Neuroacanthocytosis Advocacy USA, Inc.

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United States
Melbourne, FL
Neuroacanthocytosis Advocacy USA, Inc.

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Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Neuroacanthocytosis Advocacy USA, Inc., Nonprofit Organization, Melbourne, FL.

We are a nonprofit, 501(c)(3) charitable organization established in 2019 to support neuroacanthocytosis (NA) patients in the United States and to develop research aimed at alleviation of the disease.

10/21/2026

Background VPS13A disease is a very rare neurodegenerative disorder caused by mutations in the VPS13A gene. Its prevalence appears to be relatively high in Puerto Ricans, although limited genetic in...

09/25/2026

👏🏻👏🏻👏🏻

Our 26th VPS13 Forum Report is now published! 👇
https://naadvocacy.org/wp-content/uploads/2026/09/REPORT-26th-VPS13-Forum-27-Jul-2026.pdf

We’re sharing it a little later than usual, but this Forum was rich with basic science that helps us understand the bigger picture around VPS13A and XK diseases. Read through the fascinating set of talks on bridge-like lipid transfer proteins (BLTP). Exploring these connections helps us stay ahead of emerging ideas and opportunities.

Thank you to all speakers and attendees for keeping our NA community connected and informed!

08/19/2026

Hear ye, hear ye! The latest NA News is out!

NA News #51 is here 👇
http://newsletter.naadvocacy.org/tpx1xh9sgrj1ote5zegv48
This edition brings together two decades of dedication, powerful family stories, new projects, inspiring fundraising, and the latest scientific updates. We’re also launching our new series explaining emerging therapies in clear, accessible terms.

Thank you to everyone who continues to support, share, and strengthen our NA community.

05/18/2026

Check it out!

Our 25th VPS13 Forum Report is now published!

A comprehensive snapshot of the science, stories, and community energy shaping this year’s progress in the community.

Dive in, share it, and stay connected!

https://naadvocacy.org/wp-content/uploads/2026/05/REPORT-25th-VPS13-Forum-27-Apr-2026.pdf

02/28/2026

Great to see our sister organization featured. Always grateful to them for including our logo. ❤️

02/28/2026

Address

Melbourne, FL

Telephone

+13212434545

Website

https://www.naadvocacyusa.org/

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