National Bleeding Disorders Foundation

National Bleeding Disorders Foundation Dedicated to finding better treatments and cures for inheritable blood disorders and to preventing the complications of these disorders through education.
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After being told he may never return to his previous level of fitness, Sebastien Chenin turned recovery into resilience....
06/18/2026

After being told he may never return to his previous level of fitness, Sebastien Chenin turned recovery into resilience.

Through NBDF’s Fundraise Your Way program, Sebastien ran over 30 miles and raised more than $3,000 to support the bleeding disorders community. His journey is a powerful reminder of what happens when passion meets purpose.

Read Sebastien’s story and more in the latest Donor Digest.
🔗 https://bit.ly/4uCAvX2

Treatment options continue to evolve. Steps for Living helps you stay informed so you can have more confident conversati...
06/17/2026

Treatment options continue to evolve. Steps for Living helps you stay informed so you can have more confident conversations about care.

Understand your options: https://bit.ly/4n9UBp6

Your community starts here.BDC is a space to meet people your age who understand life with a bleeding disorder. From tra...
06/16/2026

Your community starts here.

BDC is a space to meet people your age who understand life with a bleeding disorder. From transitions and teen reflections to finding your voice and building confidence, these conversations are made for you.

New friendships. Real conversations. Your people.

Join us in Orlando: https://bit.ly/3NBmBUX

06/16/2026

Getting diagnosed with a bleeding disorder can feel isolating, but you don't have to navigate it alone.

Hear from Pearce Joza, Haylee Slonaker, and Carter Schaffnit as they share how community, connection, and opening up helped them realize there are people who understand exactly what they're going through.

💙 There’s a place for you in this community.
🔗 Learn more at https://bit.ly/3Sc7ZOh

We have our third Registration Raffle winner! 🎉Congratulations to Kristen Peace, winner of one year of Southwest Airli...
06/16/2026

We have our third Registration Raffle winner! 🎉

Congratulations to Kristen Peace, winner of one year of Southwest Airlines A-List Status! ✈️✨

Thank you to everyone who has already registered. There are still more chances to win exciting prizes before the conference. Stay tuned to see what’s next!

🔗 Register today: https://bit.ly/3NBmBUX

What happens when confidence, adventure, and hemophilia awareness come together?Join us for a special reading and discus...
06/15/2026

What happens when confidence, adventure, and hemophilia awareness come together?

Join us for a special reading and discussion of “Stellar Guardians,” a graphic novel following young hero Sam Atlas on an epic space mission inspired by real members of the bleeding disorders community.

This engaging webinar is designed to encourage confidence, self-advocacy, and connection for kids with hemophilia A and their families.
Sponsored by Genentech.

🔗 Register today: https://bit.ly/43yV6B3

You are not alone, and you never have been.Connect with others in the ultra-rare community through conversations on diag...
06/13/2026

You are not alone, and you never have been.

Connect with others in the ultra-rare community through conversations on diagnosis, advocacy, and research, all focused on your ultra-rare disorder.

Find your people. Share your story. Build community.
Find what speaks to you at: https://bit.ly/3NBmBUX

The bleeding disorders community is strong, and when we gather, that strength multiplies. brings education, advocacy, a...
06/11/2026

The bleeding disorders community is strong, and when we gather, that strength multiplies.

brings education, advocacy, and lived experience together under one roof.

Join us in Orlando on August 13-15, 2026.
Register now: https://bit.ly/4tBuREf

Advocacy. Awareness. Community. Impact.From Washington Days on Capitol Hill to the live Educate to Elevate event, commun...
06/10/2026

Advocacy. Awareness. Community. Impact.

From Washington Days on Capitol Hill to the live Educate to Elevate event, community fundraising, and 10 years of Bleeding Disorders Awareness Month, this is the impact your support makes possible.

Because of donors, advocates, and supporters like you, the bleeding disorders community continues to move forward together.

Read the latest NBDF Donor Digest.
🔗 https://bit.ly/4uCAvX2

06/10/2026

Speakers: Sulmari Powell-Barreto, Ryan Crowe, Stephanie Dupree and Kate Nammacher
Navigating life with a bleeding disorder often isn't easy, but with the latest information, education, and support, you can feel empowered. NBDF's Bleeding Disorders Conference (BDC) consumer and chapter education sessions equip you with treatment updates, skills and resources to meet challenges and feel supported to know you are not in this alone. This webinar, featuring members of NBDF's BDC Planning Committee, will give an overview of the upcoming sessions, provide insights into why the topics were chosen, and discuss the benefits of connecting in the community.

Address

1230 Avenue Of The Americas 16th Floor
New York, NY
10021

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+12123283700

Website

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