National Bleeding Disorders Foundation

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National Bleeding Disorders Foundation Dedicated to finding better treatments and cures for inheritable blood disorders and to preventing the complications of these disorders through education.
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A heartfelt thank you to Kedrion Biopharma for supporting the Factor X Awareness campaign. Your partnership allows NBDF ...
10/11/2026

A heartfelt thank you to Kedrion Biopharma for supporting the Factor X Awareness campaign. Your partnership allows NBDF to provide education, advocacy, and research that make a real difference in the lives of those with bleeding disorders.

Today is Factor X Day! Recognize someone who’s supported you, or share a quote or words of encouragement to inspire othe...
10/10/2026

Today is Factor X Day! Recognize someone who’s supported you, or share a quote or words of encouragement to inspire others affected and their loved ones to keep going.

Planning for pregnancy? Your bleeding disorder should be part of the conversation.For people with hereditary Factor X de...
10/10/2026

Planning for pregnancy? Your bleeding disorder should be part of the conversation.

For people with hereditary Factor X deficiency, talking with a hematologist before pregnancy can help identify potential bleeding risks, plan for appropriate care, and prepare for pregnancy and delivery.

Working with a knowledgeable healthcare team can help you make informed decisions throughout your family-planning journey. https://bit.ly/4dbmGZK

10/09/2026

October 10 is 10/10 Day, a day to raise awareness of Hereditary Factor X Deficiency (HFXD).

HFXD is an ultra-rare bleeding disorder, and greater awareness can help more people recognize the signs, ask questions, and have informed conversations with their healthcare providers.

Watch to learn more about HFXD, including symptoms that can sometimes go unrecognized.

🔗 Learn more about Factor X deficiency at https://bit.ly/4rFrD2Z?

Living with Factor X deficiency doesn't necessarily mean giving up the activities you love.Physical activity can support...
10/09/2026

Living with Factor X deficiency doesn't necessarily mean giving up the activities you love.

Physical activity can support joint health, strength, and overall well-being. The key is finding activities that are appropriate for your individual needs and working with your care team to understand potential risks.

Explore our Playing It Safe booklet for guidance on sports, exercise, and staying active while living with a bleeding disorder.

Factor X deficiency is inherited. This means it is passed on from biological parents to a child at the time of conceptio...
10/08/2026

Factor X deficiency is inherited. This means it is passed on from biological parents to a child at the time of conception. When this happens, the body does not make enough working factor X.

Factor X is needed to prevent bleeding. You can't "catch" it from another person.

Understanding the facts helps us build greater awareness of ultra-rare bleeding disorders.

Factor X deficiency may be rare, but no one should have to navigate it alone. For families like Lauren’s, finding answer...
10/07/2026

Factor X deficiency may be rare, but no one should have to navigate it alone.

For families like Lauren’s, finding answers, connecting with others who understand, and having access to trusted resources can make a meaningful difference.

Missed our Wednesday Webinar on Factor X deficiency? You can still watch the conversation and hear from experts as they discuss recognizing symptoms, navigating care, treatment options, and the lived experience of a family navigating Factor X deficiency.

▶️ Watch here: https://bit.ly/4hN32Vh

Candi Mitchum had seen multiple doctors and tried almost everything to address her heavy periods. She was having two sev...
10/07/2026

Candi Mitchum had seen multiple doctors and tried almost everything to address her heavy periods. She was having two seven-day periods a month, and finally her doctors told her if she wanted the bleeding to stop, she needed to get a hysterectomy, but the bleeding was so excessive after the procedure she required a second operation.

“It’s crazy to think that I was in the hands of so many different people over the course of these years, and not one person said, ‘What about her blood?’” she says. “Everybody just assumed that because I’m a female, it was a female problem.”

This story is all-too familiar for women and girls with bleeding disorders.

The new issue of HemAware Spotlight explores Candi’s story and how it related to larger issues in women’s healthcare. Check it out: https://bit.ly/4hBDLyQ

10/07/2026

Tung Wynn, MD; Lauren Johnson | We will begin with an overview of Factor X deficiency from Dr. Wynn, including how symptoms and bleeding patterns may present and change throughout infancy, childhood, adolescence, and adulthood. The presentation will cover common bleeding symptoms to watch for at each stage, when to seek medical attention, available treatment options, and the importance of ongoing care. We will also hear from lived experience expert Lauren sharing her family’s personal journey living with Factor X deficiency. Sponsored by Kedrion.

Finding the right care for a rare bleeding disorder can feel challenging, but specialized support is available. Hematolo...
10/06/2026

Finding the right care for a rare bleeding disorder can feel challenging, but specialized support is available.

Hematologists and Hemophilia Treatment Centers (HTCs) can help people living with Factor X deficiency understand their condition, explore treatment options, and develop a care plan that meets their needs.

🔗 Find a Hemophilia Treatment Center near you using NBDF's resource directory: https://bit.ly/4xVYCRS

Address

1230 Avenue Of The Americas 16th Floor
New York, NY
10021

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+12123283700

Website

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