntington disease (HD) is personal. Having seen HD affect her own family, she understands how much it can change lives and why supporting the HD community matters so much.

Every member of the HD community has their own story, and it is important for those stories to be heard. That’s why we are excited to introduce our new HSC Blog, sharing the experiences, perspectives, and voices of our community. 💙💜

We’re starting with Corinne, who shares why HD hits so close to home.
Read her story: https://www.huntingtonsociety.ca/blog/for-corinne-bees-finding-a-cure-for-hd-hits-home/

Interested in sharing your own experiences via the HSC Blog? Let us know! Email us: [email protected]

10/27/2026

💙 Together, we raised $105,250.51! 💙

Thanks to the incredible generosity of our community, our fall fundraising campaign raised $55,250.51 in donations, which grew to $105,250.51 with the match from our generous anonymous donor!

To everyone who donated, shared our campaign, or helped spread the word: THANK YOU! Your support means so much to the HD community and helps make continued research, care, and support possible.

We’re so grateful to have you alongside us in building a future free from Huntington disease 💙💜

Address

375 Hagey Boulevard, Suite 114
Waterloo, ON
N2L6R5

Opening Hours

Monday	8:30am - 5pm
Tuesday	8:30am - 5pm
Wednesday	8:30am - 5pm
Thursday	8:30am - 5pm
Friday	8:30am - 5pm

Telephone

(800)9987398

Website

http://www.huntingtonsociety.ca/

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