Live for Liv

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Live for Liv Help us to raise much needed funds for brain cancer research, in honour of our beautiful girl Olivia That Sunday evening our lives changed forever.

Olivia had been suffering severe headaches for two weeks prior to the 22nd April 2016 when our family GP made the decision to send Olivia for a CT scan. After the scan we were told to go straight to Royal North Shore Hospital. Olivia was diagnosed with a Grade 4 GBM and was taken for emergency brain surgery to hopefully remove the tumour and alleviate the pressure on the brain. The surgery went well and they removed most of the tumour. Olivia had a long recovery ahead but all was looking positive for her treatment plan. Olivia was re-admitted to hospital with complications on 13 May 2016. On this particular trip to the hospital Olivia wrote this message on her social media page:

‘No one ever expects anything to ever happen to them, and why would we? But when you get told something is wrong and maybe your year isn’t going on the path you expected, your priorities really get a shuffle. You realise things are not important and that memories and feelings are everything. So let us all make 2016 not just about you, but about our families, our friends, our dreams and our goals. Make it your year to reach a little higher or to go a little further! Because next year might not be your year... .’

We feel this passage is something we should all remember and reflect upon. Love and happiness was truely the best medicine for Olivia. Olivia attended Mt Wilga Rehab Hospital two days a week and was doing so well. She was showing amazing strength and courage. She was recovering well from her surgery and looking at potentially going back to work a few days a week. However, in May 2017 Olivia’s tumour started to grow back aggressively and the Doctors told us it was inoperable. They tried Chemotherapy for a short time but it was unable to slow down the cancer. Olivia passed away peacefully at home on 27th July 2017 surrounded by family and her fiancée Daniel. Olivia’s passing has left a huge hole in our hearts. She was the funny, bright and witty one in the family. The sparkle in our lives. It was Olivia’s wish to raise $50,000 for brain cancer research and we have committed ourselves to continue fundraising and creating awareness in our local community about this terrible disease. We have made the promise to our girl that we will “Live for Liv’. Brain Cancer kills more children than any other disease and more people under 40 than any other Cancer. That’s why it’s vital we help to raise funds for research. Every single contribution brings us closer to a cure. We thank you from the bottom of our hearts for all your support x

** All proceeds are donated to The Mark Hughes Foundation in honour of Olivia Caitlin Addison.

It was a very emotional day💔😢
15/10/2026

It was a very emotional day💔😢

14/10/2026

HAY THERE! WE LOVE THIS! 💙

How amazing is this creation from the Scenic Rim in Queensland! Every year, the township of Kalbar holds a Hay Bale Decorating Competition, and this year local resident Susan Land has created something very special to help raise awareness for brain cancer.

Susan's mum was diagnosed with a Stage 4 Glioblastoma (GBM) brain tumour two years ago, making this cause incredibly close to her heart.

Sporting an oversized MHF beanie and a big smile, this hay bale is spreading a powerful message of hope and reminding everyone to NEVER GIVE UP!

A huge thank you to Susan for putting so much thought, creativity and heart into this wonderful display. We absolutely LOVE it!

📍 If you're in the Scenic Rim area, you can check it out at 320 Warrill View Peak Crossing Road, Harrisville QLD.

Let's show Susan some love for her incredible creation! 💙

10/10/2026

Roger and I will be attending this year’s “Head To The Hill”.

👏👏👏👏👏👏
06/10/2026

👏👏👏👏👏👏

02/10/2026

Wishing our Beanie Ambassador, Knights Captain Kalyn Ponga and MHF Ambassador, Knights Assistant Coach Danny Buderus, all the very best for the huge game this Sunday!
"I’m so proud of what they have both achieved this year. I really believe they can win and create history this Sunday. MHF is what it is because of the people that get behind us, these two great men are examples of this. So grateful to have them both on our side, Good luck boys, we are all behind you and the team."
- Mark Hughes OAM, MHF Co-Founder & Newcastle Knights Premiership Player '97 and '01
💙❤️

25/09/2026

Today is World Cancer Research Day.

We want to acknowledge and thank the researchers, clinicians, trial teams and research organisations across Australia who continue to work towards better treatments and better outcomes for people affected by brain tumours. Their work gives patients and families something incredibly important: progress, possibility and hope.

At Head to the Hill 2026, we’ll hear directly from two leaders working to advance brain cancer research in Australia:

🔬 Dr Kim Wark, Head of Research at the Robert Connor Dawes Foundation, who will speak about the importance of research investment and collaboration, particularly for children and young people affected by brain cancer.

🔬 Professor Mike Fay from the Mark Hughes Foundation, who will share insights into the current research landscape and the work underway to accelerate progress for people diagnosed with brain cancer.

Their perspectives will be an important part of the conversation at Parliament House as patients, carers, families, researchers, clinicians, advocates and decision-makers come together to ask: what needs to happen next?

Research has delivered progress — but for too many people affected by brain tumours, progress is still not happening quickly enough.

On 14 October, our community will come together at Parliament House with One Voice. One Community. One National Call to Action.

💙 Head to the Hill 2026
📍 Great Hall, Parliament House, Canberra
📅 Wednesday 14 October 2026

Join us at Parliament House and be part of the national conversation.
Register today https://btaa.org.au/head-to-the-hill-2026/

12/09/2026

📣 MEET THE SPEAKERS FOR HEAD TO THE HILL 2026

We are proud to announce the confirmed speakers who will join Australia’s brain tumour community at Head to the Hill 2026.

Our speakers bring powerful perspectives spanning lived experience, research, clinical care, advocacy, patient support and government:

⭐ Carrie Bickmore OAM
Founder of Carrie’s Beanies 4 Brain Cancer, media personality and passionate brain cancer advocate

⭐ Dr Katie Nicoll
Brain cancer advocate and wife of the late Professor Richard Scolyer AO

⭐ Andrew Wilkie MP
Independent Member for Clark and returning Head to the Hill speaker

⭐ Professor Mike Fay
Foundation Chair and Director of the Mark Hughes Foundation Centre for Brain Cancer Research, University of Newcastle, and radiation oncologist

⭐ Dr Kim Wark
Head of Research Strategy & Research Partnerships at the Robert Connor Dawes Foundation

⭐ Fiona Hassmann
National Advocacy Manager, National Advocacy Service, Peace of Mind Foundation

Together, they will share insights into the challenges facing people diagnosed with brain tumours, the needs of patients and families, the progress being made through research and the action still required from government.

📅 Wednesday 14 October 2026
📍 Great Hall, Australian Parliament House, Canberra

This October, add your voice to ours. Stand with us, share your story and help make brain tumours impossible to ignore.

One Voice. One Community. One National Call to Action.

🔗 Register now: https://btaa.org.au/advocacy-and-awareness/head-to-the-hill/

Carrie's Beanies 4 Brain Cancer Foundation RCD Foundation-Robert Connor Dawes Mark Hughes Foundation Peace of Mind Foundation Andrew Wilkie MP - Independent Member for Clark

11/09/2026

We need more shoes for Head to the Hill 2026.

If you or someone you love has been affected by a brain tumour, please consider sending us a pair of shoes to become part of our Parliament House installation. https://btaa.org.au/head-to-the-hill-shoe-collection-form/

In the weeks before Head to the Hill, we carefully and respectfully sort the shoes and the stories behind them. The hardest are the tiny ones — baby shoes, children’s shoes and those belonging to young people whose lives have been changed or cut short by a brain tumour.

Head to the Hill is about advocacy, but it is also about remembering.

Our kids matter. They still matter even when they are no longer here.

Every pair helps show the enormous impact brain tumours have on our community and allows your loved one to become part of the Head to the Hill legacy.

Everyone matters. Every story matters. Every pair of shoes tells a story.

We need to do better.

06/09/2026
Forever in our hearts ♥️ You will be missed and neverForgotten❤️Rest in peace Graham❤️
04/09/2026

Forever in our hearts ♥️
You will be missed and never
Forgotten❤️
Rest in peace Graham❤️

The Sharks are deeply saddened by the passing of Graham Robinson, one of the men who helped start it all.

A few beers at the Terrigal Pub and an idea to start a footy club, Graham helped build the foundations of the Sharkies family we know today.

From those first five teams to thousands of Sharkies who have followed, Graham’s legacy will forever be part of our club.

Rest peacefully, Graham

Address

Terrigal, NSW
2260

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