Pwn4Pwn

08/30/2026

Getting ready for the relaunch of our PWN4PWN anthem for World Narcolepsy Day! 🎶💜

Want to be in the music video?! 🎥✨

We’re looking for members of our Narcolepsy & IH community to send in their own video clips to be included!

Drop a note below if you want to be part of it, and we’ll be in touch with the details! 👇

Let’s show the world what our community looks like. 💜

08/30/2026

There’s more to my playing than Texas blues.

About a year ago, I recorded and produced a song called “Beyond the Sleep” for PWN4PWN, a nonprofit dedicated to empowering people living with narcolepsy and related sleep disorders.

I also produced the music video.

Most of you here have never seen this side of what I do.

This year, for World Narcolepsy Day, that changes.

I’m bringing PWN4PWN into the world of SRV Theory… using music, guitar, production and storytelling to put a bigger spotlight on a community that deserves to be heard.

This is “Beyond the Sleep.”

And on September 22, the story continues.

PWN4PWN x SRV THEORY

A song. A mission. A community.

08/19/2026

Your energy is valuable. Not every task deserves all of it.

AI can be more than a tool you occasionally ask questions. Used intentionally, it can help take on repetitive work, organize information, prepare next steps, and support you when your energy is better spent somewhere else.

For people living with narcolepsy and other conditions that can make energy unpredictable, that can matter.

In this AI Workshop, we explored how to match the right work to your higher-energy moments... and where AI may be able to help carry some of the load.

The goal isn’t to do more at any cost.

It’s to use your energy where it matters most.

08/18/2026

AI gets more useful when it understands your context.

For someone managing narcolepsy at work, that context might include energy limitations, symptoms, responsibilities, goals... and the kind of support you actually need.

In our latest AI Workshop for Job Seekers, we explored how giving AI better context can turn it from a generic chatbot into a more practical tool for everyday work.

The technology matters.

But what you tell it about the human using it matters even more.

08/10/2026

Work smarter doesn’t mean work harder.

For people living with narcolepsy, productivity can’t be built around someone else’s definition of a “normal” workday.

Tomorrow, the PWN4PWN JOBS Project welcomes Sam Velu for an AI Workshop focused on:

Productivity, Energy Management & AI at Work

We’ll explore practical ways to use AI to:

• prioritize tasks and reduce decision fatigue
• plan around your strongest energy windows
• build recovery time into your workflow
• create systems that support consistency without pushing through exhaustion

Tuesday, August 11
2:00 ET
Virtual

Sam brings nearly 30 years of recruiting and career-strategy experience, with a focus on practical, ethical, and accessible uses of AI for job seekers and professionals.

The goal isn’t to do more. It’s to make the energy you have work better for you.

Register through the link in our bio.

08/05/2026

U.S. FDA Approves Takeda’s ORZEYFUL™ (oveporexton), the First and Only Medicine to Treat the Underlying Cause of Narcolepsy Type 1

The U.S. Food and Drug Administration (FDA) approval of ORZEYFUL™ (oveporexton) in adults with narcolepsy type 1 (NT1, narcolepsy with cataplexy) has the potential to redefine NT1 care and how people feel on treatment. The persistent 24-hour nature of NT1 is driven by a loss of orexin and can severely impact people’s lives. As a first-in-class treatment that targets the underlying orexin deficiency of NT1, ORZEYFUL is the only medicine approved to treat the disease rather than individual symptoms.

Learn more about the FDA approval of ORZEYFUL here:

Takeda announces FDA approval of ORZEYFUL, a first-in-class oral orexin treatment for adults with narcolepsy type 1, pending DEA scheduling.

08/03/2026

A conversation can matter long after it ends.

Sam shares how a connection from 20 years ago resurfaced, led to an introduction, and opened the door to an interview.

Networking is not about collecting contacts. It is about being present, listening well, and leaving people with something genuine to remember.

This week, reconnect with one person; not to ask for anything, but to reopen the conversation.

08/01/2026

Being in demand and being unemployed can feel like two completely different worlds.

Jane went from receiving hundreds of recruiting messages to struggling to find her next position. Her experience is a reminder that losing a title does not erase your talent, experience, or value.

As back-to-school season begins soon, remember: careers have new chapters, too. Sometimes the next one starts by learning how to be seen again.

07/31/2026

A patient story can do more than describe what happened. It can help shape what happens next.

On Tuesday, August 18, NapChat LIVE welcomes and for:

Your Story Belongs at SLEEP: How Patients Become Conference Presenters

Their paths to SLEEP 2026 were different.

Dan’s opportunity grew from participating in an industry-sponsored patient panel into a research abstract and poster presentation. Solomon independently developed and submitted his own poster as a patient advocate.

Together, they’ll share what it was like to present at SLEEP, what goes into developing a medical-conference poster, and how lived experience can contribute to advocacy, research, education, and better sleep medicine.

Tuesday, August 18
6:00 PM EDT
Virtual

Hosted by Alejandro Bruner-Solas

Swipe to meet Dan and Solomon, then join us to discover how your own story can enter the conversation.

Reserve your place: https://linktr.ee/pwn4pwn