Spina Bifida Louisiana

04/25/2026

NORTHSHORE FAMILIES!!!

Check out this great event next weekend with Tony Torres as he helps open the new skate park at Pelicans Park On Saturday, May 2nd!!!

Wheelchairs were made for the skate park, and Tony will show how!!! god check it out!!

04/25/2026

Join researchers from Children’s Hospital of Philadelphia (CHOP) for a conversation on May 12, 2026, at 7 PM ET about how children from the MOMS Study are doing now as teens and young adults.

The MOMS studies compared two approaches to myelomeningocele (MMC) repair:
🔹 Surgery before birth
🔹 Surgery after birth

Earlier research followed children through early childhood. Now, MOMS 3 is exploring outcomes during the teen and young adult years, focusing on health, independence, mobility, and everyday life as children grow older.

During this session, the CHOP team will:
✨ Explain the earlier MOMS studies in simple terms
📊 Share what they’ve learned so far
🔍 Discuss the new MOMS 3 study
🤝 Explain how families can participate if interested

This is a valuable opportunity to learn, ask questions, and see how your family’s experience can help improve care for future generations. Families are welcome, and all questions are encouraged.

🔗 https://vist.ly/4zpw5

04/25/2026

Two bills impacting rights for people with disabilities likely to be heard next week.

Your voice needs to be heard!

Learn more:
https://conta.cc/48kHBqI

04/22/2026

If you're on the Northshore, check out this opportunity!

MANDVILLE… WE’RE COMING WITH SOMETHING SPECIAL.
On May 2nd, we’re bringing WCMX & Adaptive Skate to the brand new Pelican Park Skatepark — and trust me… you’re gonna want to see this.
This isn’t just a demo.
This is what happens when community, movement, and opportunity collide.
We’re talking:
♿ Adaptive skate in action
🔥 Live demos for ALL abilities
💯 Real progression. Real stories. Real impact

STARTS AT 10AM

63350 Pelican Dr, Mandeville, LA
If you’ve never seen adaptive action sports up close… this is your moment.

If you have… then you already know the energy we’re bringing.
Come celebrate. Come watch. Come learn.
Come be part of something bigger.

Let’s show Mandeville what this movement is all about.

04/18/2026

Northshore friends….check this out on May 2nd. Tony Torres with TNT360 will be out there for the grand opening!!! Check it out!

04/12/2026

A huge shoutout to , Ruby, , and for showcasing their wheelchair skills at our WNW and Family Picnic. It was incredible to watch!

04/12/2026

Thank you to everyone who joined us for an incredible Walk & Wheel 2026! We hope you had a fantastic time—what a beautiful day to come together as a community.

A heartfelt thank you to our amazing sponsors: PCG Medical, Manning Family Children’s, Make Good NOLA, Café 615 Home of da Wabbit, Superior Air, and Ace Medical. Your support makes events like this possible, and we are so grateful for your commitment to our community.

To our volunteers—thank you for your time, energy, and dedication in helping set up and support the event throughout the day. We couldn’t have done it without you!

Special shout out to Tony Torres for showing off his incredible WCMX skills—you truly inspired us all!

And congratulations to BJ’s Squad for raising the most funds and leading the pack—what an amazing accomplishment!

We can’t wait to see everyone again next year!https://conta.cc/4t7feVr

Email from Spina Bifida of Louisiana Your Support Made a Difference! Let's Celebrate Our Community Together! We're so GRATEFUL! Thank you to everyone who joined us for an incredible Walk & Wheel 2026!

04/12/2026

04/12/2026

Join us TODAY for our annual Walk & Wheel and Annual Family Picnic!

04/11/2026

TNT 360 MobilityTony Torres put on a spectacular event today!!! Thank you, Tony, for sharing your talents and love for WCMX with everyone!!!

04/11/2026

Join us for Walk & Wheel 2026, TOMORROW!!!!! Remember, it's also our annual Family Picnic immediately following the walk!